Archive for the ‘Advocate on Steroids for Caregiving’ Category

Town Makes Dementia Movie “His Neighbor Phil”

mara_botonis_cropMara Botonis wrote a beautiful article about the back story of creating the new dementia film “His Neighbor Phil.”

Here is a quote from the article by Pam Potter Langley:

“A beautiful aftermath of this was that even now, a year after the crew had gone, I don’t think there’s been a day that goes by when someone doesn’t stop me in our community with a reflection on what the movie taught them and how it and helped us all with the changes that we find occurring in our own families and relationships.”

If you are interested in how true collaboration works and how to get people to pull together, well than you need to read this article!  Just click on the link below.

Loving Town Makes Dementia Movie “His Neighbor Phil” Possible

Mara botonis High Res Version of Front Cover (2)

For information on Mara’s bet selling book “When Caring Takes Courage” please Click Here.  You will find this is three books in one jammed packed full of useful information you can apply instantly.

Click Below to watch a teaser of the film.

Lori La Bey, Founder of Alzheimer’s Speaks, Professional Speaker and Platinum Sponsor of the film would love to share this film with your community, staff or next conference.  Click Here to contact Lori

Go to the Official His Neighbor Phil website to

see what others are saying about the film


Click Below For More Information On Dementia And Caregiving

alz_spks_programs_graphic_w_HNP_082115Join an Alzheimer’s disease clinical trial today.

Alz Team New home page blog banner 10327_Banner_L_475x358 090215

No insurance is needed to participate.

PA-Join-Us R

Read Full Post »

Alzheimer’s Speaks Radio Talks With Donjia Gale

Alzheimer’s Speaks Radio

Live 2pm EST, 1pm CST, 12pm MST, 11am PST and 8pm London

090815 ASR Donjia GaleDonjia Gale, will talk to us about the WBN and the role they would like to play in shifting our dementia care culture.

WBN ~  A division of the Colorado Broadcasting Company USA, Chairman and Founder,  Ray K. Coleman.

Facebook ~ WBNGLOBAL

Clinical Trials – Check It Out And Make A Difference

Alz Team New home page blog banner 10327_Banner_L_475x358 090215

For Resources On Dementia & Caregiving


New Film On Dementia and Caregiving


Dementia Chats™ FREE Webinar

Where Those Living With Dementia Are The Experts

Copy of DC_HQ_062714_solidyellow1

Read Full Post »

Join Dementia Chats Tuesday Morning 11am EST, 10am CST, 9am MST, 8am PST and 4pm London

Join Dementia Chats

Copy of DC_HQ_062714_solidyellow1Tuesday Morning

11am EST, 10am CST, 9am MST, 8am PST and 4pm London

Join our community tomorrow where you can bring your questions and ask our experts diagnosed and living with dementia.  We have great conversations and a lot of fun.  Each session is non scripted as we try to meet our audiences needs.  If you have a topic you would like to discuss, just let us know.

Click Here To Enter The FREE Webinar

“Even though I dealt with my Mother’s dementia for 30 years, I’m amazed at the profound insights our experts share.”  Lori La Bey, founder of Alzheimer’s Speaks and Dementia Chats™

Listen To Alzheimer’s Speaks Radio

Tuesday’s at 2pm EST, 1pm CST, 12pm MST, 11am PST and 8pm London Time


Clinical Trials – Check It Out And Make A Difference

Alz Team New home page blog banner 10327_Banner_L_475x358 090215

For Resources On Dementia & Caregiving


New Film On Dementia and Caregiving


Read Full Post »

Minnesota State Fair – Memory Screenings & Talking Dementia Friendly Communities

Memory Screenings & Talking Dementia Friendly Communities

Minnesota State Fair 

090315_ASR_health_star_state_fair2Click Above To Listen

alz_spks_programs_graphic_w_HNP_082115Click Above For More Resources

New home page blog banner 10327_Banner_L_475x358 090215Click Above To Change Lives

HNP_final_poster_jpgClick Above To Watch Trailer

PA-Join-Us  RClick Above To Join the Cause

Read Full Post »

Alzheimer’s Disease – Like The Heart Of An Onion

Alzheimer’s Disease – Like The Heart Of An Onion

onionBy Lori La Bey found of Alzheimer’s Speaks

This is a story I wrote about a visit with my Mother with Alzheimer’s years ago.

She is now passed and I do miss her so.

mom pic in the heart of the onionI went to visit my Mother today at Maplewood Care Center, her nursing home.  It’s hard to believe she has been there since 2001, and that she asked to move into the nursing home.  Who would have thought?  Surely not me, Mom was always going to live with us. Nine years in the nursing home has been an incredible journey of friendship, love, and awakening.    Never in my wildest dreams would I have imagined my Mother’s path would change my career and my way of life, but it did and I can’t thank her enough for what she has taught me through her illness.

mcdonalds hot fudge sundaeToday when I went to visit Mom it was just prior to supper time.  I decided to pick up a Hot Fudge Sundae from Mc Donald’s for her anyways.  She loves her Sundaes from McDonald’s chipped teeth and all.  As I scooped the ice cream with the black plastic spoon that came with the sundae, I was anticipating Mom’s smile once her lips felt the cold.  Instead, Mom’s lips popped open and closed around the spoon.  I gently pulled the spoon out from the lips that trapped it as the ice cream melted in her mouth.  My wrist soon turned to scoop another serving of hot fudge, and I saw Mom winkle her face like crisp dollar bill being scrunched in a powerful hand.   Today It was evident the cold was causing her pain, yet she wanted more.  I guess the fudge out weighted the pain, for today anyways.

After dessert was gone we went onto the main course.  Chow mien, peas and carrots, a whipped fruit salad, all per aide.  The baby food texture does nothing for my pallet, but it works well for Mom and she doesn’t seem to mine.  Who am I to complain anyways, especially when I know she can’t chew with her dilapidated teeth.  As I chatted with Mom and the staff I noticed one of my favorite people was missing from the dining room.

“Where’s  Lillian?” I asked.

“Oh she passed about two weeks ago.” One of the staff said in a soft compassionate voice.  My heart sunk to my toes.  I hadn’t seen Lillian in the past month between being out of town and visiting Mom later at night when she was in her room.  I felt horrible I hadn’t looked for Lillian when I was there.  My mind raced knowing there was no way of going back in time. I will miss Lillian, she made my heart smile.let_my_heart_smile_through_my_eyes_quoteLillian had befriended my Mother, watching and checking up on her throughout the years.  When I would come to visit Mom, Lillian would scurry over, grab my hand, look deep into my eyes, and share stories with me. Her soft loving smile positioned on her aged and wrinkled face was one of my favorite things to see.  Some days Lillian would sit and visit with Mom and me, other times she thought I was her daughter.  On these occasions she would grab my hand, lead me off to a private setting where we could sit next to each other holding hands and sharing stories uninterrupted.  Lillian’s crystal blue eyes could calm a tornado and her soft smile framed a strong and amazing woman who was a gift to know.  It was just in the last year Lillian started to fail physically losing her balance; needing a walker; which many times she would forget was hers.  Lillian was the elder, the wise one on the floor loving and caring for those around her until the day she died. If I’m not mistaken, she recently turned 104 years old.  I would have loved to have met her family, but it’s not likely now.  I will miss her beautiful crystal blues eyes, her soft fail hands that would reach for mine, and her compassionate voice like that of an angel.

Losing Lillian has made me realize, Mom could go any time.  Mentally, I’ve known this, but the loss of Lillian made the thought sink into every pour of my being.  One day, there may be no reason to go to the nursing home.  Mom will not be waiting for me.  She will not surprise me with subtle facial expressions, or a goofy comment, or a little giggle that lightens my spirit.  What in the world will I do when the time comes for Mom to pass?

I know many think I should be relieved as I am released from this “Caregiver Role.”  They view this journey I’ve been on with my Mother as a burden.  But truth be told, I will deeply miss her.  I will miss that shell of a body that is all many people see.  For me there is so much more to Mom than her shell.  I guess I see Alzheimer’s disease like peeling an onion.  There are many layers and like the heart of the onion the soul of a person is always in the middle and never dies first.

For More Information on Dementia and Caregiving Click Below.

alz_spks_programs_graphic_w_HNP_082115Join an Alzheimer’s disease Clinical Trial Today. Click Below.

New home page blog banner 10327_Banner_L_475x358 090215No Insurance is Needed to Participate.

Join the Global Effort To Raise Awareness of Dementia. Click Below.

PA-Join-Us R

Read Full Post »

Reverse Mortgages, Resources and Free Symposium To Help Those Dealing With Dementia

Alzheimer’s Speaks Radio Today Discusses:

Reverse Mortgages, Resources

and Free Symposium

To Help Those Dealing With Dementia


Click Above To Join Us!

We go live at:

2pm EST, 1pm CST, 12pm MST, 11am PST and 8 pm London time!

Beth Paterson-Photo1Beth Paterson will talk to us about reverse mortgages – what they are, how they work and how they can help those dealing with dementia.  In additional she will share information about her Savvy Senior Sources and her new TV show.

Beth Paterson1SIDAC Logo-Full


Contact Beth at:

Beth Paterson, CRMP (Certified Reverse Mortgage Specialist

651-762-9648    www.RMSIDAC.com     www.SavvySeniorSources.com

Mara Botonis and Donna True will join us to talk about the FREE Treasure Coast Symposium which will provide hope for the living with dementia.

2015 symposium flier Alz FL

To Register for the event Click Here  or call 800-272-3900 extension 501

Mara botonis High Res Version of Front Cover (2)To reach Mara Botonis

Check out her Website

To get her book when Caring Takes Courage Click Here



For more information on Dementia and Caregiving Visit



Read Full Post »

Free Treasure Coast Symposium provides information, hope for dementia caregivers

Free Treasure Coast Symposium

provides information,

hope for dementia caregivers

lori_with_radio Lori La Bey Host of Alzheimer’s Speaks Radio

Lori La Bey is a nationally-known speaker for Alzheimer’s. She is the founder of the Alzheimer’s Speaks, and her mission is to bring hope into a normally hopeless situation.

You have a chance to hear La Bey speak in the Treasure Coast at the Alzheimer’s Association, Southeast Florida Chapter’s 2015 Caregivers Symposium on Friday Sept. 18. The full-day event features La Bey as the keynote speaker. La Bey, who was a caregiver for her mother, will talk about how life can still be wonderful after a loved one is diagnosed with Alzheimer’s or another dementia.

“There are so many hidden treasures in dementia. It can bring peace and joy,” La Bey said. “I want them to leave with the feeling that they are not alone.”

The educational Symposium will be held on Sept. 18 at the Charles and Rae Kane Center Council on Aging of Martin County, 900 SE Salerno Road, in Stuart. Registration will be from 8:30 to 9 a.m., and the conference will be from 9 a.m. to 2:30 p.m.


In addition to the symposium, on Thursday, Sept. 17, there will be an exclusive showing of “His Neighbor Phil.” The movie is an emotional family drama about Alzheimer’s disease, which shows the real struggles and joys of caring for a loved one with dementia. La Bey will be the host at the free showing set for 1:30 p.m. at the Grace Place located on Salerno Road in Stuart. There will be a talk back session with the audience after the film to discuss its impact. The film just had its debut in Minnesota and received amazing reviews.

mara_botonis_crop Mara Botonis,

2015 Jefferson Award recipient

                                     Mara botonis High Res Version of Front Cover (2) Check Mara’s  Terrific Book!

The two other speakers at the Friday symposium will be Mara Botonis, author of “When Caring Takes Courage: A Guide for Alzheimer’s Caregivers” and a 2015 Jefferson Award recipient; and Dottie Carson, a younger onset Alzheimer’s advocate who will share her own personal journey.

The free events are geared toward dementia caregivers or someone seeking more information about memory loss disorders.

Breakfast and lunch will be provided at the Symposium, and respite is available upon request.

Please RSVP to the movie and symposium

online at http://tiny.cc/issa2x or 

call Donna True at 1-800-272-3900, extension 501

This event is made possible through the Lillian Becky Brockmann Trust.

alz assoc fl logo

About the Alzheimer’s Association

The association’s mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Its vision is a world without Alzheimer’s.

The Southeast Florida chapter serves Okeechobee, St. Lucie, Martin, Palm Beach, Broward, Miami-Dade and Monroe counties. The chapter advances efforts for researching a cure through fundraising with its signature event Walk to End Alzheimer’s, and provides support and educational services to more than 150,000 persons with Alzheimer’s disease and their families and caregivers locally. For more information, please visit www.alz.org/seflorida.

Watch a Teaser for His Neighbor Phil

Click Below

HNP_final_poster_jpgJoin the Purple Angel Project – It’s Free

Click Below

PA-Join-Us R

For additional resources for dementia and caregiving

Click Below

alz_spks_programs_graphic_w_HNP_082115See if a clinical Trail is right for you

Click Below

AlzTeam Banner-475x358 - Copy

Read Full Post »

« Newer Posts - Older Posts »


Get every new post delivered to your Inbox.

Join 3,366 other followers

%d bloggers like this: