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Finding that Next Home When Dementia Hits

Alzheimer’s Speaks Radio 

Becky Orr Montgomery and Discusses

Housing Options for Dementia

Listen By Clicking Below

051518 ASR Graphic Becky Orr Montgomery

Lori La Bey, Founder and Host of Alzheimer’s Speaks Radio met Becky Orr Montgomery in Iowa this spring at a conference and knew immediately she wanted to have her on the show.  Becky has great lived experience with dementia and other chronic illnesses.  She is passionate about people diagnosed with dementia living full lives and she also knows what a difficult decision any type of move can be for the whole family. Today we will have an interesting conversation about housing transitions for those diagnosed and their families.  Come join the conversation!

Or Watch the Interview Below

Contact Becky Orr Montgomery

Phone:  515-770-8831

Email:  becky@seniorhomefinderofiowa.com

Website:  seniorhomefinderofiowa.com

  

Come See Lori La Bey in Colorado!

June 5th – Grand Junction

June 6th – Grand Junction and Delta

June 7th – Montrose

June 8th and 9th  – Fort Collins

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Honoring Those We’ve Lost

Stan Writes to Honor His Wife June

stan and jusne berg

“I FOUND AN ORCHID WHILE SEARCHING FOR A ROSE”(Stan Berg’s Revision of the Carl Smith’ 1950 Lyrics)

I found an Orchid while searching for a Rose

The Orchid that I found dear June was you

The Orchid is a flower that blooms so tenderly.

And thrills the fairest ladies of the land

While the rose is a flower of love and romance

When placed beside the Orchid…

The Rose could not compare…

I found an Orchid while searching for a rose

The Orchid that I found dear June was you

The Roses I had been searching for

All proved to be untrue

The Orchid that I found dear June was you

While the roses have all lost their color

my orchid June remained the same…

I found an Orchid while searching for a rose

The Orchid that I found dear June was you

June is now in Heaven as we face the future years

But someday heaven’s wonders will all erase my tears

I found an Orchid while searching for a Rose

That Orchid dear June was you… 

Check out Stan’s website which is a tribute to his wife June who lived with dementia and has since passed away.  junebergalzheimers.com  Stan has a variety of articles from what is Alzheimer’s, how to cope, statistics and more.

Come See Lori La Bey in Colorado!

June 5th – Grand Junction

June 6th – Grand Junction and Delta

June 7th – Montrose

June 8th and 9th  – Fort Collins

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Trevor Mumby Shares Passionate Tips for Dementia Care

Alzheimer’s Speaks Radio 

Talks with Trevor Mumby

Lori La Bey host of Alzheimer’s Speaks is thrilled to interview Trevor Mumby from the U.K.. Tune in for a fun, heartfelt and uplifting conversation between two passionate advocates changing perceptions of dementia and learn brilliant tips Trevor has to offer to bring joy to those living with dementia, their families as well as professionals.  

Contact Trevor Mumby:     Email

Email Trevor to Get His Books

Coming Soon – Euphoria Made Easy

Come See Lori La Bey in Colorado!

June 5th – Grand Junction

June 6th – Grand Junction and Delta

June 7th – Montrose

June 8th and 9th  – Fort Collins

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

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Honoring All Mother’s on this Very Special Day

 

Cheers to all the women who have taken the time to be there when we needed them most!

Mother’s Day has always been a day of deep reflection for me.  Even before my Mother passed away in 2014, I had such great appreciation for all she gave not only me but any child or adult in need of love or support.  My mom was a very loving and compassionate person, one I can only hope to be like.

Years after graduating I was told by many friends, that they wished my parents were theirs.  I know now, when I was younger many of my friends hid what their lives were really like.  They experienced things like abuse and neglect that I can honestly say, never even crossed my mind.  I didn’t know they existed. Boy, how lucky was I! It makes me wonder if I was really that naïve or if things just weren’t talked openly back than. Either way, all I know is that my Mother, like many women made a difference not only in the lives of their own children, but many people in need.  Maybe they adopted a child or helped care for a child.     Maybe they recognized a person in need and made time to be there. Most all of us have experienced a time in our lives when we didn’t want to be alone, when we needed someone to hear us, validate our feeling or give us counsel.  Most of us were lucky to have a woman step up and be a Mother to us catching us when we were falling.

Mother’s are a gift and should be treated as such. 

Below is a short video when my mom was in her end stages of Alzheimer’s.  To this day it puts a smile on my face to see her joyful.  You may miss it, if your looing for someone to be in the perfect outfit and makeup… but I can’t watch this video or many others on my YouTube channel with out picking up on all the non verbal ways she is communicating joy – smile, dimples, tapping toes and hands, squinting eyes and of course her adorable laugh.  May you enjoy watching mom listen and at times sing with musician Barbara Lee Friedman.

Today, I am lucky to have a daughter.  A daughter who loves her children and puts them first and foremost in her life.  It brings me great pleasure to watch her in action with her girls.

Blessings To All Women To All Mothers

Come See Lori La Bey in Colorado!

June 5th – Grand Junction

June 6th – Grand Junction and Delta

June 7th – Montrose

June 8th and 9th  – Fort Collins

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Technology to Engage – The Birdsong Initiative

Alzheimer’s Speaks Radio Finds Out How

The Birdsong Tablet Engages People

Lori La Bey, Host of Alzheimer’s Speaks Radio is also the founder of Alzheimer’s Speak which offers multiple platforms to educate and support those dealing with dementia.  This Thursday Lori will talk with J. Benjamiin Unkle, Jr., the CEO of Westminster-Canterbury on Chesapeake Bay and Senior Options LLC and Aisha Azher, the Coordinator of The Birdsong initiative.  Join the conversation and learn why LeadingAge, the national senior living provider association, recognized Birdsong with the 2016 Award.

Contact Information on the Birdsong Tablet:

Website:   www.wcbay.com/birdsongtablet

Email:  birdsong@wcbay.com                               Phone: 757-496-1161

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Healthcare Advocacy – Becoming a Powerful Patient Partner™

Alzheimer’s Speaks Radio Talks with

Tiffany Mathews on 

Powerful Patient Partner™

Tuesday – May 8th, 2018

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Lori La Bey the host and founder of Alzheimer’s Speaks will be talking with Tiffany Matthews who is founder & CEO of Live Better Boomer! also known as LBB!,  Tiffany  is a  Healthcare Advocate. who delivers products and services to educate and empower patients and their care partners to manage their care confidently and correctly in our current and confusing healthcare system. She will share how her Grandmother served as an inspiration to launch LBB!.

Contact Tiffany Matthews​:

Phone: 215 260 7782                    Website: LBBhealthcareadvocacy.com 

                           Join her Facebook Group, The Caregiver & Patient Protection Project at www.Facebook.com/groups/LBBcap3www.LBBhealthcareadvocacy.com

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips

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Justice for Elders – Legislators Can’t Hide in the Sand Anymore!

We Can’t Put Our Heads

In the Sand Anymore! 

Legislators –
We Need You To Listen and Act!

Crisis ostrich in sand elion

                                                      Illustration by Yuval Caspi

 

 

Minnesota, is entering the last 3 weeks of this short legislative session and consumer advocacy groups such as Elder Voice Family Advocates and AARP MN are concerned and letting their voices be heard. Without strong protections and response, avoidable abuse, neglect, and mistreatment of these vulnerable adults will continue in the coming years.

An estimated 40% of residents in assisted living residences in Minnesota have dementia.

Many more are likely to have some level of cognitive impairment. 

Article By Eilon Caspi

Head in the Sand

A 90 years old resident with Alzheimer’s disease was living in a “memory care” unit of an assisted living residence (ALR) in Minnesota. One evening in 2016, while lying in her bed she called for staff help 99 times over 39 minutes. Nobody came to assist her. Then, around 8:30pm, she fell off the bed. While lying on the floor, she continued to call and cry out for help for 143 times (including multiple loud banging on the bed rail using her small wooden cross). At some point she cried out, “Please help me Lord.” Nobody came to assist her. In total, she called and cried out for help 242 times over the course of an hour and 38 minutes.

It was only after her daughter who watched the incident remotely on a hidden camera alerted the staff to the fall that they came to assist her. A staff member who came into her bedroom asked her, “Were you calling for help?”

When the family showed staff the video of the fall, their response, as reported by another daughter, was, “This is the assisted living model. If she was at home and had hired another home health group to come in, she would have experienced the same thing.”

This daughter reported that a similar incident occurred a month earlier and that the ALR “has done nothing to make improvements” to prevent her mother’s second fall off her bed and provide a timely response. The daughter wrote that without the hidden camera, the family wouldn’t have known what happened to her mother. She reported that the Minnesota Department of Health (MDH) who watched the video didn’t investigate the alleged neglect pertaining to the fall and the failure of staff to respond to it. She added, “Facilities will never be held accountable. Lack of regulation and strong lobbying presence paid for by the assisted living groups doesn’t help us much either.”

Permission to use information pertaining to this incident was given by the resident’s daughter.

A Minnesota Senate Aging and Long-Term Care Policy Committee hearing was held on February 28, 2018. The committee heard from leaders of the long-term care (LTC) industry about the abuse and neglect stories reported in the Star Tribune Special Report entitled Left to Suffer: Abused, Ignored Across Minnesota (November 12-16, 2017).

Patti Cullen, president and CEO, Care Providers of MN, said, “We are all deeply disturbed by the stories highlighted in the media.” Carli Lindemann, Vice President of Housing, Knute Nelson, Alexandria, Minnesota, asked, “Is there anything we could have done to prevent this from occurring?”

The short answer is “Yes.”

The warning signs for the current crisis in ALRs and “memory care” units in Minnesota have been widely known across the country for over 20 years. The table below outlines 16 warning signs, including government reports, research studies, and experts’ opinions.

Chronology of Warning Signs in Assisted Living Industry – 1997 – 2018

Year Report / Study / Experts’ Statement
1. 1997 General Accounting Office report
2. 1999 General Accounting Office study
3. 2003 Hearing before the U.S. Senate Special Committee on Aging entitled Assisted Living: Examining the Assisted Living Workgroup Final Report
4. 2004 Article by Gruber-Baldini and colleagues
5. 2005 Book by Robert Kane and Joan West It Shouldn’t Be This Way: The Failure of Long-Term Care
6. 2007 Pace & Love’s book chapter
7. 2008 Pace & Love’s “ostrich statement” and call for action
8. 2009 Study by Hawes and Kimbell entitled Detecting, Addressing and Preventing Elder Abuse in Residential Care Facilities
9. 2011 Study entitled Mistreatment in Assisted Living Facilities by Philips and Guo
10. 2012 Hawes’s “ticking time bomb” interview with PBS Frontline
11.

12.

2013 Large-scale study by Castle entitled An Examination of Resident Abuse in Assisted Living FacilitiesFrontline and ProPublica investigation and film entitled Life and Death in Assisted Living
13. 2013/4 National study of Long-Term Care Providers; and Deadly Neglect report in San Diego County, California
14. 2014 National study by Zimmerman, Sloane, & Read
15. 2015 Report on growth in complaints of abuse, neglect, and exploitation between 2010 and 2015; and Review of practices and states’ regulatory activity by Brian Kaskie and colleagues
2017-2018 Star Tribune Special Report Left to Suffer; Report by Office of the Legislative Auditor of MN Evaluation of Minnesota Department of Health Office of Health Facility Complaints
16. 2018 General Accounting Office study entitled Improved Federal Oversight of Beneficiary Health and Welfare is Needed
For detail about each of the warning signs, click here: downloadable version

Reflection and Policy Implications

Were the numerous warning signs over the past two decades known to the leaders of the assisted living industry in Minnesota?

During the Minnesota Senate Aging and Long-Term Care Policy Committee hearing held on February 28, 2018, Patti Cullen said, “We feel strongly about the need to focus on prevention.” She added: “The industry has zero tolerance for mistreatment.”

If these warning signs were known, to what extent strong, proactive, anticipatory preventive steps were taken (in close collaboration with consumers, consumer advocacy organizations, and MDH) to develop and implement basic and effective measures to protect vulnerable and frail elders from abuse and neglect in ALRs in Minnesota?

Governor Dayton told reporters after the Senate hearing on February 21, 2018, “Although the Department of Health is partially to blame, the real responsibility falls on each and every one of the care providers in the state’s facilities.” He added, “they need to fix the problems, stop breaking state laws and follow moral codes” (Channel 5 ABC Eyewitness News, February 22, 2018).

For the leaders of the LTC industry in Minnesota to ignore the warning signs and allow ALRs to remain a registration-only entity may be at the very least considered immoral and irresponsible and at worse neglectful.

Did the leaders of the LTC industry in Minnesota examine and give serious consideration to adopting the National Assisted Living Workgroup’s 110 recommendations for change including the recommendation to ensure that a state licensure for ALRs is implemented?

Without a reform consisting a comprehensive set of basic safeguards in legislation to protect residents in this rapidly growing LTC setting, vulnerable and frail residents will continue to be at risk of neglect, abuse, avoidable accidents, and other forms of harm.

During the Senate hearing held on February 28, 2018, Gayle Kvenvold, president and CEO, LeadingAge MN, expressed her “deepest apologies” to family members for the abuse and neglect experienced by their loved ones in LTC homes across the state.  She described the current state of affairs as “a watershed moment.”

The sorely needed and long-overdue need for a licensure of ALRs in Minnesota combined with ALR’s industry commitment to implementation of evidence-based best care policies and practices will ultimately increase the likelihood that residents will remain safe and free from psychological harm.

It will also fulfill the important promise of ALR as a safe care environment; one that is fully committed to ensuring that vulnerable and frail residents will experience the “highest practical medical, psychological, and social well-being.”

It is their human right.


References

  1. Serres, C. Star Tribune 5-Part Special Report entitled Left to Suffer: Senior Home Residents Abused, Ignored Across State, November 12-16, 2017.
  2. U.S. General Accounting Office. Long-Term Care: Consumer Protection and Quality of Care Issues in Assisted Living. Report to Ron Ryan, U.S. Senate, 1997.
  3. U.S. General Accounting Office. Assisted Living: Quality of Care and Consumer Protection Issues. Testimony before the U.S. Senate Special Committee on Aging, 1999.
  4. U.S. Senate Special Committee on Aging. Assisted Living: Examining the Assisted Living Workgroup Final Report, April 29, 2003.
  5. Sloane, P.D., Zimmerman, S., & Ori, M. Care for persons with dementia. In: S. Zimmerman, S., Sloane, P.D. & Eckert, J.K. eds. Assisted living: Needs, practices, and policies in residential care for elderly. Baltimore: The Johns Hopkins University Press, 2001.
  6. Gruber-Baldini, A. L., Boustani, M., Sloane, P. D., & Zimmerman, S. Behavioral symptoms in residential care/assisted living facilities: Prevalence, risk factors, and medication management. Journal of the American Geriatrics Society, 2004; 52: 1610–1617.
  7. Kane, L. R. & West, C.J. It Shouldn’t Be This Way: The Failure of Long-Term Care. Vanderbilt University Press, 2005.
  8. Pace, D.D. & Love, K. Enhancing assisted living: Are collaborative stakeholder efforts necessary? In: Golant, S.M., and Hyde, J., eds. The Assisted Living Residence: A Vision for the Future. Johns Hopkins University Press, 2008.
  9. Hawes, C. and Kimbell, A.N. Detecting, Addressing and Preventing Elder Abuse in Residential Care Facilities. Report to National Institute of Justice, U.S. Department of Justice, 2009.
  10. Philips, L.R. and Guo, G. Mistreatment in Assisted Living Facilities: Complaints, substantiations and risk factors. The Gerontologist, 2011; 51(3): 343-353.
  11. Zimmerman, S., Gruber-Baldini, A.L., Sloane, P.D., Eckert, J.K., Hebel, J.R., Morgan, L.A., Stearns, S.C., Wildfire, J., Maganizer, J., Chen, H.C. & Konard, T.R. Assisted living and nursing homes: Apples and oranges? The Gerontologist, 2003; 43, Special Issue II: 107-117.
  12. Breslow, J.M. Assisted living is a “ticking time bomb.” Interview of Catherine Hawes. PBS Frontline 2013 (interview held on November 10, 2012).
  13. Castle, N. An Examination of Resident Abuse in Assisted Living Facilities. A report submitted to the U.S. Department of Justice, 2013.
  14. Frontline and ProPublica. Life and Death in Assisted Living. PBS, 2012.
  15. Centers for Disease Control and Prevention. National Study of Long-Term Care Providers. Fast Facts, 2013-14. National Center for Assisted Living.
  16. Schoch, D. & Sisson, P., Clark, M. (September 8, 2013). Deadly neglect at some San Diego County assisted living facilities. The Center for Health Reporting, University of Southern California.
  17. Zimmerman, S., Sloane, P.D., & Read, D. Dementia prevalence and care in assisted living. Health Affairs, 2014; 33(4): 658-666.
  18. National Consumer Voice for Quality of Long-Term Care (2018). More must be done to protect residents of assisted living facilities. News article, February 6, 2018.
  19. Kaskie, B.P. Policies to protect persons with dementia in assisted living: Déjà vu all over again? The Gerontologist, 2015; 55(2): 199-209.
  20. Institute of Medicine. Improving the quality of care in nursing homes, 1986. Washington, DC: National Academy Press.
  21. Office of the Legislative Auditor of Minnesota. Office of Health Facility Complaints. Evaluation Report, 2018.
  22. U.S. General Accounting Office. Medicaid Assisted Living Services: Improved Federal Oversight of Beneficiary Health and Welfare is Needed, 2018.

Eilon Caspi Can be reached at:

http://dementiabehaviorconsulting.com

 

 

Thank You Healthline and All of Our Followers!

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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