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Archive for the ‘Advocate on Steroids for Caregiving’ Category

Take a Trip to DementiaLand” with the Amazing Author Suzka

 Take a Trip to DementiaLandwith Suzka

On Alzheimer’s Speaks Radio

Today we are lucky to have author Suzka with us.  She is a painter, muralist, set designer for the Monterey Jazz Festival, cartoonist and now… writer.  We will have a wonderful conversation about her book “Wonders In DementiaLand,”  which is an Intimate and Whimsical Account of Dementia, Memory Loss, Caregiving and Dancing Gypsie.

Lori La Bey, Maria Shriver and Suzka at the Move for Minds Event June 4th, 2017

Contact Information For Suzka

To Purchase the book ‘Wonders In Dementialand’available on Amazon

Website: http://www.dementialand.com

Facebook: dementialand

Facebook: Suzka Susan Collins

eAddress: suzka@dementialand.com

Twitter: dementialand

Instagram: Dementialand

Pinterest: Dementialand

Dementialand™

 

 

 

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Move for Minds with Maria Shriver

Move for Minds with Maria Shriver

WHAT IS MOVE FOR MINDS?

  • On Saturday, June 4th, Equinox Sports Clubs in eight different cities across the United States will become ground zero for a one of a kind experience to support women’s brain research into Alzheimer’s and raise awareness of the fact that Alzheimer’s disproportionately impacts women. For the second year, this unique event brings together two powerhouse brands in Equinox and Maria Shriver.
  • Participants in Equinox Sports Clubs in New York, Los Angeles, Orange County, San Francisco, Boston, Dallas, Miami and Washington, D.C. will fundraise to participate in a one-hour work out specifically designed by Equinox’s top fitness experts to optimize both body and brain health. This workout marries the benefits of yoga and mindful meditation with the adrenaline rush of cross training.
  • Following the innovative brain/body workout, attendees will engage with one another socially in a groundbreaking marketplace where they will get to meet and hear from leading superstars of brain research, fitness, food, nutrition, stress, sleep and caregiving.
  • Move for Minds is an unprecedented gathering of empowered women, men and leading experts who believe funding women’s brain research will help us solve the Alzheimer’s epidemic and answer the question: Why are so many people getting Alzheimer’s and why are the majority of them women?

WHEN WILL IT TAKE PLACE? 

  • Saturday, June 4th from 10 a.m. to 1 p.m. in each of the cities except for Dallas (1-4 p.m.).

WHO WILL BE THERE? 

  • Some of the superstars joining participants from coast to coast include include Maria Shriver, Ann Romney, Dr. Lisa Genova, Dr. Daniel Amen, Dr. Roberta Brinton, Dr. Adam Gazzaley, Dr. David Perlmutter, Dr. Richard Isaacson, Dr. Dena Dubal, Dr. Reisa Sperling, Bob Roth, Mallika Chopra, Brooke Burke, Leeza Gibbons,  Liz Hernandez, Dr. Pamela Peeke, Mary Hart, Moll Anderson, Lori La Bey and others.
  • Participants include over a thousand women and men of all ages who come together for an empowering, educational and inspiring day of exercise and information. They are intent on learning about brain health and the lifestyle choices to make when we are young to better protect our brains as we age.
  • Participants in the day’s activities must be at least 16 years of age. Anyone under 18 years old, must be accompanied by an adult.

WHERE WILL THE MONEY GO?

  • 100% of the funds raised by the over 1,250 attendees and their network of supporters will benefit The Women’s Alzheimer’s Movement, a non-profit devoted to raising awareness of the fact that women are disproportionately affected by Alzheimer’s disease and raising funds to research why that is.
  • Proceeds will support women-based research efforts at leading Alzheimer’s research institutions and in the labs of individual scientists.

HOW TO SIGN UP: 

  • Every attendee must sign up at MoveForMinds.org where they select a city of their choice, and register as a fundraiser. They then reach out to their networks via email and/or social media to raise at least $250 to support WAM. Gifts will be awarded to the highest fundraisers in each club.
  • If people want to form a team, they can call Samara Metz at (310)873-5000, and she will help them establish one. A team must consist of a minimum of 5 people, each of whom must have their own fundraising page and pledge to raise a minimum of $250.
  • If you cannot attend the event, donate to someone who can. Go to MoveForMinds.org and look for a friend or person you want to support. Or you can join donate to Maria Shriver’s page. If you’d like to sponsor a caregiver to participate in Move for Minds you can underwrite her $250 fundraising minimum at MoveForMinds.org.

ABOUT WOMEN’S BRAIN RESEARCH & ALZHEIMER’S DISEASE  

  • There are 5.4 million people living with Alzheimer’s in America
  • Every 66 seconds someone in the United States develops Alzheimer’s and two thirds of them are women.
  • A woman in her early sixties is about two times as likely to develop Alzheimer’s than breast cancer over the remainder of her life.
  • By 2050, 16 million brains will have fallen victim to Alzheimer’s and a majority of them will belong to our mothers, sisters, daughters and friends.
  • Alzheimer’s is the only disease among the top ten causes of death in America that cannot be slowed, prevented or cured.
  • Of the top killer diseases, Alzheimer’s disease research is severely underfunded. In 2017, the NIH will spend $910 million in Alzheimer’s research while it spends over $6 billion on cancer research, $1.3 billion on heart disease research and $3 billion on HIV/AIDS research.
  • Per a recent WebMD and Shriver Report Snapshot: Insight into Alzheimer’s Attitudes and Behaviors, while 96% of survey respondents have heard of Alzheimer’s, nearly half aren’t concerned with getting the disease and only 11% have asked their doctors about preventing it.

ABOUT THE CONNECTION BETWEEN YOUR BODY AND YOUR BRAIN

  • In fact, in a recent study of Americans at a higher risk for developing Alzheimer’s disease due to the presence of the APOE 4 gene found that the brains of the high risk individuals who exercised regularly looked much more like the brains of volunteers who were not predisposed to Alzheimer’s disease. Meanwhile the brains of sedentary high-risk subjects appeared to be slipping, structurally toward dysfunction. http://well.blogs.nytimes.com/2014/07/02/can-exercise-reduce-alzheimers-risk/?_r=0
  • Regular exercise also helps those coping with the disease and their caregivers and research shows that fit patients and caregivers have far less anxiety, irritability and depression that those who did not work out. http://www.nbcnews.com/health/aging/better-treatment-alzheimers-exercise-n397461
  • Both yoga and meditation are ‘brain exercises’ that engage different parts of the brain through breathing, movement, changing, visualization and concentration. This forces the brain to develop new connections and stimulate neuroplasticity which prevents physical brain degradation. http://www.yogajournal.com/meditation/benefits-yoga-meditation-alzheimers-dementia/
  • Chronic stress and related stress hormones could negatively affect brain structures important for memory and cognition, like the hippocampus. Chronic stress is also associated with inflammation in the body and in the central nervous system/brain that is linked to Alzheimer’s disease and other disorders of aging. Yoga can reduce stress hormones and inflammatory factors, and teach an individual over time how to cope more effectively and protect the body from going through the stress response. http://www.yogajournal.com/meditation/benefits-yoga-meditation-alzheimers-dementia/
  • A 2013 study showed that as little as 15 minutes of daily meditation can significantly slow the progression of memory loss. Eight weeks after beginning a regular practice, participants had improved functional connectivity in the default mode network (ie the part of your brain that never shuts down) and slowed shrinkage of the hippocampus (ie the part of your brain responsible for memory which is affected by Alzheimer’s). http://www.prevention.com/health/brain-health/mindfulness-meditation-slows-progression-alzheimers-and-dementia

 

 

 

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The Forget-Me-Not Memory Café Building Community & Lifting Spirits

The Forget-Me-Not Memory Café Building Community & Lifting Spirits

On Alzheimer’s Speaks Radio 

060117 Wilmar Radio Show

Forget-Me-Not Memory Cafe

Today we are lucky to have three team members; Andrea Carruthers, Jody Loseth and Kathy Thonvold from the West Central Dementia Awareness Network (WCDAN).  We talked about their “Forget-Me-Not Memory Café” and several additional dementia friendly efforts they are involved.

Contact Information For

wilmar_logo

Click Above or Email  wcdanmn@gmail.com

Depression, Sadness, Grief & Dementia

https://youtu.be/-IvL5MJI5Kg

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Learn About The A-List & How Dementia Research Will Improve Lives

Learn About The A-List

& How Dementia Research

Will Improve Lives

 A missing piece in Alzheimer’s research is hearing from those who are closest to the disease.  Don’t miss the opportunity to be heard. Join us Tuesday, May 30th and learn how you can let Researchers know What Matters Most to you and your loved ones.

Listen and learn from our panel of experts each a powerhouse as an advocate and activist for dementia. Meryl Comer, Ginny Biggar, Terry Frangiosa and Greg O’Brien.

  • You will hear how this journey is tough, even for those with resources and those who work in the area.
  • Learn how we can all learn and grow through our dementia journeys. 
  • Find out how crucial you voice is in the fight against Alzheimer’s.

http://www.alist4research.org/

Depression, Sadness, Grief & Dementia

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Learn How To Host A Screening Of The

Hollywood Film “His Neighbor Phil”

other_int_and_projct

 Meet Me in Orange County June 4th

You Can Have An Impact, Even If You Can’t Make Maria Shriver’s Event. 

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

maria_move_for_minds_w_more_info_banner_041717

Now is the perfect opportunity to join the Move for Minds experience. Please sign up today and we’ll thank you by giving you a pair of Beats urBeats Earphones ($99 value) at our Move for Minds event on June 4.  (Limit one Beats UrBeats Earphones per person-offer ends 5/24)

Register_here_tab

Join the fun at one of the events in eight different cities where you can participate in an extraordinary workout and panel discussion.  Leeza Gibbons  will be the moderator.  All you have to do is sign up online and commit to a fundraising minimum of $250.00.

Check Out The Panel of Experts

• Dr. Daniel Amen, M.D. – Brain Health 

 • Tana Amen – Nutritionist

• Katy Bowman – Biomechanist

 • Mallika Chopra– Meditation Expert

•  Dr. Joshua Grill, Ph.D. – Alzheimer’s Research

•  Lori La Bey– Caregiving / Alzheimer’s & Dementia Activist

Register_here_tab

4 Pillars of Prevention

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Depression, Sadness, Grief & Dementia

Depression, Sadness, Grief & Dementia

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.
Today we discussed the following:
Depression, Grief, Sadness and Dementia
Today we address the following:
Dementia vs Depression
Grief, sadness and depression
Dementia and loneliness
Added stress for Care Partners due to loneliness
Quiet isn’t always lonely
Fear and depression
Advocacy and purpose can replace fear and depression
Depression is a personal experience
Sadness vs Depression
Look for things to be grateful for
Does loneliness have to do with how we grew up?
Care Partners are afraid of saying anything that might upset their person with dementia.
A sadness felt by both sides for different reasons
Listen and validate feelings
“Happy Places” can shift sadness and depression
Everyone with dementia is different and has their own “Happy Places.”
Thank You To Our Experts Living With Dementia:
Harry Urban
Laurie Scherrer
Bob Savage
Truthful Loving Kindness
Brian LeBlanc
Susan Suchan
Brought To You By Lori La Bey, Founder of
www.AlzheimersSpeaks.com
additional_resources
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Learn How To Host A Screening Of The

Hollywood Film “His Neighbor Phil”

other_int_and_projct

 Meet Me in Orange County June 4th

You Can Have An Impact, Even If You Can’t Make Maria Shriver’s Event. 

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

maria_move_for_minds_w_more_info_banner_041717

Now is the perfect opportunity to join the Move for Minds experience. Please sign up today and we’ll thank you by giving you a pair of Beats urBeats Earphones ($99 value) at our Move for Minds event on June 4.  (Limit one Beats UrBeats Earphones per person-offer ends 5/24)

Register_here_tab

Join the fun at one of the events in eight different cities where you can participate in an extraordinary workout and panel discussion.  Leeza Gibbons  will be the moderator.  All you have to do is sign up online and commit to a fundraising minimum of $250.00.

Check Out The Panel of Experts

• Dr. Daniel Amen, M.D. – Brain Health 

 • Tana Amen – Nutritionist

• Katy Bowman – Biomechanist

 • Mallika Chopra– Meditation Expert

•  Dr. Joshua Grill, Ph.D. – Alzheimer’s Research

•  Lori La Bey– Caregiving / Alzheimer’s & Dementia Activist

Register_here_tab

4 Pillars of Prevention

arpf_logo_I_snapped

CAC_horizontal_banner_w_prono_code_032917

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Dr Peter Rabin – Updates on Dementia

Dr Peter Rabin – Updates on Dementia

On Alzheimer’s Speaks Radio

Tuesday May 23rd, 2017

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

050217 ASR 36 Hour day 2 REPLAY 052317

Peter Rabins, MD, MPH, who is the Author of “The 36-Hour Day,” join us to discuss various areas of progress regarding dementia and caregiving.   He is a professor of the practice in the Erickson School of Aging Management Services at the University of Maryland, Baltimore County. He was the founding director of the geriatric psychiatry program and the first holder of the Richman Family Professorship of Alzheimer Disease and Related Disorders in the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine.

Contact Information For Dr Peter Rabin

https://jhupbooks.press.jhu.edu/content/36-hour-day 

www.Amazon.com

other_int_and_projct

 Meet Me in Orange County June 4th

You Can Have An Impact, Even If You Can’t Make Maria Shriver’s Event. 

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

maria_move_for_minds_w_more_info_banner_041717

Now is the perfect opportunity to join the Move for Minds experience. Please sign up today and we’ll thank you by giving you a pair of Beats urBeats Earphones ($99 value) at our Move for Minds event on June 4.  (Limit one Beats UrBeats Earphones per person-offer ends 5/24)

Register_here_tab

Join the fun at one of the events in eight different cities where you can participate in an extraordinary workout and panel discussion.  Leeza Gibbons  will be the moderator.  All you have to do is sign up online and commit to a fundraising minimum of $250.00.

Check Out The Panel of Experts

• Dr. Daniel Amen, M.D. – Brain Health 

 • Tana Amen – Nutritionist

• Katy Bowman – Biomechanist

 • Mallika Chopra– Meditation Expert

•  Dr. Joshua Grill, Ph.D. – Alzheimer’s Research

•  Lori La Bey– Caregiving / Alzheimer’s & Dementia Activist

Register_here_tab

Learn How To Host A Screening Of The

Hollywood Film “His Neighbor Phil”

Copy of DC_HQ_062714_banneryellow2

additional_resources

4 Pillars of Prevention

arpf_logo_I_snapped

CAC_horizontal_banner_w_prono_code_032917

 

 

 

 

 

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The Buzz About Fragile Storm?

What Is All The Buzz About The Film Fragile Storm?

Alzheimer’s Speaks Radio

051817 ASR Graphic Dawn fields Fragile Storm 2.pub

Thursday May 18th at 1pm, Dawn Fields is the director, producer, editor and co-writer of the multiple award-winning short film Fragile Storm, starring Lance Henriksen, a heartbreaking caregiver story.  We will discuss what all the buzz has been and the impact the film has had on its audience.

Dawn is currently focused on promoting the short film, which is now available for free at www.FragileStorm.com and she is also in development on her first feature film.

Contact Information For Dawn Field:

www.FragileStorm.com

additional_resources

Join Me in Orange County June 4th

Have An Impact, Even If You Can’t

Make Maria Shriver’s 8 City Events.

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

maria_move_for_minds_w_more_info_banner_041717

Learn How You Can Host A Screening of the Hollywood Film

“His Neighbor Phil”

Copy of DC_HQ_062714_banneryellow2

  other_int_and_projct

4 Pillars of Prevention

arpf_logo_I_snapped

CAC_horizontal_banner_w_prono_code_032917

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