The 4th of July is a great day to not only celebrate our nations independence, but to explore what independence means to us. Often I think we take our independence for granted. We can look at this day from many angles. Our political and military state, our right to vote, or our freedom of speech and on and on.
What Does Independence
Mean To You?
But today, I urge you to consider the importance of independence for those living with a chronic illness or disability, like a form of dementia.
If your memory or executive functions would start to slip away, what would independence mean to you? What would bring you comfort, dignity, safety and joy in your life? How would you want to be treated? What type of community would you see supporting you and why?
Share Your Thoughts with Us Here on Alzheimer’s Speaks
Enjoy the 4th of July Weekend – Be safe and Kind to Yourself & Others.
Below Video compliments of Dementia Chats
Those with dementia talk needs and strategies to incorporate when building dementia friendly communities and businesses. Find out who do you need on your team and why. Why are the little things so important. What Others are doing that is working well.
Additional Dementia Chats Interviews:
What Questions You Have For Those Living With Dementia?
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Missing my Mom and Dad. Trying to reframe that I can’t have great loss without first having great love for them. How lucky am I to miss them like I do.
“Realities of Dementia – Family Friendly Tools & Tips”
Gable Pines at Vadnais Heights 651-829-3171
1260 East Co. Rd. E, Vadnais Heights, MN 55110
Friday, May 3rd – 10:30am – 12:30pm
Educational Program
“As the Cookie Crumbles”
Gable Pines at Vadnais Heights 651-829-3171
1260 East Co. Rd. E, Vadnais Heights, MN 55110
Friday, May 10th – 10:30am – 12:30pm
Film Screening & Talk Back
“A Timeless Love”
Gable Pines at Vadnais Heights 651-829-3171
1260 East Co. Rd. E, Vadnais Heights, MN 55110
Friday, May 17th – 10:30am – 12:30pm
Educational Program
“Shifting from Crisis to Comfort”
Gable Pines at Vadnais Heights 651-829-3171
1260 East Co. Rd. E, Vadnais Heights, MN 55110
See what LeadingAge has to say about Lori La Bey
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London
Watch By Clicking on Below
Lori La Bey, host of Alzheimer’s Speaks Radio talks with Cory Czepa, Founder & President of Live 2 B Healthy. Joining them will be Bryan Schreifels, the Vice President and Kelly Nygard, the Director of Marketing. Learn how Live 2 B Healthy is helping create better senior housing experiences. Find out how their program encourages seniors of all abilities to improve their strength and balance in a fun group setting.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
Author Sara Bell discusses her caregiving journey with her Grandmother who has dementia radio host Lori La Bey, on Alzheimer’s Speaks Radio. Sara blogs about her experiences and recently completed a children’s book to help kids make sense of the disease. The book is called “Nana Forgot My Name.”
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
Lori La Bey, host and founder of Alzheimer’s Speaks Radio talks with Paola Barbarino, CEO of Alzheimer’s Disease International. Paola is in charge of all aspects of ADI’s work and talk openly about their mission and their fantastic work. Learn about the international ADI conference that is being hosted in Chicago in the United States this year in July, Their new film titled “Every 3 Seconds,” The World Alzheimer Report along with World Alzheimer Month?. I think you will be impressed with all of the free resources and collaboration with 90 different countries.
International Conference in Chicago for 2018 www.adi2018.org
Looking for a Keynoter, Consultant or Trainer?
See what LeadingAge has to say
about Lori La Bey
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
Lori La Bey host of Alzheimer’s Speaks Radio is thrilled to interview Trevor Mumby from the U.K.. The two have tried for several years to get their schedules to mesh and Tuesday, April 24th at 1pm it finally worked out! Tune in for a fun and uplifting conversation between two passionate advocates changing perceptions of dementia and learn brilliant tips Trevor has to offer to bring joy to those living with dementia, their families as well as professionals.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
Today we are going to talk with Dr. Elliot Goldstein, with ProMIS Neurosciences about a highly awaited Phase 3 trial and the challenges in Alzheimer’s drug development. Dr. Goldstein brings a unique track record in the clinical, regulatory and commercial development of new pharmaceuticals. He spent 14 years on drug development around the world, including being Head of Clinical R&D in the United States. Dr Goldstein has also held positions as Senior VP of Strategic Product Development, Chief Operating Officer and Chief Medical Officer and President and CMO in the pharma industry.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
I’m writing to be sure you saw this exciting news about new Alzheimer’s legislation that was introduced in Congress yesterday. The Concentrating on High Value Alzheimer’s Needs to Get to an End [CHANGE] Act, developed by Senators Shelley Moore Capito (R-WV), Roger Wicker (R-MS), Debbie Stabenow (D-MI), and Bob Menendez (D-NJ) and Representatives Peter Roskam (R-IL) and Linda Sanchez (D-CA), is a bipartisan bill crafted to help support the millions of families affected by Alzheimer’s. UsAgainstAlzheimer’s has worked closely with the bill’s co-sponsors to conceptualize and develop this legislation.
The CHANGE Act encourages timely and accurate assessment, detection and diagnosis of Alzheimer’s, supports innovative approaches to support family caregivers, and removes regulatory barriers to disease modifying treatments. Read more about this exciting news here.
Thank you and we look forward to working with you to advance this critical legislation for the Alzheimer’s community.
Want To Help Spread The News
Use the Social Media
Samples Below:
Organizational Handles:
@UsAgainstAlz
@WomenAgstAlz
@vradenburg3
@UsA2_Latinos
@FaithAgainstAlz
@LEAD_Coalition
Congressional Handles:
@SenCapito
@stabenow
@PeterRoskam
@RepLindaSanchez
@SenatorWicker
@SenatorMenendez
Hashtag: #CHANGEAlznow
Twitter
It’s time for CHANGE in Alzheimer’s policy. We applaud @SenCapito @stabenow @PeterRoskam @RepLindaSanchez @SenatorWicker @SenatorMenendez for recognizing this. We are one step closer to stopping #alz @usagainstalz #CHANGEAlznow https://goo.gl/k6BwuW
We and @usagainstalz support CHANGE to #stopalz. The CHANGE Act represents a new way of thinking around diagnosis of #Alzheimers and support #caregivers. Thank you to our representatives for pushing this important issue forward. #CHANGEAlznow https://goo.gl/k6BwuW
RT to support CHANGE in #Alzheimers! @PeterRoskam and @RepLindaSanchez have taken the lead in supporting policy to overcome barriers in Alzheimer’s disease. We stand with @usagainstalz to #CHANGEAlznow! https://goo.gl/k6BwuW
@SenCapito, @stabenow, @PeterRoskam, @RepLindaSanchez, @SenatorWicker, @SenatorMenendez are helping CHANGE the approach to #Alzheimers. TY for being part of the ‘us’ in @UsAgainstAlz https://goo.gl/k6BwuW #CHANGEAlznow
It will take CHANGE to #stopalz. Thanks to our representatives, we are transforming the approach to diagnosis, care, and a cure in #Alzheimers. Let’s collectively work to #CHANGEAlznow @usagainstalz https://goo.gl/k6BwuW
CHANGE is in the air on Capitol Hill! TY @SenCapito, @stabenow, @PeterRoskam, @RepLindaSanchez, @SenatorWicker, @SenatorMenendez for your dedication to #CHANGEAlznow @usagainstalz https://goo.gl/k6BwuW
Facebook
The only way we’ll stop Alzheimer’s is by fighting this disease on every front. That’s why we’re proud to support the CHANGE Act, introduced in Congress this week. This groundbreaking legislation encourages timely diagnosis, promotes innovative approaches to supporting family care partners and removes regulatory barriers to disease-modifying treatments. Read more here: https://www.usagainstalzheimers.org/press/usagainstalzheimers-endorses-change-act
This week, the CHANGE Act was introduced in Congress. This legislation will help individuals with Alzheimer’s receive timely and accurate assessment, detection and diagnosis. Furthermore, the bill supports innovative approaches to support family caregivers, and removes regulatory barriers to disease-modifying treatments. Together, we can turn this bill into reality! Let your Senators and Representatives know that you support CHANGE by signing the petition here: https://actions.usagainstalzheimers.org/p/dia/action4/common/public/?action_KEY=21470&email= caitlin.pratt@annelewisllc.com&ask=15&amounts=15,25,50,100,250,500&track=20180207-nd
We fully support the Concentrating on High-Value Alzheimer’s Needs to Get to an End (CHANGE) Act. This bill will transform the approach to diagnosis, care, and cure of Alzheimer’s, and benefit millions of families. We are spreading the word on this important issue and educating the public about the legislation. Learn more about the bill and join the conversation here: https://goo.gl/k6BwuW. The more voices that join in, the faster we can achieve change – and stop Alzheimer’s.
UK Network of Dementia Voices (DEEP – used to stand for Dementia Engagement and Empowerment Project) http://dementiavoices.org.uk/
The Dementia Diaries Project – a fabulous site for people living with dementia to leave raw, real and immediate reports of experiences, opinions anecdotes by simple phone message. It’s proving to be a fantastic medium and is so simple. Over Twitter we recruit volunteers to transcribe entries and do some ourselves. Have a look at: https://dementiadiaries.org/
Tuesday, January 2nd, at 2pm EST, 1pm CST,12pm MST,11am PST and 7pm London
Or Watch via Video
Alzheimer’s Speaks Radio loves hearing from their audience. Call in and join the conversation and tell us what you are doing to shift our dementia care, or what needs you are seeing in the industry and ideas you have to make improvements.
Talk to Host Lori La Bey at (323) 870-4602
I can’t put into words how humbled and honored I am to be named one of fourteen people, picked by Oprah and her team as a 2018, “Health Hero.” Being mentioned twice in one year in the “O” magazine is just down right amazing.
Dementia-Friendly Books Offering Simple Story Lines
Get Your Alzheimer’s Stamps!
AARP MN 50 Over 50
FootBar Walker
National Institute for Dementia Education
Alzheimer’s Speaks
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