Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.
Click the graphic above to listen to the radio show Tuesday October 15th, at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 16th at 6am in Australia
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.
Click the graphic below to listen to the radio show Thursday October 10th, at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 11th at 6am in Australia
Diane Sancho of Alice’s Clubhouse joins Lori La Bey on Alzheimer’s Speaks Radio. Learn about this wonderful Medical Model Adult Day Program which enriches lives and supports not only the person attending the program but their family. I think you will be very impressed with Alice’s Clubhouse.
Contact Information for Diane Sancho of Alice’s Clubhouse
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Below is an article by Author, Trish Laub who will be guest on Alzheimer’s Speaks Radio October 29th at 2pm ET, 1pm CT, 12pm MT, 11am PT, 7pm London and 6am in Australia on the Oct 30th.
I think for a moment my heart
stopped. Had I really been told that my dad was being treated for Alzheimer’s?
I hadn’t really had time to absorb the news when I heard Maria Shriver, who has
worked to spread awareness of Alzheimer’s, speaking about her father who had
been diagnosed with the disease. She shared some valuable advice that she had
been given: to accept her father as who he was at the time, just as she would
have had he not been living with Alzheimer’s. That one piece of advice, intended
for someone else, saved me! That was the start of my shift in perspective —
that even with Alzheimer’s, the possibilities were limitless for my dad
to have a meaningful life.
I imagine that I knew that there was
a stigma about Alzheimer’s looming somewhere. But I had never known anyone with
the disease, and I had no investment in the stigma. What I would come to learn
through my experience with my dad was that the Alzheimer’s stigma is unfounded,
for a variety of reasons, and is not only based on fear but also generates it.
Here’s what the stigma, and its negative ramifications, mean to me:
S-T-I-G-M-A
Shortsighted limitations => causes missed opportunities for quality of life
Taboo => thwarts supportive communication
Ignorance=> results in fear
Genetic cause => exaggerates heredity factor
Memory erased=> minimizes reinforcement of old or creation of new memories
Applicable to all => eliminates individuality and uniqueness
I had
heard one piece of the stigma, that Alzheimer’s is a death sentence. In one
pivotal moment, I had the thought “but perhaps Dad will die from something
other than Alzheimer’s.” He had heart disease, and people died from accidents
all the time. I didn’t want either alternative for my dad, but it opened up a
new way of thinking for me. Alzheimer’s would be a factor in his life, but it
might not have the final say.
Another pivotal moment for me was hearing that a doctor told Maria Shriver, “Once you’ve seen one case of Alzheimer’s, you’ve seen … one case of Alzheimer’s.” I was now ready to fight against any preconceived notion about life with Alzheimer’s, to find the uniqueness, and I refused to buy into the stigma.
Here’s how I saw my mission:
R-E-F-U-S-E-D
Rise to the challenges and recruit a care team to help
Educate myself
Fight for what’s best for my loved one
Unknown may not mean unbearable
Solutions abound to solve problems that arise
Engage my loved one wherever they are in that moment
Different does not mean less
I committed to doing everything in my
power to see that Alzheimer’s was going to have the smallest-possible negative
impact on my dad’s life. I had the great clarity that my dad was still my dad,
that he might be different, but not less. He was not a disease, and Alzheimer’s
was not his identity. I would work to keep his life as close to the way he
would have lived without the disease.
My
shift in perspective would go on to dictate that Alzheimer’s was not going to
define the man who loved me unconditionally, as Alzheimer’s did not have that
power. It is a disease, not a man, and certainly not my dad. I knew that I was
in uncharted territory, but I was going to find my way. What I found was that
even when living with Alzheimer’s, there are limitless possibilities to live a
meaningful life, and that was a reality for my dad.
Sadly, the stigma associated with Alzheimer’s
continues to exist. My own mom didn’t want anyone to know that Dad was living
with Alzheimer’s, because she feared that others would see him as less. That is
heartbreaking. The stigma is unfounded, based on outdated information, before
the importance of diet, supplementation, exercise and brain stimulation were
understood. It doesn’t help that few want
to talk about it. The stigma continues to propagate fear of being diagnosed with Alzheimer’s or of having a loved one
diagnosed with it.
Understanding Alzheimer’s is important. Knowledge
empowers you with a clear understanding of what you are facing and reduces fear
so you can analyze your options with a clear head and make educated decisions.
We need to come out of the shadows and talk about what Alzheimer’s is and what
it is not.
I believe that my dad’s success in continuing to live a meaningful life with Alzheimer’s was largely due to my family’s rejection of the stigma and fear, and our willingness to shift our perspective from limitation and deficit to limitless possibilities. If it was possible for my dad to live a most meaningful life to the end with Alzheimer’s, then it is possible.
Trish Laub is an expert on living with dementia and navigating the maze of care options and decisions for dignified care through end of life. Trish will be a guest on Alzheimer’s Speaks Radio Oct 29th.
Alzheimer’s Speaks Radio – Shifting Dementia Care from Crisis around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.
UPCOMING PUBLIC EVENTS WITH LORI LA BEY:
Coming to Elmhurst, IL – Oct 16th & 17th
Coming to Minnetonka, MN – Oct. 19th
Coming to Reading & Lexington MA – Nov. 13th & 14th
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.
Click Below to Watch the Video Interview
Click the graphic below to listen to the radio show Tuesday October 8th, at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 9th at 6am in Australia
Today Lori La Bey, Alzheimer’s Speaks Radio host talks with
Lenny Shallcross the Executive Director of the World Dementia Council (WDC)
located in London. On the show they will
discuss the mission of the WDC is and the survey they are asking organizations
to participate in.
Click Below to Get to the Survey
World Dementia Council Survey Ends October 30th, 2019
Here’s a bit more about the World Dementia Council (WDC)
The World Dementia Council helps change the lives of people
with dementia by securing change internationally working with international
governmental and non-governmental organizations. Through the collaborative
strength of governments, industry, researchers and health and social care
systems all working together we can transform the prospects for people affected
by dementia in all its forms, so that the disease no longer negatively impacts
on lives in the way it does today.
The World Dementia Council was established by the G8 (now
G7) at the London Dementia Summit in 2013. The council has 24 members drawn
from around the globe. At the London summit the G8 made historic commitments to
improve the lives of people affected by dementia today and to speed up the
development of disease modifying drugs so that the first treatment is available
by 2025. The role of the World Dementia Council is to challenge and support
international governmental organization to realize and accede these ambitions.
Through monitoring progress, identifying what further international action is
needed and building, expanding and nurturing global networks the World Dementia
Council helps galvanize global efforts to beat dementia.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Join the show live Tuesday October 1st, at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 2nd at 6am in Australia
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.
Lori La Bey host of Alzheimer’s Speaks talks with Author, Jodi L. Lyons about her new book, Brain Health As you Age, A Practical Guide To Maintenance And Prevention.
Come and join the conversation
Call in and ask your questions or make a comment at (323) 870-4602
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Join the show live Thursday Sept 26th at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 27th at 6am in Australia
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.
Lori La Bey, host and founder of Alzheimer’s Speaks Radio talks with Karen Parks the Founder & COO of Parks’ Place, along with Kaitlin Kelly the Director of Marketing and Life Enrichment. Their goal is to shift the paradigm for memory care. Karen’s family has been deeply touched by dementia. Her Mother and Grandmother dealt with the disease and her husband, Jerry, has been living with Alzheimer’s disease for 19 years. Come and listen to what a family feels are needed in Memory Care and why and when their doors open.
Call into the show with any questions or comments you have for our guest.(323) 870-4602
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.
See what LeadingAge has to say about Lori La Bey
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Alzheimer's Speaks believes working together and sharing knowledge is the best way to win the battle against this disease. Please explore the site and share your thoughts.
