A Recorded Conversation With Those Diagnosed
It’s FREE & Easy! CLICK HERE to watch the webinar
We discussed how to live better with dementia. What can others do to help. We discussed the Memory Impairment cards many use; as well as some different dementia initiatives both grassroots and medical models.
Meet Our Team
Our Experts Actually Have Dementia
Harry Urban , Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.
Steve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.
Dena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.
Michael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.
Dementia Chats Hosts
Lori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving. Her mother has struggled with dementia for over 30 years and she is now in her end stages of the disease.
Elion Caspi, has a website called Aggression Between Residents with Dementia He will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations.