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Archive for the ‘Advocate on Steroids for Caregiving’ Category

Grass roots movements, come and go – but The Purple Angel campaign shows no signs of slowing down

Grass roots movements, come and go –

but The Purple Angel campaign shows no signs of slowing down. 

purple_angel_kickstarterClick Above

The purpose of the campaign is to see the Purple Angel logo, adopted as the worldwide symbol for dementia awareness. Enabling those living with dementia and their families, to feel confident when seeing the symbol displayed in any shop, business or organization, that they are dementia aware.

This unique dementia awareness campaign was started as a result of one man’s vision, Norman (affectionately known as Norrms) McNamara, who was diagnosed with dementia in his early 50s.

A documentary is currently being shot about this incredible story;

“The film is being made in memory and recognition of all those who’ve lived and are living with dementia” says Producer, Laurence Kelly, “it will be the first time a documentary will show a dementia initiative across such a global scale.

By filming in the United States, we will be able to see how the work of all the Purple Angel Ambassadors has impacted on the success of the campaign”

The USA side of the story will also highlighting the work of Purple Angel Ambassador Gary La Blanc who amongst other achievements persuaded a major USA hospital to adopt the logo and Purple Angel ethos and Lori La Bey who through her blog, radio and website following has used the power of the written and spoken word to gather support.

This footage and more will highlight the positive effect of what has been achieved both sides of the pond.

Norman McNamara creator of the campaign said “Please share this campaign and the link.  if I can do this living with dementia, imagine just how much we can do together!”

You can view the trailer through the link above; you can pledge your support and in return add your loved ones name to the memory wall in the credits list.

“Perhaps Britain’s greatest export at the moment are our community values” says Kelly, “you can be part of the team making this happen – showing how these values have crossed the Oceans and this is surely just the beginning”

As an Individual, community or business you can get involved today. 

Just click below to learn more about the US movement.

PA_join_the_cause_snap_w_url

For more information on Dementia and Caregiving

Check out Alzheimer’s Speaks Below

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You could make a difference for your loved one with Alzheimer’s.

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The Power Of One Expands To Many – Meet Several Individuals Shifting Our Dementia Care

What A Great Article by Paula Spencer Scott in the Parade

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The Power Of One Expands To Many

Meet Several Individuals Shifting Our Dementia Care

I love seeing media that shows the power of one.  The passion to make a difference and the ripple effect it makes.  In the article above you will hear about Dementia Friendly Cities, Wristbands changing hospital protocol, senior-centered disaster preparedness, the magic of music and memories, a Librarian who started story-power hour,  dancing and dementia, an app with personalized images and prompts, the never-ending class, Memory/Alzheimer’s Cafes, and the worlds largest support group. Enjoy the article!  I did.

Don’t forget to check out Paula Spencer Scott’s book below

paula scottSurvivingAlzCOVERUse Your Power of One – Join The Purple Angel Project

Click Below

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For more information on Dementia and Caregiving

Click Below

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You could make a difference for your loved one with Alzheimer’s.

Visit the website below today.

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Are You Close To Malvern, PA? If So, Buy Your Tickets Before They Are Sold Out!

 A Beautiful Play on Dementia and Caregiving

“My Mother Has Four Noses”

jonatha my mother 4 noses june 2015 showClick Above To Purchase Your Tickets Today

lori_with_radio“This is an incredible opportunity to see a heart wrenching and heart warming play about a daughters journey with her mother who has dementia.  The music alone is worth going to the play for, but the story will stay with you and you’ll want to come back to see it again with a friend.  I’ve seen it four times!  Each time, the play touches me differently, yet profoundly.”                                        ~  Lori La Bey found of Alzheimer’s Speaks

Acclaimed singer/songwriter Jonatha Brooke “rocks it” (The New Yorker) in this touching mother-daughter love story. Brooke shares her experience caring for her eccentric and ailing mother, weaving 10 new songs through stories of their final two years together. Don’t miss this one-woman play The New York Times raves is “poignantly funny, beautifully created.”

“An affectionate, well-crafted, surprisingly funny new musical.” (New York Post)

“Immensely relatable. Gorgeously arranged.” (TIME OUT/Critic’s Pick)
Tickets start at $27. Premium tickets can be purchased for $65 (weekday) and $75 (weekend) and include priority seating and a signed CD of My Mother Has 4 Noses.

For More Resources on Dementia And Caregiving Click Below

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Help Push Research Forward – Join A Clinical Trial

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No insurance is needed to participate.

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Calling all People Diagnosed with Dementia and Their Caregivers

Calling All People Diagnosed With Dementia

And Their Caregivers

Take A Survey

A Few Minutes Of Your Time

Could Impact Those Dealing With Dementia For A Lifetime

Click Below For Details 

There is a separate survey for those with dementia and those caring for them.  Your response is critical to help Dementia Action Alliance serve you and meet your needs.  Thank you for your assistance in advance.

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For more information on dementia and caregiving

Click Below

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Join the Purple Angel Project

Click Below

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Creating Dementia Friendly Communities – The Purple Cities Initiative

Creating Dementia Friendly Communities

061515 Dementia Friendly citieis Purple Angle CitiesJoin Alzheimer’s Speaks Radio to Learn About

The Purple Cities Initiative

Tuesday June 16th, 2015

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

Come and join us for a fabulous conversation on creating Dementia Communities.  Kathy Broggy will be our guest and has been the lead on developing the Purple Cities Alliance in Tennessee.  Check out all they are doing!  www.purplecities.org              Phone: 865 219-6968 Alzheimer’s Speaks Radio is proud to raise all voices regarding dementia.  If you have an opinion we would love to hear it.  Call in and join the conversation or use your chat box to communicate with us.  If you think you should be a guest contact Lori La Bey.

Check out Alzheimer’s Speaks for Dementia and Caregiving

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Join an Alzheimer’s disease clinical trial today.

Click Below

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Join the Purple Angel Project

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5 Great Books On Dementia You Don’t Want To Miss

5 Great Books

On Dementia You Don’t Want To Miss

5 book graphicLearn More – Click Above

Celebrate

Alzheimer’s Awareness Month

AlzTeam Banner-475x358 - CopyJoin an Alzheimer’s disease clinical trial today. Click Above

No insurance is needed to participate

alzsnap_serv_072413Click Above For More Resources And Information On Dementia

 

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Alzheimer’s No Cure, Yet Ways To Help

Alzheimer’s No Cure, Yet Ways To Help

Caregivers for someone with Alzheimer’s disease are all too familiar with the current landscape: there are lots of ways to provide good care, but there is no cure. Current cognitive enhancing medications on the market – used alone or in combination – may stabilize or even modestly improve symptoms for a period of time, but they do not slow the course of the disease.

Given this reality, is there hope for something better?

Fortunately, the rapid pace of research on Alzheimer’s disease has yielded some potentially exciting developments. A new form of brain scan utilizing Positron Emission Tomography or PET scans combined with special intravenous dyes can identify the telltale presence of beta-amyloid protein – believed to be a key cause of Alzheimer’s – in early stages of the disease. This development came through clinical trials and now enables researchers to have a more certain diagnosis when testing potential new treatments. Immunotherapy trials, which aim to boost the immune system to rid the brain of beta-amyloid protein, appear to be able to modestly slow down the course of the disease according to preliminary data. Combined with early diagnosis, such research might be able to make a meaningful difference in the course of this otherwise progressive disease. These and other clinical trials examining potential investigational treatments for Alzheimer’s disease are available in many community hospitals, memory centers, outpatient offices and academic centers. They are all strictly regulated by the Food and Drug Administration in order to provide proper consenting and other safeguards for research subjects. Caregivers can learn more about trials through the TrialMatch website sponsored by the Alzheimer’s Association, the website www.clinicaltrials.gov, www.dontforgetalzheimers.com and other internet resources. There should never be a fee or bill for participating in a trial; on the contrary, most studies pay a small stipend to cover transportation and other costs. The process of informed consent is designed to explain the details of the study including potential risks and benefits and compensation. Subjects do not give up any rights by participating in a study, and can withdraw at any time.

Advice To Caregivers

As the director of both a memory center and a clinical trials program, I would offer the following advice to caregivers. Be certain that you and the subject (to their ability) fully understand the purpose of the study, its length, what’s involved, and the potential risks and benefits before signing the informed consent form. By being part of a trial you should have 24 – 7 access to research staff, especially the principal investigator who is typically a board-certified physician. Take time to review the form, ask questions and involve your primary care physician in the process. Make certain that your children or other close family members know about the study and are in agreement so as to avoid any conflict. Be certain to look into all of the possible studies in your area, since there may be several dozen being offered at any given time. It’s also important to understand that most trials are double-blind, meaning that the subject may get the real treatment or a placebo (or fake treatment) and neither you nor the investigator will know which one. In addition, you will not be able to find out which treatment was given until the very end of the study for all subjects, so as not to contaminate the data. Many studies do, however, have what is known as an “open-label” phase after the initial part of the study in which the subject will get the actual treatment. Be certain to ask if that is a possibility. There is never a guarantee of personal benefit from being part of a study, but ultimately there is no other way to even have the chance of slowing Alzheimer’s disease, both for the subject and for others. Without people participating in studies, there will never be any cure – which would be a tragedy for this late-life scourge which only increases in size and scope as our population ages.

Marc Agronin, MD (2015)

Marc E. Agronin, MD Vice President for Behavioral Health and Clinical Research, Miami Jewish Health Systems, Miami, FL Affiliate Associate Professor of Psychiatry and Neurology, University of Miami Miller School of Medicine

Author of:

Marc E. Agronin, MDAlzheimer’s Disease and Other Dementias, A Practical Guide, 3rd Edition

“Alzheimer’s Disease and Other Dementias, A Practical Guide, 3rd

Edition,” Click on Book Cover To Purchase

Marc E. Agronin, MD  How We Age A Doctor’s Journey into the Heart of Growing Old

The nationally acclaimed “How We Age: A Doctor’s Journey into the Heart of Growing Old,”  Click on Book Cover To Purchase

Marc E Agronin MD The Dementia Caregiver Caring for Someone with

And the forthcoming “The Dementia Caregiver: Caring for Someone with Alzheimer’s Disease and Other Neurocognitive Disorders.”  Click on Book Cover To Purchase

 You could make a difference for your loved one with Alzheimer’s.

AlzTeam Banner-475x358 - CopyVisit our website today.

Become A Purple Angel!

PA_join_the_cause_snap_w_urlFor More Information On Dementia and Caregiving

Click Below

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