Musical Play – One Daughter’s Story of Life with Her Mother Who Has Dementia
Lori La Bey host of Alzheimer’s Speaks Radio interviews Jonatha Brooke, a highly acclaimed singer/songwriter with 4 major label releases, and 9 CDs on her own label, Bad Dog Records. She has written for film, including Disney’s Peter Pan and Tinkerbell series; TV, including the theme for Joss Whedan’s Dollhouse; and for other artists – Katy Perry, Madeleine Peyroux, Lizz Wright, Joe Sample.
The interview will focus on Jonatha’s 2014, One-Woman Musical, My Mother Has 4 Noses, which played Off Broadway at the Duke Theater. It was a Critic’s picks in the NY Times, and NY Post and ran for 3 months. La Bey has personally seen the show several times, with a variety of friends and associates. Each time, La Bey has been so impressed with the beautiful storyline highlighted through gorgeous music, which allows the audience laugh and cry together, removing the isolation dementia can create.
Whether you are simply fascinated by the wonders of the brain or have a personal story to tell about you or a loved one living with brain disease, we want to hear from you! Your story could inspire others and help raise awareness of the need for more funding for research into cures. Submit a video to the 2018 Neuro Film Festival by March 2.
SUBMIT TODAY
Four Categories…Four Chances to Win!
One Grand Prize winning video from each of the following categories will receive $1,000:
1. “Why I think Neuroscience Is… Cool”—Tell us why the brain is fascinating (for students ages 13-17 only)
2. “Why I think Neuroscience Is… Rewarding”—Tell us how discovery opens doors (for college students, medical school students, neurology residents)
3. “Why I think Neuroscience Is… Essential”—Tell us why research is key (for families, patients, neurologists)
4. “Why I think Neuroscience Is… Critical”—Tell us why advocacy makes an impact (for advocates, neurologists, neurology professionals, government, patient groups, families)
Visit Neurofilmfestival.com to learn more about the contest, get inspiration for topics within each category, and submit your entry today!
UK Network of Dementia Voices (DEEP – used to stand for Dementia Engagement and Empowerment Project) http://dementiavoices.org.uk/
The Dementia Diaries Project – a fabulous site for people living with dementia to leave raw, real and immediate reports of experiences, opinions anecdotes by simple phone message. It’s proving to be a fantastic medium and is so simple. Over Twitter we recruit volunteers to transcribe entries and do some ourselves. Have a look at: https://dementiadiaries.org/
Three Board Certified Music Therapists join us to discuss
their new book “Music, Memory and Meaning.”
Tuesday, December 19th at 2pm EST, 1pm CST,12pm MST,11am PST and 7pm London
Dementia – Music, Memory and Meaning
Our radio host, Lori La Bey of Alzheimer’s Speaks will be interviewing three board certified music therapists: Tara Jenkins, Meredith Hamons and Cathy Befi-Hensel; who are the authors of the new amazing book “Music, Memory and Meaning.”
Join the conversation by calling in (323) 870-4602, or use the chat box to talk with us.
If you have questions, feedback, or would like to stay connected with “Music, Memory, and Meaning” and our upcoming events connect with us on Facebook.
If you are local to the Austin, TX area and are interested in music therapy services contact us.
I can’t put into words how humbled and honored I am to be named one of fourteen people, picked by Oprah and her team as a 2018, “Health Hero.” Being mentioned twice in one year in the “O” magazine is just down right amazing.
2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London
Today, Lori La Bey host of Alzheimer’s Speaks Radio will be talking with Certified Music Therapist and Licensed Creative Arts Therapist, Cristina Britton Conroy who is the founder and Executive Director of Music Gives Life. As a former senior center director, nursing home music therapist, and primary caregiver for two elderly family members, Christina has unique insights into the joys and frustrations shared by geriatric patients and their care partners. Join in and hear all of her wonderful tips to engage in a fun way with loved ones and those we care for.
Arthur’s Residential Care has sponsored and supported the Memory Cafe Concept from the beginning I brought it to the United States. The minute I suggested they become involved in launching one they jumped with both feet in the water and have never looked back. ACR not only graciously gave us space for meetings, but provided treats and additional facilitators as our one group expanded to three. They have been so progressive in staff dementia training and creating moments of joy for both their residents and their families; which I must admit brings a smile to my face and a warmth to my heat every time. I am so blessed to witness their work. Kudos Arthur’s Residential Care!
We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!
Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com
Click Below to Download the Tips
Take The Survey Now and Help Define
What “Quality” Means to You and Your Family!
Open To All In The U.S.
University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.
Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!
Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.
Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:
How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
How involved caregivers want to be their loved ones’ healthcare.
Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.
Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner
Beth Tofel, Co-Founder Footprint ID will join Lori La Bey host of Alzheimer’s Speaks Radio this Thursday to discuss how her company makes medical records accessible and easy to access. As part of the “sandwich generation”, nestled between caring for her own children, and participating in managing the medical and health conditions of her aging parents, she understands the benefits of health information and medical history at your fingertips, at all stages of life.
We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!
“This is an amazing book which brings a holistic approach to engaging those with dementia and their care partners. I love how Maria intertwines the simple yet creative works of coloring which has been embraced by so many people looking for a peacefulness within and now has created a product specifically designed for those living with dementia.”
Throughout my life my Dad was a very special man, not just to our family but so many. The stories friends would tell me later in life about how my Dad made them feel part of our family when they felt lost and alone in their own family.
My Dad allowed us all to dream, supporting us to go after our goals, never doubting our capabilities.
Dad was quick with a smile and a joke.
He was always there to help a friend or stranger.
He cared for my Mother with dementia and lead by example.
Dad had strong family values to the end.
I so miss my Father, but yet the lessons he taught through kindness will forever be with me.
May ever child have a man like my Father in their life.
We must all respect and know deep in our hearts being a Father just like being a Mother; isn’t just a biological thing.
Being a Father is about being a good person in heart and soul.
We all need good Father role models at all ages and stages of life.
So with great love and deep appreciation I say,
“Happy Father’s Day” to all the wonderful men out there.
Alzheimer's Speaks believes working together and sharing knowledge is the best way to win the battle against this disease. Please explore the site and share your thoughts.
