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Archive for the ‘Carole Larkin’ Category

Singing and Celebrating Dementia Side By Side

Alzheimer’s Speaks Radio on Thursday, Jan 17th, 2019 at:

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London time.

Click below to go to the show

Lori La Bey, founder of Alzheimer’s Speaks Radio chats with Simon McDermott, the son of Teddy, who goes by the nickname “The Songaminute Man.”  Teddy was diagnosed with Alzheimer’s in 2013. This father and son teams carpool karaoke videos went viral across the globe raising over £150,000 for the Alzheimer’s Society. Learn how music reunited a son and father and affect people around the globe.  Simon and Ted even won the Pride of Britain Award for raising dementia awareness. 

Contact Simon McDermott

FaceBook:   www.facebook.com/songaminute

Website:  www.songaminuteman.com

YouTube:  https://www.youtube.com/TheSongaminuteMan

Twitter: @songaminute

Book on Amazon    

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Powerful Poem Titled “They”

Once again, one of our community members writes a beautiful poem which points out just how much our words matter. Thank you Bob Savage!

A note from Bob Savage who is living with dementia –

Inspiration came from a recent national conference workshop that I attended where staff from a dementia care facility described what they are doing to improve communication with the people living in their facility. They used “THEY” at least 15 times when referring to the people living in their facility during their presentation. Each time they used the word “THEY” my stomach would cringe.

 THEY

By Bob Savage

 Who are these people who after one word we call them THEY

Did they have any choice as to why we call them THEY

Sometimes just one word (DEMENTIA) is why their THEY

Is a person any different after Dementia Diagnosed as THEY

We still love, hate, think, enjoy, cry, be depressed after THEY

We still love our family, friends, have enemies after THEY

We still love movies, parties, vacations, traveling after THEY

We still have emotional upsets, anger, frustrations after THEY

We do not like the loss of independence after THEY

We do not like the loss of social contact after THEY

We do not like people deciding and speaking for us after THEY

We do not like being a burden to those we love after THEY

We like to continue to speak for ourselves after our THEY

We like to be involved in all our decisions after our THEY

We like to set up new social contacts others after our THEY

We like to be accepted in our communities after our THEY

© of Bob Savage Living with Dementia 2018

If you would like to submit your poetry about dementia and caregiving make sure to include: The title of the piece Your by-line including your name as the author of the piece and any background or contact information you would like to share. Contact us  

See Other Poems Here

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Poem – Floating Words

  Problems understanding spoken sentences (verbal comprehension):

Floating Words

© Truthful Kindness 2018 Dec 11

Words float around and past me.

sometimes they splash against my body.

i hear them spoken.
i understand each word.

I reach for them,
but mostly they just float around me without joining;
without coalescing into concepts that i can grab, hold, and understand.

Sometimes i am able to grab a passing thought and hold it;
finally understanding,
responding to the speaker and building relationship …
… but then it is gone again.

Words float around and past me.

Sometimes i feel alone
… and require visuals or TOUCH.


© Truthful Kindness 2018 Dec 11

Contact Truthful Loving Kindness at:

Blog

FaceBook

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

Click Below Download Tips

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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New Books Allow People with Dementia the Ability to Continue to Reading

Listen Today, December 25th, 2018 at: 2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London time.

Listen in Below by Clicking on the Graphic

Watch the Interview Below

Marlena Books – Brings Dignity to Those Living with Dementia

Today Lori La Bey, host of Alzheimer’s Speaks Radio has a fascinating conversation with Rachel Thompson, CEO of Malena Books.  Rachel discusses the modification they have made to their books which make it much easier for those living with dementia symptoms, to be able to read independently. 

Contact Rachel Thompson at:

Malena Books

Purchase Books​

FaceBook

Twitter:  @Marlenabooks

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 
Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

Click Below Download Tips

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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In Honor of Susan Suchan

One voice that has been significantly missed this past year is Susan Suchan.  She lived her life fully even when diagnosed with dementia. We continue to celebrate her birthday and the love, compassion and dear friendship she brought into our lives.

Through Death,

Our Connection Remains

It was an honor to work with Susan on Dementia Chats.  Her insights were brilliant and her laughter contagious.

A few of us gathered to honor what would have been Susan’s 62nd birthday.  Please watch and feel free to share Susan’s life and the impact she had on others.  Remember each one of us have the opportunity to lift and inspire others by sharing our authentic self with one another, just as Susan did.


For poems by Mary Radnofsky read on the above video Click Below: https://www.alzheimersspeaks.com/images/Poetry/2_poems_mary_R_about_susan_suchan.pd

To see Truthful’s blog on Susan Click Below: https://truthfulkindness.com/memoriam/susan-suchan/

You never knew what would happen next….

A Bit More About Susan

Susan Suchan was the mother of two grown daughters and five beautiful grandchildren. She was a nurse for 23 years and was diagnosed with Early Onset Alzheimer’s Disease (EOAD) at the age of 48; an additional diagnosis of Frontotemporal dementia(FTD)/Primary Progressive Aphasia (PPA). Susan advocated for and about the “lived experience”, working to change perceptions, stigma and help bring to life, and the realness of her disease process. She has had the opportunity to speak Nationally and locally. Susan was awaiting the release of a documentary featuring her life, showing the effects on friends and family relationships, finances and end of life discussions. The film is called, “Susan’s Story” and is still in need of funds to complete.

Here Are Some of Our Dementia Chats Sessions Featuring Susan

Help Make “Susan’s Story” a Documentary, a Reality 

In honor of what would have been Susan Suchan’s 62nd birthday, her family and the producers of the documentary, invite you to help complete the film.  The documentary is in post-production and the final $125,000 is still needed to complete the film. 

Please contact Russ Kirkpatrick, the Producer/Director of the film, if you have questions or would like to make a contribution. Tax deductible contributions can be made to one of two 501(c)(3) organizations associated with the film. 

Contact information: russ@kkp.film

Link to the trailer of Susan’s Story: https://vimeo.com/302739507

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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Lenny the Dementia Friendly Barber

lenny logo 2

Alzheimer’s Speaks Talks with

Lenny White the First 

Dementia Friendly Barber

 

Watch This Uplifting Story Below!

Listen to the Radio Interview Below:

ASR NOV Lenny the DF Barber Graphic

Lori La Bey, host of Alzheimer’s Speaks Radio has a great conversation with Lenny White in Ireland who is the world’s first dementia friendly barber for men that can no longer get to the barber shop. He provides a pop-up service which creates a barber feel for my clients which includes: aroma therapy, a silent disco, a therapy dog and an amazing gathering with other men. Lenny also arranged to give out refurbished dolls for some of the ladies in the senior communities.

Contact Lenny White:

Website:  http://www.lennythedementiafriendlybarber.com/

Facebook:

Lenny the Dementia Friendly Barber

Phone:

07887 359 237

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials


Click Below to Download the Tips



 

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Poem Regarding Dementia: Time Lost

Time Lost

Another Beautiful Poem

Submitted By A Community Member

Time Lost

By Sandy Cannon

A crestfallen look beholds her face

The life of her mind now wrapped up in lace

Bright smiles once captured are now fleeting and few

Her indifference grows stronger, as her prayers fill the pew

Words once spoken fall silent from her lips

Her captor steals her thoughts and robs her of bliss

A world yet to travel with opportunities so vast

Is held hostage by her mind and are now dreams of the past

Loved ones are devoted and keep vigil for her care

Unable to arrest this disease that so dares

Dares to be bold, dares to be brash

And forces us to mourn our loss before the ash

We take solace in knowing that her fear will surrender

To a place deep inside, that she will no longer remember

Let’s find a cure….

My name is Sandy Cannon and I live in St. Louis, MO.  My mother passed away in December, 2017, from dementia.  I am a volunteer for AFTD (The Association for Frontotemporal Degeneration).  I also work with the Alzheimer’s Association in St. Louis.  

Thank you  Sandy for sharing you poem with all of us!

Lori La Bey, Founder of Alzheimer’s Speaks

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips



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