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Archive for the ‘eens and Alzheimer’s Disease’ Category

Quality Aging Survey – Take it Now!

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

 

Join the Dementia Friendly Cruise –

Before We Set Sail!

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below to Download the Tips

 

Using Lavender to Treat Dementia

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward- Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

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Hug a Father – Let Them Know They Are Appreciated

Hug a Father – Let Them Know They Are Appreciated

Throughout my life my Dad was a very special man, not just to our family but so many.  The stories friends would tell me later in life about how my Dad made them feel part of our family when they felt lost and alone in their own family.

My Dad allowed us all to dream, supporting us to go after our goals, never doubting our capabilities.

Dad was quick with a smile and a joke.

He was always there to help a friend or stranger.

He cared for my Mother with dementia and lead by example.

Dad had strong family values to the end.

I so miss my Father, but yet the lessons he taught through kindness will forever be with me.

May ever child have a man like my Father in their life.

We must all respect and know deep in our hearts being a Father just like being a Mother; isn’t just a biological thing.

Being a Father is about being a good person in heart and soul.

We all need good Father role models at all ages and stages of life.

So with great love and deep appreciation I say,

“Happy Father’s Day” to all the wonderful men out there.

Learn how you can host a screening and talk back of “His Neighbor Phil.”

 

 

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Learn About The A-List & How Dementia Research Will Improve Lives

Learn About The A-List

& How Dementia Research

Will Improve Lives

 A missing piece in Alzheimer’s research is hearing from those who are closest to the disease.  Don’t miss the opportunity to be heard. Join us Tuesday, May 30th and learn how you can let Researchers know What Matters Most to you and your loved ones.

Listen and learn from our panel of experts each a powerhouse as an advocate and activist for dementia. Meryl Comer, Ginny Biggar, Terry Frangiosa and Greg O’Brien.

  • You will hear how this journey is tough, even for those with resources and those who work in the area.
  • Learn how we can all learn and grow through our dementia journeys. 
  • Find out how crucial you voice is in the fight against Alzheimer’s.

http://www.alist4research.org/

Depression, Sadness, Grief & Dementia

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Learn How To Host A Screening Of The

Hollywood Film “His Neighbor Phil”

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 Meet Me in Orange County June 4th

You Can Have An Impact, Even If You Can’t Make Maria Shriver’s Event. 

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

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Now is the perfect opportunity to join the Move for Minds experience. Please sign up today and we’ll thank you by giving you a pair of Beats urBeats Earphones ($99 value) at our Move for Minds event on June 4.  (Limit one Beats UrBeats Earphones per person-offer ends 5/24)

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Join the fun at one of the events in eight different cities where you can participate in an extraordinary workout and panel discussion.  Leeza Gibbons  will be the moderator.  All you have to do is sign up online and commit to a fundraising minimum of $250.00.

Check Out The Panel of Experts

• Dr. Daniel Amen, M.D. – Brain Health 

 • Tana Amen – Nutritionist

• Katy Bowman – Biomechanist

 • Mallika Chopra– Meditation Expert

•  Dr. Joshua Grill, Ph.D. – Alzheimer’s Research

•  Lori La Bey– Caregiving / Alzheimer’s & Dementia Activist

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4 Pillars of Prevention

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Voices from the Trenches – CNA’s Speak Out

CNA’s Speak Out on Dementia

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Alzheimer’s Speaks Radio

Corey Rotella began her work in long term care 2008, as a caregiver on the memory care unit. It quite literally changed her life. She is a member of the Alzheimer’s association, a co-author of both the blog and book CNA edge: A voice from the trenches of long term care.

Contact Corey Rotella:

visionaries76@gmail.com           coreyannerotella@gmail.com         

Buy the Book on Amazon

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Meet Me in Orange County on June 4th

Can’t Make It?  You can Still Have An Impact. 

Sponsor me to help raise fund for Women’s Research on Dementia

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At Maria Shriver’s Move For Minds Event

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Learn How You Can Host A Screening of the Hollywood Film

“His Neighbor Phil”

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4 Pillars of Prevention

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What Is Mother’s & Father’s Day Like When Your Are The Parent & Have Dementia

Dementia Chats™ Recording

What Is Mother’s & Father’s Day Like

When Your Are The Parent & Have Dementia

Our Topic Today is about:
Mother’s and Father’s Day. What is it like to be a parent diagnosed with dementia and  what it feels like to have lost a parent and how that impacts you living with the disease today.

Learn more about Dementia Chats™ below:

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Thank You To Our Experts Living With Dementia:
Harry Urban
Michael Ellenbogen
Truthful Loving Kindness
Brian LeBlanc
Laurie Scherrer
Mary Howard

Brought to you by Lori La Bey, Founder of Alzheimer’s Speaks and Dementia Chats

Facilitated by Lori La Bey and Co-Facilitated by Eilon Caspi.

Additional Resources

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How Do You Define Grassroots, Medical & Academic Models Of Care For Dementia?

How Do You Define:

Grassroots, Medical & Academic Models

Of Care For Dementia

This could pertain to actual services provided or movements to improve our dementia care culture.

Please post all additional comments in the comment section at the end.

Thank you!

Lori La Bey founder of Alzheimer's Speaks

Lori La Bey founder of
Alzheimer’s Speaks

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Alzheimer’s Speaks Radio –

Decision Making When Dementia Hits

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Click above to listen live On Tuesday April 9th at:

11am EST, 10am CST, 9am MST, 8am PST or 4pm London Time

Or you can mark to listen later as all shows are archived.

Tuesday we are excited to have Stephanie Erickson with us who will address the real tough conversation of decision making abilities with dementia.

Have an issue you need help with?  CALL IN – (714) 364-4757

Contact Stephanie on her Website    or by phone (514) 795-7377

Our 2nd guest will be Vicki Tapia author of “Somebody Stole My Iron” who discuss her journey with dementia.

Want to talk to someone about how your family is dealing with dementia?  CALL IN – (714) 364-4757

Email Vicki at vicki.tapia@gmail.com or go to her website 

You can also contact her publisher via Website  or phone at 806.673.3901. Books can be purchased as paperback or eBooks via our website and on Amazon.

Check out Alzheimer’s Speaks Website for more resources and information –

Blog, Free Webinars, Tools, Resource Directory and more.

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Radio Host Lori La Bey also Does Keynotes

She is loaded with great information from around the world.

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