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Archive for the ‘Advocate on Steroids for Caregiving’ Category

Caregiver Symposium – Fort Wayne & Merrillville, Indiana

Caregiver Symposium –

Fort Wayne & Merrillville, Indiana

Come Meet Lori La Bey of Alzheimer’s Speaks

at Both Conferences Oct 19t & 20th, 2016

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Click Below to Register

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    merrillville

Additional Resources

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Norrm’s McNamara Talks with Conscious Caring Resources on Dementia

Norrm’s McNamara Live with

Conscious Caring Resources on Dementia

Tuesday, Sept 6th, 2016 at

11am EST, 10am CST, 9am MST,8am PST and 4pm London Time

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Join Us Live By Clicking The link Below: 

https://zoom.us/j/819558234

Or iPhone one-tap (US Toll):  +14086380968,819558234# or +16465588656,819558234#

Or Telephone:
Dial: +1 408 638 0968 (US Toll) or +1 646 558 8656 (US Toll)
Meeting ID: 819 558 234
International numbers available: https://zoom.us/zoomconference?m=ztbp0DMCfv4Y5gCFzyJCfHSbBNyH70xj

Additional Resources:

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Contact Lori La Bey of Alzheimer’s Speaks

to see how you can be a host for this amazing film!

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Life Coaching For Caregivers

Life Coaching For Caregivers 

On Alzheimer’s Speaks Radio

Tuesday, Sept 6th, 2016

3pm EST, 2pm CST, 1pm MST, 12pm PST and 8pm London Time

Tune in and ask your questions!

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This Tuesday we will have Tanya Unterbrunner a life coach offering Free Services to those in Minnesota through a pilot program offered by The Good Samaritan Society.  We also will have joining us live, Arvilla Cherney who is the primary Care Partner for her husband Gene and has used the Life Coaching for Caregivers program.

 

Contact Information For Tanya Unterbrunner

carecoach@good-sam.com                                                                                         605-679-1765

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September Is World Alzheimer’s Month

September Is World Alzheimer’s Month

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A message from my friend Marc Wortmann, Executive Director of Alzheimer’s Disease International.

A great video defining dementia, highlighting statistics and sharing the impact of the disease.

The World Alzheimer Report 2016 will be launched by ADI in partnership with King’s College London and London School of Economics on the 20 September 2016.

World Alzheimer’s Day, 21 September, by a call to action on dementia by ADI and others to support the adoption of the Draft Global Action Plan on Dementia by the World Health Organization in May 2017.

Additional Resources

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Be A Host For The Film “His Neighbor Phil”

Contact Alzheimer’s Speaks Today

 

 

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Boating & Dementia – The Day My Dream Sank

The Day My Dream Sank

Boating and Dementia

By Michael Ellenbogen, Living with Dementia

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I have been a very lucky person. I have had the opportunity to own 5 boats in my life time. The last boat I had was sold because my wife and I had no time to use it because of our jobs. That was about 17 years ago. I really did not have the time again due to our work schedules.

Then came my diagnosis of Alzheimer’s disease (AD) in 2009 at age 49, after struggling to get a diagnosis for 10 years. Because of that I was forced to retire. The thought of owning a boat again never left my mind and I kept looking at boats but I had the fear that I would decline in another year or two and would no longer be able to control a boat.

I once had great skills and could easily control a twin-engine boat and move it sideways into any position I wanted. That requires lot of knowledge and multitasking. I was fairly sure I would not be able to do that anymore because of my AD. Over the years I kept looking at boats every chance I could and I just had this dream to buy another but I was so afraid of the added limitations that have been placed on me. Then I realized that the two years were now 4 to 6 years and while I did decline it was not as bad as I thought it would be. I guess I am also lucky there, if one could look at this dam disease in that way.

So I decided to look for a used boat.

While I found many, I was always afraid to buy them because of the possible repairs needed. That is another problem. I once was able to do most of the work on the engines and keep the boat well maintained. I am no longer capable of doing it for reasons I cannot even explain. I don’t even wash and maintain my car, which was always sparkling clean. Something in me has changed; something that would make me look lazy if you did not know I have AD. I just don’t do things anymore. So as you can see this would create many other issues, but I figured I was going to finally live out my dream. I used to say we were the poor boaters because we had to do all of the work, while many had their boats well maintained and they just came down to enjoy them.  That would add a lot to the cost but I knew this was my last opportunity if I was going to do this.

I have been able to find ways to make up for my inabilities.

was even looking for a boat that had what is called a bow thruster. That would allow me to have more control to make up for my loss of skills. This looking went on for years, and I finally came to the conclusion that I would look at a new boat to insure all of the issues would be handled under warranty.

As I tested new boats I found that the high-end boats had technology installed that would make up for my lost skills, and I was so relieved that I now felt very comfortable and all of the issues were now being addressed. But what was great with this new boat is it had a joystick feature. This option allows a novice to look like a professional. It’s almost like playing a game. Whichever way you move the joystick the boat does it all automatically. That is no easy task when you know what is involved. I find the new boats totally amazing. I also now had the confidence that I also knew in my mind that my wife would be able to step in if needed.

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I set my sights on 2016 Regal 35 Sport Coupe

After some negotiations I was having very high anxiety and fear of what I would consider the unknown. I was very surprised that my wife was even okay with making such a purchase. When it comes to deals I always got some of the best deals. With all of these issues and lack of commitment it is like being on a roller coaster.  One minute I wanted it so bad and then came so many fears and I was unsure of the ones I did not know of. One of my problems is that I can no longer see all of the issues at once but can only think about one at a time.

I finally told the sales guy of the issues and did not go through with the deal. He said if he could resolve all the issues I could take a test ride to see if I would feel comfortable being behind the wheel. They finally came back with such a great offer that I could not refuse. As we had to put things in writing I realized many of the things that made me feel comfortable were not being put in writing.  Things that were said were not the same. All this was creating even more anxiety for me. It does not take much to do that but all this started the roller coaster effect and feeling sick to my stomach at times, but I really wanted this boat, so I continued thinking we would overcome all this.

I was not being as sharp as I use to be

I also realized I was not being as sharp as I use to because I could not keep track of all of these issues and needed my wife to do it who just kept letting them getting away with each of these issues. I was also wondering what I did not know that I did not pick up on. I figured we could work this out by the final signing as I had made my request.

In the meantime, we started purchasing many items for the boat as it is like buying a new home in some ways and you need a lot of things. I had forgotten all that. I had made a list of items needed and went into the store to buy them. I came out spending a lot of money and bought many things. Then I realized most of the items on the list were not even purchased. That just created more concerns of my inabilities to get things done right and my wife was not helping as much as I was counting on. I had forgotten how expensive all this was. It was not the money but trying to keep track of all of these things. I just figured I would get over it but seeing them all pile up on my floor was starting to become a bit overwhelming and added to the already existing anxiety.

The night before the sea trail I had trouble sleeping. I had so much anxiety and fear. I even felt like I was going to have a heart attack as I was getting pain in my chest. I finally told my wife and she said we were not going to get the boat. I was so relived and prepared to do that.

But then we saw the boat again at our sea trail and it was such a great looking boat that I had decided to move forward with the deal and take the risk. I kept telling myself it would get better once it was over and I pushed on.

Sequencing is important to follow or I could damage the boat

When the captain came on board he started to explain how I needed to do certain thing in sequence otherwise I could do damage to the boat’s electronics. Here is a person who the day before had trouble using the remote for the TV. All of this makes me really question my abilities. Then there were the markers on the water I needed to follow.  I was a bit confused and concerned about doing the same as the captain when I was on my own. It did not help that most of the water in the area was low of 3.6 feet at mid tide.

There were some issues with the boat but think they could have been resolved.  But then again there were various markers that were being pointed out to me that I would need to remember later so I could navigate safely. In my mind I was wondering how I could possibly do that when I have so much difficulty remembering. Then as I looked around me on the open water I became panicky and scared as I just felt so overwhelmed that I was trying to hang on to a dream that I was no longer capable of doing. As much as I loved this boat and it was the best boat I had ever had for just one week. I had to finally come to the realization that my AD has made it impossible for me to do this safely.

I had such difficulty making decisions throughout all this time, and I believe my old self would have never even allowed me to spend so much money, but all of my executive functions seem to be a mess. I think the lesson to be learned here is that we must learn to simplify our lives, but that is easier said than done because I still want my boat. I realized deep down it has to be this way but it does not make it easier.

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It’s times like this when I really hate this dam disease.

It has taken away all of my hobbies. So I guess that last boat did not count since I only kind of owned it for a week. This is just so hard for me to accept.

Here is a Dementia Chats Session when we talked about decision making and Michael shared with the group more details about deciding to purchase a boat or not.

Additional Resources:

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Dementia Complicated By Abuse

Dementia Complicated By Abuse

On Alzheimer’s Speaks Radio This Tuesday, August 30th, 2016

2pm EST, 1pm CST, 12pm MST, 11am PST and 4pm London Time

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Harry Urban lives in Pennsylvania and was diagnosed with dementia of the Alzheimer’s type, over 12 years ago. He founded a dementia support group on Facebook called Forget Me Not and started the United Against Dementia initiative.  he also writes a blog at MyThoughtsOnDementia.com.  Today we will discuss abuse and dementia.  This is a very complicated and dangerous situation when it occurs, no matter what type of abuse it is.

Additional Resources:

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HealthStar Hosts: Ask The Expert with Dr Sonia Mosch

“Ask the Expert”

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Dr. Sonia Mosch, PhD., Clinical Neuropsychologist for the MN Wild (NHL Concussion Program), will be at the HealthStar booth for “Ask the Expert”

Come Out To The State Fair – August 29, 2016

Dr. Mosch performs neuropsychological assessments for individuals concerned about the onset of Alzheimer’s and other dementias. If you have questions concerning the brain, now is your opportunity to “Ask the Expert”. Dr. Mosch will be available to discuss:

  • The purpose for assessments, general methods, and uses in diagnoses of dementia versus normal aging;
  • What to expect if you are referred for a neuropsychological assessment due to dementia concerns/symptoms;
  • Recommendations that may arise from a neuropsychological assessment; and,
  • Other questions fairgoers may have regarding Alzheimer’s and dementia.

“ASK THE EXPERT” to be held August 29

from 10:00 AM to 11:00 AM in the

East Crossroads Auditorium/ Health Fair 11 Bldg.

(Corner of Dan Patch & Cooper).

Dr. Sonia Coelho Mosch, PhD. ABPP-Cn, LP
Board Certified in Clinical Neuropsychology

Staff Neuropsychologist for the MN Wild (NHL Concussion Program)

Also affiliated with Noran Neurological Clinic

Want to hear more about Dr. Sonia Mosch?

Click below to listen to an interview with her.

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Additional Resources:

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