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Archive for the ‘Advocate on Steroids for Caregiving’ Category

Dementia Conference and Cruise Brings Hope, Fun and Education to Families

Dementia Conference and Cruise Brings

Hope, Fun and Education to Families

Caribbean vacation for those living with early memory loss accompanied by families and friends

St Paul/Minneapolis, MN – 04/27/2017PR_Graphic_wCruise__forsocial_media_042417_

 

Participants will find this week-long Caribbean cruise an empowering retreat rich in hope and filled with fun, all while learning tips to live graciously with their “new normal” in life.

Lori La Bey, Radio Host and founder of Alzheimer’s Speaks is the brain child behind the event.  Her own mother lived with dementia for 30 years.  La Bey said, “Our conference is designed to encourage open conversations, raise awareness, and build a sense of comradery while rejuvenating souls.  We want to help people expand the depths of their relationships while functioning as caregivers and care receivers.  Our goal is to show people how to live graciously with dementia, not become it.”

Kathy Shoaf, RN, Accessible Travel Advocate became La Bey’s perfect partner.  Shoaf owner of Elite Cruises and Vacations, LLC, is helping La Bey bring people together to share insights, reduce fears and eliminate feelings of isolation often caused by dementia. Shoaf has been overwhelmed by the gratitude expressed by those inquiring about the conference. “People are excited and simply surprised that this opportunity to get support actually exists,” she said.

Most people don’t realize how many families are affected by Alzheimer’s disease and other forms of dementia.  According to Alzheimer’s Disease International, a person develops dementia every 3 seconds in the world.  It’s rare to find someone who has not been touched by the dementia.

La Bey’s unique team includes both professionals in the field as well as what she calls the “True Experts.” Four international advocates living with a dementia diagnosis will play a large role in the conference sharing their profound insights and coping strategies.  They are: Michael Ellenbogen, Mary Read, Laurie Scherrer and Harry Urban.

As Harry Urban, a man living with dementia for 13 years said, “I’m finally going to meet my family.  The one I’ve never met.”  Harry refers to his “social media family” as a major source of support to him. Like so many living with dementia and those caring for them, these social media platforms can be lifelines.

Professionals Cyndy Luzinski and Becky Watson bring their passion and superior skill sets to the conference.  Luzinski is an advanced practice nurse and dementia practitioner, along with being the founder of Dementia-Friendly Communities of Northern Colorado. Watson is a Board-Certified Music Therapist and Founder of Music for Wellness, a company that provides engaging, energizing and empowering music wellness programs and services to enrich the mind, body, and spirit.

La Bey, reminisces with us about a family cruise with her mom with dementia and her dad with brain cancer.  “What a beautiful experience it was for my parents, all siblings and our children.” She goes on to say, “To be able to offer a supportive atmosphere where others understand the dementia experience and are in the trenches side by side with one another — well it’s just beyond words.”

This conference will provide a fun and hopeful environment to share life stories and lessons learned which in turn builds a strong sense of comradery.  Participants will be given resources, tips and tools to help them live better with and alongside dementia. Alzheimer’s Speaks is seeking sponsorships and donations to provide scholarships for those who can’t afford to attend.

Johns Hopkins University Press has donated a couple of their best-selling books on dementia for the conference, “The 36 Hour Day” and “A Loving Approach to Dementia Care.” La Bey encourages individuals and organizations to donate services, products or tools to enhance this experience.  La Bey is also seeking sponsors through cash or frequent flier miles… at any level to provide scholarships for those who can’t afford to attend on their own.

The group will set sail November 11th, for the Eastern Caribbean and return to Fort Lauderdale, on November 18th, 2017.  All interested in this amazing conference and cruise must book their cruise through Kathy Shoaf who can be reached at 219-608-2002 or via email kathy.shoaf@cruiseplanners.com

For More Information Contact:

Alzheimer’s Speaks is an advocacy group making an international impact providing education for those dealing with dementia.  Dr. Oz and Sharecare recognized Alzheimer’s Speaks as the “#1 Influencer online for Alzheimer’s.”  Maria Shriver recognized La Bey as an “Architect of Change for Humanity.”

Media Contact:
Lori La Bey                                                 Lori@AlzheimersSpeaks.com
651-216-5413                                              https://alzheimersspeaks.com/cruise-with-us

Join Our Cruise filled with Hope and Fun!

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Or Help Support This Event By Making a Donation

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Talk With Lori La Bey of Alzheimer’s Speaks on

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Quick Tips For Alzheimer’s Caregivers

Quick Tips For Alzheimer’s Caregivers

on Alzheimer’s Speaks Radio

042717 ASR Celia Koudele_s

Thursday, April 27th, 2017 

2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

Today we have Celia Koudele’s whose Mother, Grandmother, and an Aunt all died from Alzheimer’s.  She worked at the Alzheimer’s Association of Central and Western Kansas for 9 years as a Helpline Specialist. Celia is the author of, “The Little Book for Alzheimer’s Caregivers” to help other families based on her experiences.

Contact Information For Celia Koudele

Website: www.AlzCaregivers.net

Instagram: Alzcaregivers

Twitter: AlzheimersCaregivers

Facebook: www.Facebook.com/AlzheimersCaregivers.info

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What Does a Montessori Inspired Lifestyle Look Like?

Alzheimer’s Speaks Radio

042517 ASR Cameron Camp Elizabeth Kaufman Goodman

What Does a Montessori Inspired Lifestyle Look Like?

Tuesday, April 25th, 2017 

2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

Tuesday we will have Cameron J. Camp, Ph.D. with us again. He is a noted psychologist specializing in applied research in gerontology. He currently serves as Director of Research and Development for the Center for Applied Research in Dementia, and gives workshops on designing cognitive and behavioral interventions for dementia internationally.

Joining Cameron will be Elizabeth Kaufman is a Regional Director of Life Enrichment with The Goodman Group. With a strong background in Recreation Therapy and Memory Care, Elizabeth currently works with Dr. Camp to bring Montessori-Inspired Lifestyle to several memory care communities.

Contact Information For Cameron J. Camp, Ph.D.,  Director of Research and Development     440-829-4927
Cameron@cen4ard.com    https://www.cen4ard.com  

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Chandler Place contact: Megan Moriarty – 612-788-7321

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Creative Engagement for Those Living with Dementia

Creative Engagement for

Those Living with Dementia

 on Alzheimer’s Speaks Radio

042017 Graphic Lola ArtKits

Thursday we will have Lola Fraknoi the creator of an Art Kit for people with memory loss and a professor of art in the Older Adult Program at the City College of San Francisco.  Lola has over 25 years of experience in the aging field and as the founder and director of Ruth’s Table (a center for multi-generational creative learning) She trained as a professional artist who always finds a way to bring art, music, and creativity of all kinds into the programs she has led.

Contact Information for Lola Fraknoi

Art Kit Website: www.arttimeprograms.com 

My Art Website: www.lolafraknoi.com

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Come Cruise with Alzheimer’s Speaks!

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A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

trish V usagainst alz head shot (2)

Trish Vradenburg

May Trish’s  family and friends feel the love and support the world is sending them

Trish’s Deep-Rooted and Unflinching Passion to Fight Alzheimer’s Creates Admirable and Aspirational Legacy

UsAgainstAlzheimer’s Co-Founder and Vice-Chair Trish Vradenburg’s unflinching spirit – her creativity and imagination, quick-witted humor, empathy, generosity and her exceptional tenacity to stop the suffering of others – was captured in her every action. It is with immense sadness that UsAgainstAlzheimer’s announces her passing, and it is with the utmost gratitude that the organization cherishes her legacy and forges ahead in her memory.

Trish’s life was an inspiring portrait of creativity and versatility, employing her gifts of writing and storytelling throughout a successful professional career. She began her career as a speechwriter in the U.S. Senate. She wrote for various television shows, including Designing Women, Family Ties and Kate and Allie. Trish’s novel, Liberated Lady, was chosen as Literary Guild and Doubleday Book Club selections and has been translated into three foreign languages.

As a journalist, she wrote extensively for The New York Daily News, The Boston Globe, The Washington Post, Ladies’ Home Journal and Women’s Day. Surviving Grace, Trish’s quasi-autobiographical play about a sitcom writer and her mom battling Alzheimer’s disease together, was produced at The Kennedy Center in Washington, D.C., and Off Broadway at the Union Square Theater. It is now being performed at various community theaters throughout the country, as well as in Brazil.

Founded with her husband George Vradenburg, UsAgainstAlzheimer’s was born out of their passion to fight back against Alzheimer’s disease, which Trish’s mother, Bea Lerner, the wife of her father Joseph H. Lerner, succumbed to in 1992. Trish’s unique whimsical style, the perfect complement to George’s more serious side, was instrumental in leading the organization on a path to make meaningful progress against a disease that caused their family so much pain.

Trish was a gifted and relentless advocate. She helped achieve increased funding for Alzheimer’s research and build a growing public-private consensus that a cure for the disease must be reached by the year 2025. Recently, she spearheaded the launch of the Alzheimer’s Party, imploring members of Congress to join a bipartisan movement to end Alzheimer’s disease.

Trish also served on the Council of Theater J and on the boards of DC Vote and the Vradenburg Foundation.

This Power House Couple Will Be Missed

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Trish and George Vradenburg

She is survived by her adoring husband George; daughter Alissa Vradenburg and son-in-law Michael Sheresky of Los Angeles, CA; son Tyler Vradenburg and daughter-in-law Jeannine Cacioppe Vradenburg of Chicago IL; grandchildren Harrison Sheresky, Skyler Sheresky, May Vradenburg and Gavin Vradenburg; and her brother Rabbi Michael Lerner and sister-in-law Cat Zavis of Berkeley, CA. She was preceded in death by her father, Judge Joseph H. Lerner, and mother, Bea Lerner.

Private family funeral services will take place later this week in Los Angeles, followed by a public memorial service in Washington, D.C., on May 9 at a venue to be determined. Family and friends will be honoring Trish’s legacy; details will be shared as they become available.

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UsAgainstAlzheimer’s is an innovative, patient-centered non-profit demanding – and delivering – a solution to Alzheimer’s. Driven by the suffering of millions of families, UsAgainstAlzheimer’s presses for greater urgency from government, industry and the scientific community in the quest for an Alzheimer’s cure – accomplishing this through its own patient-centered effective leadership, collaborative advocacy and strategic investments.

Founded in 2010, UsAgainstAlzheimer’s has worked across sectors to: (1) secure the national goal of preventing and effectively treating Alzheimer’s by 2025; (2) help secure nearly $1 billion in additional public funding for Alzheimer’s research over the past few years; (3) drive global efforts that resulted in the leaders of the world’s most powerful nations, the G7 group, to embrace a similar 2025 goal and to call for greater levels of research investment and collaboration; (4) transform the system of Alzheimer’s clinical trials for greater speed, efficiency and quality; and (5) forge a global process of industry, regulators and payers to bring greater clarity to the approval and payment of innovative medicines for Alzheimer’s.

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Re-Imagine Life with Dementia

Re-Imagine Life with Dementia

on Alzheimer’s Speaks Radio

041817 ASR graphic 1pm DAA Karen Love Robert Bowles

Karen Love is the Executive Director of the Dementia Action Alliance, a non-profit, charitable organization working to make dementia symptoms better understood and accommodated as a disability, improving support for individuals and families living with dementia, eradicating stigma and ensuring full inclusion in all matters concerning living with dementia.                               

Robert Bowles is a retired pharmacist and past President of the Georgia Pharmacy Association. In 2012, at the age of 64, he was diagnosed with Dementia with Lewy bodies. Both of Robert’s parents had dementia.

Contact Information for Dementia Action Alliance (DAA):

www.daanow.org,               info@daanow.org

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Families After A Holiday Get Together

Families After A Holiday Get Together

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I fell in love with these “Eggcellent” Emoji Eggs.

Family gatherings can ignite so many different emotions. Throw the concerns over a loved one with a chronic illness like dementia and your head can start spinning.

Which Egg are you feeling like and why?

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Meet Lori La Bey at Maria Shrivers

Event in Orange County, CA

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