This is a comment from one of our readers, Gina. If you can offer some support or guidance please respond to this post.
“I feel really desperate to speak to anyone in a similar situation. My husband has early onset, he was diagnosed just over 2 years ago. He is now 60. We have a young family, children between the ages of 5 -12 years. I am finding it harder and harder to cope with as he has got worse. Each child is struggling with their fathers illness. So far I haven’t had much support with this as where we live, quite rurally the adult services and childrens services don’t seem to cross over. I haven’t yet met anyone in the situation we are in and neither have our local agencies. Please be in touch if you can share experiences.”
Your assistance here is much appreciated!