Lori La Bey talks with the Authors of “Fighting for my Life.” Jamie Tyrone has a 91% chance of developing Alzheimer’s disease and she’ll tell us why. Needless to say, she is an advocate to find a cure and she believes in and enrolls in clinical trials herself. Dr. Marwan Sabbagh is a leading expert in Alzheimer’s diagnosis, treatment and research and the director of Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas, Nevada. We will discuss why they joined forces to write this book and what others can expect to get out of the book.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Lori La
Bey talks with Jean Smiley who worked as a Certified Nurse’s Aide on and off
throughout the years. In 2010, her Mother was diagnosed with Alzheimer’s
disease and her husband started showing signs of dementia. Since 2012, Jean set
out to raise awareness, make a difference helping others understand dementia
and what they may face on their journey She’ll share her experience as a
CNA, her personal journey with dementia, along with tips on struggles and what life is
like after caregiving.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Our Twin Cities Minnesota Dementia-Friendly Airports Working Group has launched an online survey, Traveling with Dementia – Airport Stories Survey,to gather information and stories about air travel experiences from persons with dementia and their care partners.
The Working Group is made up of researchers from the University of Minnesota School of Public Health and a group of area residents, professionals in aging and dementia services, Australian researchers responsible for the Brisbane Airport’s dementia-friendly designation, and others. The effort is organized and led by the Roseville Alzheimer’s and Dementia Community Action Team (Rsvl A/D).
The motivation for the Traveling with Dementia – Airport
Stories Survey is the recognition that airports are often difficult places to
be for people living with Alzheimer’s disease or other forms of dementia.
Navigating security and dealing with the noise and crowds can lead to anxiety
and confusion. While there are many anecdotes about air travel experiences of
people living with dementia, there is almost no hard data. This survey is
designed to address that gap, and will hopefully lead to improved services.
The survey covers travelers’ experiences, from booking flights to arriving at their destination, and encompasses travel within and outside the U.S. Respondents will remain anonymous.
The survey project began in 2018, when , a dementia-caregiver researcher at the University of Minnesota, was lecturing in Australia. He learned of Brisbane Airport’s dementia-friendly designation and met the Australian researchers responsible for this work. Gaugler contacted Rsvl A/D founder Sara Barsel and suggested that Rsvl A/D lead similar efforts locally. Barsel proposed a collaboration with the Brisbane Airport project’s lead researcher, Dr. Maria O’Reilly, and the Dementia-Friendly Airports Working Group was organized.
“There is tremendous excitement about this effort on the part of dementia service providers, travelers and their companions dealing with dementia,” said Barsel. “Navigating airports can be daunting for anyone, but especially for people with hidden disabilities like dementia.”
Please Share with Others with Dementia and their Care Partners
What Questions You Have For Those Living With Dementia?
Below Video compliments of Dementia Chats
Those with dementia talk needs and strategies to incorporate when building dementia friendly communities and businesses.
Find out 1) who do you need on your team and why. 2) Why are the little things so important. 3) What others are doing that is working well.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
July 4th, 2019 at 2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London time and July 5th at 6am in Australia
Multi-Sensory Environment and Sensory Stimulation
To Listen To The Audio Click Below
Lori La
Bey, talks with Ilse Achterberg has been an activity therapist and specialist
in Multi-Sensory Environments known as MSE or Snoezelen for over 25
years. Ilse is the founder of World Wide Snoezelen. Today we will learn
what a Snoezelen room is and how they can help those with dementia, autism,
ADHD and people with learning and/or multiple physical & mental
disabilities.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
The 4th of July is a great day to not only celebrate our nations independence, but to explore what independence means to us. Often I think we take our independence for granted. We can look at this day from many angles. Our political and military state, our right to vote, or our freedom of speech and on and on.
What Does Independence
Mean To You?
But today, I urge you to consider the importance of independence for those living with a chronic illness or disability, like a form of dementia.
If your memory or executive functions would start to slip away, what would independence mean to you? What would bring you comfort, dignity, safety and joy in your life? How would you want to be treated? What type of community would you see supporting you and why?
Share Your Thoughts with Us Here on Alzheimer’s Speaks
Enjoy the 4th of July Weekend – Be safe and Kind to Yourself & Others.
Below Video compliments of Dementia Chats
Those with dementia talk needs and strategies to incorporate when building dementia friendly communities and businesses. Find out who do you need on your team and why. Why are the little things so important. What Others are doing that is working well.
Additional Dementia Chats Interviews:
What Questions You Have For Those Living With Dementia?
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
July 2nd, 2019 at 2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London time and July 3rd at 6am in Australia
Lori La Bey, host of Alzheimer’s Speaks Radio, talks with Kari Logan, about her journey caring for her father with Alzheimer’s disease. Kari shares her struggles and rewards as well as the lessons she learned and resources she found. Come join us for for an interesting conversation. Feel free to call in with you comments or questions.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Those with dementia speak up about common needs and strategies they would like to see incorporated when building dementia friendly communities and businesses.
Compliments ofDementia Chats™ educational videos.
Learn:
Find out who do you need on your team and why.
Why are the little things so important.
What Others are doing that is working well.
More Interviews below:
What Questions You Have For Those Living With Dementia?
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Alzheimer's Speaks believes working together and sharing knowledge is the best way to win the battle against this disease. Please explore the site and share your thoughts.
