Archive for the ‘Advocate on Steroids for Caregiving’ Category

Engaging Alzheimer’s With Kerry Mills Co-Author of “I Care.”

021715 ASR Kerry MIllsEngaging Alzheimer’s

Kerry Mills Co-Author of

“I Care.”

We go live Tuesday, Feb 17th, 2015, at  11am EST, 10am CST, 9am MST, 8am PST and 4pm London time; or you can always listen to the show later at your convenience too!

kerry_mills_pic_2Alzheimer’s Speaks Radio, loves hearing from everyone at every level regarding dementia.  If you think you might make for a great guest, please contact

Lori La Bey founder of Alzheimer’s Speaks Resource Website.


Tuesday we will be honored to have Kerry Mills founder and president of Engaging Alzheimer’s LLC.  Kerry is also the co author of I Care – A Handbook for Care Partners of People with Dementia.  Join us and come with your questions and comments.  Call in at  (714) 364-4757   Kerry mills ICare_cover_135x216Reach Kerry Mills via her   Website   phone  914-962-0997

For additional information on Alzheimer’s disease and other dementias

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Thanks to our collaborators



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Love Is All Around Us, Just Waiting For Us To Find It!

Love Is All Around Us,


Just Waiting For Us To Find It!

Some days as we walk our path into the world of dementia, the road can feel bumpy and hard; not knowing where we are going or how the next moment will roll out.

But during my journey

I have learned one very important lesson.

You find only

what you are willing to see. 

heart_in_skyIf we focus on the past and what we feel we have lost, we don’t allow gratitude to enter our life. The pleasure of appreciation for what we did have. 

If we focus on the scariness of the future and all the unknowns, we shut down the opportunity to create or allow brilliant moments to occur.


When we live in the moment before us RIGHT NOW, we have the power to create and allow into our lives that which we crave… love, engagement, acceptance, comfort, peace… laughter.

heart_sunset_treeI wish for you this Valentines Day that you see and accept the promise of hope and love that surrounds you in every nano second of each day, especially when it it not obvious. I personally know how difficult this can be to do, but I also know it is well worth the effort.

It is our individual choice to decide what we want to focus on. What we want to believe.  What we want to create.  What we want to allow to in our life.  I encourage you to slow down and look at the rocks, the sky, the trees and all that surrounds you. You may be very surprised and the signs of hope and love you see in places you never imagined.

Look For The Signs

They will warm your heart and bring you peace

in the most difficult and loneliest of moments.

May you each have a blessed day wrapped in love knowing you are not alone.

Lori La Bey of Alzheimer's Speaks & Senior Lifestyle TrendsLori La Bey, founder of Alzheimer’s Speaks

For more resources on dementia and caregiving

check out Alzheimer’s Speaks below

alzsnap_serv_072413Check Out Our Partners And Their Services Below!


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Health Club and Products for Those With Alzheimer’s And Other Dementias

Alzheimer’s Speaks Radio

Live Tuesday Feb 10th, 2015

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time!

Mark Your Calendars!

021015 ASR MEmeory and Company fit kits

Click Above To Listen To The Show!

Health Club and Products for Those With Alzheimer’s And Other Dementias

Welcome to Alzheimer’s Speaks Radio where the voice of all is heard and respected.  Come join the conversation and let us hear your thoughts and ideas.

memory_and_company_health_club_logoAshley Kwong recognized a missing and very needed area in the health care industry.  A Health Club for people with Alzheimer’s disease and related dementias. Come learn on how and why she created “Memory & Company.” You will see Ashley is a dedicated, empathetic person, who is very passionate about improving the lives of seniors, especially those with Alzheimer’s disease and related dementias, dedicating her life to this cause.

Mail at: Memory & Company 100 Renfrew Dr. Suite 110, Markham Ontario, Canada L3R 9R6

Phone:  905-888-8808

fit_kits_for_blog_logoOur second guests will be Karen Love co-founder and Kelly Sheets of FIT Kits® which provide Dementia Engagement Products that are research, tested and developed with the mission of helping people living with dementia to live more fully.    Everyone has within them the ability to ignite the spirit in someone living with dementia.

For more information on Dementia and Caregiving go to Alzheimer’s Speaks.


A Big Thanks To Our Collaborators!


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Still Alice Movie Review by Michael Ellenbogen Who Is Living With Dementia

Still Alice Movie Review

by Michael Ellenbogen

Who Is Living With Dementia

Michael Ellenbogen newest pic 102813After about 25 years I just saw my first movie. Still Alice

I must say I was very surprised that they did a great job of what it’s like to live with Alzheimer. I also like that it had some well known actors taking part in it. While I have heard from many on how depressing this movie is I can assure you from my shoes it put a simple way of looking at it as it is by far worse than people are seeing. Only so much you can show in 2 hours. I do believe this will hit home with the audience. I just hope the audience is just not people in my own circle.

What I did not like is that they were referring to the familial form of AD. While that is a small percent of us who get it I don’t want the public to think it is so rare. I have it Alzheimer and I do not have the gene. I know many others in my boat and they do not have it. There are so many of us out there living with it.

The other issue I had was this was looking at it from a family that had all the support and especially the financials to make this much easier to deal with. I and many others will never be as lucky to afford that luxury.

Overall not sure how they could have made it better within that time frame.

What are your thoughts?

We would love to hear your comments about the movie. 

Lori La Bey of Alzheimer's Speaks and Senior Lifestyle Trends

Lori La Bey, founder of Alzheimer’s Speaks

Personally I had not had a chance to see the movie when I received Michael’s comments.  It is only at one theater in my area on the other side of town.  Michael s review got me motivated to take the time and drive across town to see it for myself.  Thank you Michael!  I found the movie extraordinary.  I was however sadden that more people were not at the film.  I also think there are a couple opportunities to due a spin off from this film to show more about life and love with dementia.  I thought the actors did a fabulous job and I want to personally thank each of them for believing in the film.

This film will go down in history, as a life changer for dementia.

A Call For Action

I do however think it would be great for people to call their local theaters and request the show be played.  Theaters need to hear from people.  Theaters need to know people are ready and willing to pay for a movie on this topic.  That this type of movie has a rel life impact on everyday people living in their communities and showing the film will help raise awareness of the dementia as a whole.  Just like the movie Philadelphia helps people understand AIDS, Still Alice will help society look differently at dementia.

Order Michael”s Book!

Michael ellenbogen book coverCheck out Michael’s Website Belowmichaels_logoFor more information on Dementia & Caregiving

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A Poem On Dementia “TRAM IN NO-WHERE”


By Ellina Z., Melbourne

I stepped on to a tram

On Balaclva Road

Under the Railway Bridge

Next to the Fishshop

With all those cut-up fish steaks on display.

I stepped on to a tram

Without a sense of


Or where am I climbing those steps.

Where is my  Bag?

My fingers are empty.

Nothing to clutch to

for security.

Where is my Bag

With all my life in it

to hold on to?

I am standing there on that tram

While it is starting to move.

I look around myself.

I am clothed.

Tram is half empty.

I have no sense

Of  where I am going.

Or how to go back.

And where is back?

On this tram

Nothing to hold on to

Although the seats

And rails are at hand.

I am just standing there

Abandoned by myself.

Traveling in nowhere.

For More Information On Dementia & Caregiving

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Caring for a Person with Memory Loss Conference

Caring for a Person with Memory Loss

Save The Date 

The next free Caring for a Person with Memory Loss conference, to be held on Saturday, May 30th, 2015 from 8AM to 4:30PM in Mayo Memorial Auditorium at the University of Minnesota!  Topics for this year’s conference are still being finalized, and more details such as speaker information and program schedule will be made available in the upcoming weeks.  Registrants will receive an email from me in the coming months with detailed parking and driving instructions.

Please forward this announcement to your colleagues, clients, family members, and friends who may also wish to attend!   A PDF of the conference brochure and flyer will be available soon as well.  This conference is free to attendees who do not wish to receive CE credits.


As many of you know, this conference is made possible with the generous sponsorships and CE purchases of our many supporting organizations and attendees over the years.  In the past, many of you have asked how else you could help, and I am happy to announce that the Caring for a Person with Memory Loss conference is now accepting donations!  We prefer to receive donations via check; to make a donation (we accept any amount) please make the check out to The University of Minnesota Foundation, and in the “For” line it would be great if you could enter “CPWML conference.”  Please feel free to mail any donation checks to me prior to the conference at: Joe Gaugler, PhD, School of Nursing, University of Minnesota, 6-153 Weaver-Densford Hall, 1331, 308 Harvard Street S.E., Minneapolis, MN  55455.  Otherwise, we would be happy to accept donation checks the day of the conference or anytime thereafter.

All donations are tax deductible, and all proceeds will be used for the support of conference activities.  Thanks so much for considering!


Pre-registration is required.  To register for the conference please click on the following link (or cut and paste it into your internet browser): http://tinyurl.com/CPWMLregistration.  Please make sure to fill out a new form for each person to be registered for the conference.


To receive 7.2 Minnesota Board of Nursing, 6.75 Minnesota Board of Social Work, 6.75 Minnesota Nursing Home Administration, or 6.75 Minnesota Board of Marriage and Family Therapy continuing education hours there is a $50 registration fee.  As in the past, non-nursing/social work professionals may also register to receive contact hours for use in their particular professional organizations, as a signed certificate of attendance will be provided to all who pay and register for CEs through the registration web site.  Please complete the online registration form (click on link above) to receive details on how to purchase CEs for these various organizations.

You must pay the $50 continuing education fee for each organization you would like contact hours from.

A signed certificate of attendance will be provided to all who pay and register for CEs through the registration web site and attend the full day of presentations.  Certificates will be handed out or emailed at the end of the conference and will not be distributed early or provided to those who are not able to attend the conference.

Refund Policy – If you need to cancel your registration, a refund will be issued if you cancel in writing to Dr. Gaugler at gaug0015@umn.edu by May 16th, 2015 (2 weeks prior to the conference). If you cancel after this date, you will not be eligible for a refund.


We have several research studies where we are looking for participants!  Specific projects include that are immediately seeking participants include:

Our biggest current study, which is evaluating remote health monitoring technology (the eNeighbor) for persons with memory loss and family caregivers.  If participants are randomly assigned to the eNeighbor group, they get to use the technology for free for 18 months (a value of over $4000).

We are interested in determine the benefits of families utilizing an online personal health record when caring for a relative with memory loss.  Participants will be paid for monthly internet connection (if needed) and also for completing an initial, 6-month, and 1-year interview.  We are looking for family members of persons with memory loss to participate.

If you are interested in participating in any or both of these projects, or are willing to share these opportunities with others who may be interested, please contact me.

Finally, as always: if you have not done so already, please consider becoming a part of the University of Minnesota Caregiver Registry! Becoming part of the registry does not enroll you in any study, but it provides Dr. Gaugler with permission to contact you in the future about any upcoming opportunities to participate in his research as well other basic information. Filling out the University of Minnesota Caregiver Registry form should not take more than 5 minutes. If you have already done this for us and nothing has changed since you filled it out, there is no need to fill out another form. However, if something has changed since you last filled out a Registry form, please feel free to fill out a new form:

If you are a family member or friend who knows someone with memory loss or is helping them, please fill out the University of Minnesota Caregiver Registry-Family form: http://bit.ly/1nOO3X7
If you are a professional who cares for persons with memory loss or their families, please fill out the University of Minnesota Caregiver Registry-Professional form: http://bit.ly/1c3mmUY.

We look forward to seeing you on May 30th!  If you have any questions or concerns, please contact me at gaug0015@umn.edu or 612-626-2485.  More conference details will be updated in the coming weeks on our conference portal; http://www.nursing.umn.edu/memoryloss.

For More information on Dementia and Caregiving

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Monthly Speaker’s Forum from MemoryWorks – The Stigma of Dementia

Join Us Tonight!

We are live now

Let’s see who is up for some new use of technology. I hope you will join us. There won’t be anyone at Port Resources itself – so join the virtual forum.

Because we are all so tired of snow, you can now stay at home and take part in the monthly Speaker’s Forum from MemoryWorks and Port Resources on Thursday Evening at 6:30pm.

The virtual doors will open shortly after 6pm – either by Internet or by phone. You will be able to listen and take part in the discussion using GoTo Meeting.

Tonight’s guests are Michael Ellenbogen from Pennsylvania and Lori La Bey, founder/owner of http://www.alzheimersspeaks.com

Michael has lived with dementia for many years. He has been a vocal advocate for dementia and it’s many tentacles. https://www.facebook.com/MichaelEllenbogenMovement

Lori was recognized by Sharecare and Dr. Oz. as the #1 Influencer Online for Alzheimer’s.  As a professional speaker and daughter of a mother with dementia for over thirty years, Lori gets it!
We will have an open and honest discussion on the STIGMA that surrounds all forms of dementia. Your input is valuable and welcome. Those of us who have some form of dementia have all seen discrimination – from friends, family, employers, strangers, and providers.

1.  Please join the meeting online at https://global.gotomeeting.com/join/656813677


2.  Join the conference call by phone:

Dial +1 (619) 550-0003

Access Code: 656-813-677

Audio PIN: Shown after joining the meeting

Meeting ID: 656-813-677


Online Meetings Made Easy®

For more information please contact either:

Kenneth A. Capron
1375 Forest Avenue D-11
Portland, Maine 04103


For more information on Dementia & Caregiving

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