The Power of Dementia Chats!
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Below is a comment that is usually kept private in Memory People on Facebook, but I asked permission as the power of these words I believe might be able to help others. They brought tears to my eyes. I hope they touch you as well. I want to thank Lucy Rawlings and her family for her comments and willingness to share this touching story with us.
This is the note authorizing permission to print, but also has a great message wrapped in Lucy’s words as well.
Sure Lori, please do. If you just knew how my kids just did not want to know about their Grandfathers AD. It was taboo to even raise the topic in family conversation. Dena helped them to see that young people get this disease too and one of my daughters is 15 years old just like Dena’s so when she heard that on this Chat she cried so hard. But they fact that they are speaking with their friends about AD and they are at the point where they are sharing their experiences with my Dad and learning from their friends experiences just blows me away. This taboo subject is now being talked about. Dena connected with them in a way I never could. I want them to be involved in our family discussions about my Dad, not be be afraid or run away. Now they are. I am so appreciative for this everybody.
Her is Lucy’s original comment:
Hey everybody, I just wanted to say that my family watched the recording of this weeks Dementia Chats with Lori La Bey this morning and we were blown away. Wow what an amazing discussion. My Mom hangs on every single word you say Harry Urban, she loves to hear you speak and asked me to tell you this. My teenage kids who up until they saw Dena Soseman Dotson on Dementia Chats, would not even discuss their Grandfathers AD (My Dad) with anybody as it was an older persons disease only in their minds. Now they have watched their second Dementia Chats with me and my daughters are so taken with Dena and have learned so much from listening to her. My youngest daughter came home from school Friday to tell me about her friends grandmother who has AD and how they talked about it in school! So Dena you have given my kids the courage to learn and speak about dementia, thank you. And Steve Ponath, you are such an amazing and powerful speaker. You have suffered so much with your EOAD and our country has been so cruel to you. Your personal account was so powerful. Anybody who has not heard this webinar you will find the link to the recording on Loris page. Please listen. The four most powerful advocates I have ever heard speak! Thank you for all you guys do.
Lucy’s comments in wrapping up:
I needed to say this because I want other families to benefit from the Dementia chats like we did. My Mom was so upset at Christmas when Dad did not want the tree and decorations in their home. When she listened to Harry speak on the Dementia Chat that focused on the holidays and how he can have some difficulties with the extra noise and lights….she was not so scared anymore. She understood more. We all did. And now my kids are talking with their friends about their Grandfathers AD and learning about their friends family members whose lives have been touched by dementia too…has changed the entire dynamic in my family about AD. My youngest daughter now realizes that this disease can touch everybody regardless of age and that its ok to have Ad and its nothing to be scared of, but its important to speak about it and discuss it.
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