Author Sara Bell discusses her caregiving journey with her Grandmother who has dementia radio host Lori La Bey, on Alzheimer’s Speaks Radio. Sara blogs about her experiences and recently completed a children’s book to help kids make sense of the disease. The book is called “Nana Forgot My Name.”
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
Lori La Bey, host and founder of Alzheimer’s Speaks Radio talks with Paola Barbarino, CEO of Alzheimer’s Disease International. Paola is in charge of all aspects of ADI’s work and talk openly about their mission and their fantastic work. Learn about the international ADI conference that is being hosted in Chicago in the United States this year in July, Their new film titled “Every 3 Seconds,” The World Alzheimer Report along with World Alzheimer Month?. I think you will be impressed with all of the free resources and collaboration with 90 different countries.
International Conference in Chicago for 2018 www.adi2018.org
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“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
Lori La Bey host of Alzheimer’s Speaks Radio is thrilled to interview Trevor Mumby from the U.K.. The two have tried for several years to get their schedules to mesh and Tuesday, April 24th at 1pm it finally worked out! Tune in for a fun and uplifting conversation between two passionate advocates changing perceptions of dementia and learn brilliant tips Trevor has to offer to bring joy to those living with dementia, their families as well as professionals.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
Today we are going to talk with Dr. Elliot Goldstein, with ProMIS Neurosciences about a highly awaited Phase 3 trial and the challenges in Alzheimer’s drug development. Dr. Goldstein brings a unique track record in the clinical, regulatory and commercial development of new pharmaceuticals. He spent 14 years on drug development around the world, including being Head of Clinical R&D in the United States. Dr Goldstein has also held positions as Senior VP of Strategic Product Development, Chief Operating Officer and Chief Medical Officer and President and CMO in the pharma industry.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
I’m writing to be sure you saw this exciting news about new Alzheimer’s legislation that was introduced in Congress yesterday. The Concentrating on High Value Alzheimer’s Needs to Get to an End [CHANGE] Act, developed by Senators Shelley Moore Capito (R-WV), Roger Wicker (R-MS), Debbie Stabenow (D-MI), and Bob Menendez (D-NJ) and Representatives Peter Roskam (R-IL) and Linda Sanchez (D-CA), is a bipartisan bill crafted to help support the millions of families affected by Alzheimer’s. UsAgainstAlzheimer’s has worked closely with the bill’s co-sponsors to conceptualize and develop this legislation.
The CHANGE Act encourages timely and accurate assessment, detection and diagnosis of Alzheimer’s, supports innovative approaches to support family caregivers, and removes regulatory barriers to disease modifying treatments. Read more about this exciting news here.
Thank you and we look forward to working with you to advance this critical legislation for the Alzheimer’s community.
Want To Help Spread The News
Use the Social Media
Samples Below:
Organizational Handles:
@UsAgainstAlz
@WomenAgstAlz
@vradenburg3
@UsA2_Latinos
@FaithAgainstAlz
@LEAD_Coalition
Congressional Handles:
@SenCapito
@stabenow
@PeterRoskam
@RepLindaSanchez
@SenatorWicker
@SenatorMenendez
Hashtag: #CHANGEAlznow
Twitter
It’s time for CHANGE in Alzheimer’s policy. We applaud @SenCapito @stabenow @PeterRoskam @RepLindaSanchez @SenatorWicker @SenatorMenendez for recognizing this. We are one step closer to stopping #alz @usagainstalz #CHANGEAlznow https://goo.gl/k6BwuW
We and @usagainstalz support CHANGE to #stopalz. The CHANGE Act represents a new way of thinking around diagnosis of #Alzheimers and support #caregivers. Thank you to our representatives for pushing this important issue forward. #CHANGEAlznow https://goo.gl/k6BwuW
RT to support CHANGE in #Alzheimers! @PeterRoskam and @RepLindaSanchez have taken the lead in supporting policy to overcome barriers in Alzheimer’s disease. We stand with @usagainstalz to #CHANGEAlznow! https://goo.gl/k6BwuW
@SenCapito, @stabenow, @PeterRoskam, @RepLindaSanchez, @SenatorWicker, @SenatorMenendez are helping CHANGE the approach to #Alzheimers. TY for being part of the ‘us’ in @UsAgainstAlz https://goo.gl/k6BwuW #CHANGEAlznow
It will take CHANGE to #stopalz. Thanks to our representatives, we are transforming the approach to diagnosis, care, and a cure in #Alzheimers. Let’s collectively work to #CHANGEAlznow @usagainstalz https://goo.gl/k6BwuW
CHANGE is in the air on Capitol Hill! TY @SenCapito, @stabenow, @PeterRoskam, @RepLindaSanchez, @SenatorWicker, @SenatorMenendez for your dedication to #CHANGEAlznow @usagainstalz https://goo.gl/k6BwuW
Facebook
The only way we’ll stop Alzheimer’s is by fighting this disease on every front. That’s why we’re proud to support the CHANGE Act, introduced in Congress this week. This groundbreaking legislation encourages timely diagnosis, promotes innovative approaches to supporting family care partners and removes regulatory barriers to disease-modifying treatments. Read more here: https://www.usagainstalzheimers.org/press/usagainstalzheimers-endorses-change-act
This week, the CHANGE Act was introduced in Congress. This legislation will help individuals with Alzheimer’s receive timely and accurate assessment, detection and diagnosis. Furthermore, the bill supports innovative approaches to support family caregivers, and removes regulatory barriers to disease-modifying treatments. Together, we can turn this bill into reality! Let your Senators and Representatives know that you support CHANGE by signing the petition here: https://actions.usagainstalzheimers.org/p/dia/action4/common/public/?action_KEY=21470&email= caitlin.pratt@annelewisllc.com&ask=15&amounts=15,25,50,100,250,500&track=20180207-nd
We fully support the Concentrating on High-Value Alzheimer’s Needs to Get to an End (CHANGE) Act. This bill will transform the approach to diagnosis, care, and cure of Alzheimer’s, and benefit millions of families. We are spreading the word on this important issue and educating the public about the legislation. Learn more about the bill and join the conversation here: https://goo.gl/k6BwuW. The more voices that join in, the faster we can achieve change – and stop Alzheimer’s.
UK Network of Dementia Voices (DEEP – used to stand for Dementia Engagement and Empowerment Project) http://dementiavoices.org.uk/
The Dementia Diaries Project – a fabulous site for people living with dementia to leave raw, real and immediate reports of experiences, opinions anecdotes by simple phone message. It’s proving to be a fantastic medium and is so simple. Over Twitter we recruit volunteers to transcribe entries and do some ourselves. Have a look at: https://dementiadiaries.org/
Tuesday, January 2nd, at 2pm EST, 1pm CST,12pm MST,11am PST and 7pm London
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Alzheimer’s Speaks Radio loves hearing from their audience. Call in and join the conversation and tell us what you are doing to shift our dementia care, or what needs you are seeing in the industry and ideas you have to make improvements.
Talk to Host Lori La Bey at (323) 870-4602
I can’t put into words how humbled and honored I am to be named one of fourteen people, picked by Oprah and her team as a 2018, “Health Hero.” Being mentioned twice in one year in the “O” magazine is just down right amazing.
Alzheimer's Speaks believes working together and sharing knowledge is the best way to win the battle against this disease. Please explore the site and share your thoughts.
