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Archive for the ‘Alzheimer’s Community’ Category

Housing Designs Options: Pros, Cons & the Future

Housing Designs Options: 

Pros, Cons & the Future

Lisa Cini on Alzheimer’s Speaks Radio

Thursday October 19th, 2017

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Thursday October 17th, 2017, Alzheimer’s Speaks Radio Host Lori La Bey will speak with Lisa Cini who is an award-winning, internationally-recognized senior living designer with more than 25 years’ experience.  Join us for an informative conversation on housing options and the impact they have on individuals and families.

Contact Lisa Cini

www.lisamcini.com

Facebook – Lisa M. Cini

Instagram  – lisacini  

Linkedin – Lisa M Cini

We Set Sail In 3 Weeks

Join Us!

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Learn What the City of Roseville, MN

to be Dementia Friendly

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

Contact Lori La Bey to Host the Dementia Film

“His Neighbor Phil”

 

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Making Caregiving Less Disruptive

Making Caregiving Less Disruptive

Alzheimer’s Speaks Radio

with Liz O’Donnell

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Tuesday October 17th, 2017, Alzheimer’s Speaks Radio Host Lori La Bey will speak with Liz O’Donnell the author of Mogul, Mom & Maid: The Balancing Act of the Modern Woman.  Her book picks up where other business books leave off. Liz will discuss the impact caregiving can have on women, their careers and ways businesses can support those trying to balance both. Her website WorkingDaughter.com supports women who are balancing caring for an aging parent and their career. Liz is the founder of Rent-A-Sister, a company that provides support services to family caregivers. Join us for an interesting conversation and learn how to make caregiving less disruptive in your life.

Liz O’Donnell can be reached:

Blog WorkingDaughter.com

Phone:  617-433-8003

Twitter:  @LizOD

We Set Sail In 3 Weeks

Join Us!

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Learn What the City of Roseville, MN

to be Dementia Friendly

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

Host the Dementia Film “His Neighbor Phil”

 

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Do Experts & Care Partners Really Know What A Person With Dementia Wants?

 Dementia Chats Video –

Do Experts & Care Partners Really Know What A Person With Dementia Wants?

Welcome To Dementia Chats.
Where voices of those diagnosed with dementia are heard.

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates. Our Experts are those diagnosed with dementia.

We have been doing this series since July of 2012, – See more here

In this video our experts living with dementia discuss their thoughts on the advise and decision making process of “Dementia Experts & Care Partners”

I think you will be surprised and interested in the insights offered by our Experts Living With Dementia:

Michael Ellenbogen
Bob Savage
Mary Howard
Harry Urban
Mary Radnofsky

I want to give a big Thank you to our Experts living with dementia for taking the time to share their perceptions, thoughts, wants and needs with us.

Brought To You By Lori La Bey, Founder of

www.AlzheimersSpeaks.com

www.alzheimersspeaks.com/dementia-chats-webinar

Facilitated By
Lori La Bey

Co Facilitated By
Eilon Caspi, Ph.D., Gerontologist and Dementia Behavior Specialist

http://dementiabehaviorconsulting.com

http://eiloncaspiabbr.tumblr.com

We Set Sail In 1 Month

Join Us!

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Learn What the City of Roseville, MN

to be Dementia Friendly

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

 

Read Full Post »

Tips to Living with and Working with Dementia in a Dignified Manor

Alzheimer’s Speaks Radio with

Cindy Bock – Dignified Dementia Coach

Oct 10th – 2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Cindy Bock, Dignified Dementia Coach is a nationally certified therapeutic recreation specialist, healthcare speaker, educator, trainer and dementia specialist for over 25 years. She demonstrates exemplary compassion and understanding of the cognitive and behavioral challenges of the aging process, especially those with dementia. Cindy utilizes a dignified approach to strengthen each individual’s remaining cognitive and physical abilities through structured wellness programs, to maintain their highest level of functioning.  Join us for a great conversation.

Call in with your questions or comments as we talk live. 323-870-4602

Follow The Radio Show

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Learn What the City of Roseville, MN

to be Dementia Friendly

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

 

Read Full Post »

One City Shares How & Why It Became Dementia Friendly

Roseville, Minnesota

Works Hard at Be Dementia Friendly

The Roseville Alzheimer’s and Dementia Community Action Team    (Rsvl A/D) has accomplished a lot since it launched in September of 2013.

  • They have partnered with the city of Roseville, MN who has dedicated a page on their official website to the Rsvl A/D efforts, which is believed to be the first of it’s kind int he county.
  • They have been providing regular free and highly attended speakers series called Caring and Coping which provides education to the public.
  • They have partnered with the Ramsey County Libraries, who now host events, have developed a kit for families dealing with dementia called Memory Minders and who will be rolling out a Memory Cafe to boot!
  • They pull together and disseminate educational and events in the community.
  • They have a list of various types of support groups for those diagnosed, their care partners and those both can attend together.
  • They post activities such as arts, music, dance, exercise, outings, memory cafés, social opportunities… for care partners and individuals diagnosed with dementia.
  • Developed a Caregiver Survey in conjunction with the University of Minnesota
  • Developed a new initiative called Dementia Caregiver Re-Entry program, for former caregivers and current care partners nearing the end of their journey. these groups offer an opportunity to move forward in life.  Partnerships with the School 623 District and the New Life Presbyterian Church made it possible to offer this program.
  • Offering a variety of resources for caregivers and those diagnosed like: Advance Care Planning, Caregiver Coaching, Support Groups, Activities for People with Memory Loss and Their Caregivers, Respite & Adult Day Services, Research Opportunities, Grief Support, Safety Tips,  Travel Documents and Procedures, Shared Resource Tools and Social Work Assistance.

As a national speaker, media outlet and member of this group, Lori La Bey is honored to share this information with individuals and organizations not just in our country but around the world.

Below are videos from:

  • The City Manager of Roseville, MN
  • A Lieutenant for the Roseville Police Department in MN
  • The Battalion Chief of the Roseville Fire Department in MN
  • The Branch Manager of the Shoreview Library, part of the Ramsey County Library system in MN
  • The Coordinator for the Roseville Area Senior Program which is part of the 622 School District in MN

Each of the above have joined the Roseville Alzheimer’s and Dementia Community Action Team to improve the cities dementia care culture.

Watch and listen to their thoughts on why it’s important to become part of the Dementia Friendly Movement.

snap-of-lt-erika-scheider.jpg

Hear from Families the Impact Roseville Has Had On Them

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Dementia: Two Different Perspectives

Dementia:

Two Different Perspectives

These poems work in response to each other, one being from the perspective of my grandmother who died from complications with Alzheimer’s in 2011 and one being from my perspective seeing her at the nursing home.

“(Un)Familiar”

by Allison Budaj 

What is this place I cannot seem to leave?

Exit near, the flight I cannot achieve.

When did I get here? From where did I come?

Hard to recall in this ceaseless doldrums.

Who are these confined people all around?

Their fate like mine to this place ever bound.

Who is this girl by me in this bleak place?

A very calming, familiar sweet face.

Who is this child holding my hand in hers?

Seems so kind but her name I am unsure.

I do not know this girl they call my kin.

Her gaze fixed as tears glide around her chin.

Why do I not have a thought of her name?

May never know but love her all the same.

 

“(Un)Recognizable”

by Allison Budaj

Not my Nina, the woman before me,

Head hanging low without much joy or glee.

Not my Nina, laughing in days gone by,

Body broke from memory gone awry.

A hollow shell of the person I knew,

Her gaunt eyes still a radiating hue.

She looks up at me with a puzzled stare,

Her mind trying to guess me standing there.

As if she knows, her scowl curls to a smile,

Eyes burst into tears, been such a long while.

With this beaming grin years melt from her face,

How could we leave you in such a bleak place?

Mom says it’s best, she is beyond our care,

Turning to leave with heartbreak, I can’t bear.

Follow The Radio ShowDementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

Push Research Forward.

Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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Stop Asking How Her Day Was

Stop Asking How Her Day Was

by Jennifer L. FitzPatrick

“How was your day, Mom?”  “What did you have for lunch, Uncle Jim?”  When a loved one with a dementia diagnosis resides in a nursing home or an assisted living community, caregivers often struggle during their visits. Well-meaning caregivers typically attempt to have a regular conversation with their older loved one, forgetting that this person no longer has the ability to reason or to control impulses, and often will not even remember who the visitor is.  This person with dementia also often misunderstands questions or is unable to articulate answers that make sense to the caregiver. Boredom and frustration result for both the caregiver and the person with dementia.

It’s essential for caregivers to embrace new ways of socializing during a nursing home or assisted living visit. Some television is fine, particularly if it is a show or movie that is in the patient’s long-term memory (think Gone with the Wind or Lawrence of Arabia for someone in their eighties or nineties). But to truly connect and engage the person with dementia, caregivers should embrace activity instead of conversation.

Many persons with advanced dementia, whether male or female, tend to most appreciate interaction and visits with others that are what I would call “dude-like.” While certainly not true of all boys and men, the vast majority of males in our society do not necessarily need to talk to each other to enjoy each other’s company. A woman often doesn’t get it when her husband goes to a baseball game with a buddy, and they never talk about that buddy’s impending divorce. The two men simply enjoy watching the baseball game together, and that is the way her husband is there for his buddy. Extensive conversation is not always necessary, nor is it always welcome. When trying to connect with your older loved one who has dementia, try to think of two dudes hanging out—no matter the gender of either party.

Often you are going to have the most satisfying experience with loved ones who have dementia when you do an activity with them rather than initiate a discussion. While persons with dementia may not be able to speak, they still might be able to sing. Music penetrates the long-term memory, and many persons with dementia can sing along, tap their feet, or even dance to an old favorite tune. (Think the Temptations’ “My Girl” or The Rolling stones’ “You Can’t Always get What You Want” for patients in their sixties or seventies.)

Try some art activities. If your older loved one knitted before she was diagnosed, maybe she still can. She also may be able to paint, draw or garden. If your older loved one enjoys animals, bring your dog to her nursing home or assisted living and let her pet Rover.  Go out for a walk and look at the fall foliage or enjoy the beautiful sunset together. Give Mom a manicure, massage her back or just hold her hand.  Listen to talk radio.  This can be a super activity for those older than 70 as listening to radio shows will be familiar in the long term memory. Sometimes just sitting together without the pressure of having to come up with questions or discussion topics can be very relaxing for you both.  It takes some getting used to, but eventually you will be more comfortable with silence.

Obviously there will be trial and error to see which activities your loved one responds to most favorably.  But typically an activity or spending quiet time together is going to be more satisfying for both of you than asking her how her day was.

Thanks for reading this excerpt of Cruising Through Caregiving: Reducing The Stress of Caring For Your Loved One by Jennifer L. FitzPatrick, MSW, LCSW-C, CSP!  The founder of Jenerations Health Education,  Jennifer is also an instructor at Johns Hopkins University’s Certificate on Aging program and has been an Education Consultant to the Alzheimer’s Association of Greater Maryland for a decade.  You can reach her at www.jenniferfitzpatrick.com.   To purchase Cruising Through Caregiving

 

Click Below & Follow The Radio ShowDementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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