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Alzheimer’s — A Part Of The Plot?

By: Michelle Remold

One of my hobbies is collecting quotes. I started this hobby in college as a way to pass the time, but now I have a book to write quotes in that I hear or read. There are a few quotes that have stayed with me, however there is a quote by Ashleigh Brilliant that became one of my favorites because I liked the humor related to it, but I have also learned the truth behind it as well. The quote I am referring to is, “My life has a superb cast, but I can’t figure out the plot.”

This was one of the first quotes I wrote in my book. Being in college, a humorous side to this quote stuck out to me, in fact it still makes me smile. I remember thinking about people I met in college and trying to figure out how they might play a role in my life later on. Truthfully, outside of the group that helped me present my Memory Trunk program in nursing facilities and adult day centers and a few other friends, I still don’t have an answer for the roles everyone else has in my life. If nothing else, they helped make me the person I am today.

When I read the quote now though, it seems to have a different maybe deeper meaning. There are some people who have been in my life that have impacted it greatly. As I have written about before, my grandpa had Alzheimer’s when I was growing up and is really the reason I even became interested in the gerontology field. I have had many great-aunts and uncles who have taught me numerous things and a great-grandma who lived to be 97, who helped me realize it’s the small things in life that make it enjoyable, like sausage pizza. My life was also touched by dementia a second time with my dad’s mom, which taught me that though you may know something, you can always learn more.

In a way this quote also makes me think of Alzheimer’s. Alzheimer’s affects and touches everyone differently, including caregivers. I’d be lying if I said that I didn’t wonder why or what was supposed to come as a result of the disease both times it touched my life. The fact is that I did wonder this. My grandpa’s diagnosis led me to what I would eventually choose as a career. I don’t know what direction my grandma’s dementia will take me in yet and I have realized that that is okay.

I have learned that sometimes life isn’t meant to be figured out. Sometimes you just have to let the plot roll out in front of you. It sounds weird to say, but in my life Alzheimer’s has almost ended up being a blessing in disguise. It has taught me many life lessons and has brought me closer to family. It has taught me how to leave my reality and enter a completely different one. It has taught me patience, compassion, when to just not say anything, and the value of just listening.

Honestly, I do think my life has a superb cast of friends, family, cousins, coworkers, grandparents and mentors. I wouldn’t trade any of them. Another part of that cast who isn’t always welcome, is Alzheimer’s. I don’t doubt that my life will be impacted again by Alzheimer’s and that it will happen in a variety of ways. One thing I know though, is that I will learn from it, that somehow it will play a role in the overall plot of my life and that I will have my superb cast right there with me. After all, I just want to enjoy life while I can and help as many people as I can while I am here.

 

??????????????????????????????? Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Geriatric Social Work from Minnesota State University Mankato.

GMO Information – Dr. Oz Needs Your Help!

dr_ozHe is being threaten for exposing Genetically Modified Organism known as GMO’s.  This has been a hot topic for years.  Few of our food products are natural anyone.  It’s important Dr. Oz’s voice and others be heard on this topic, if for no other reason then the right to free speech here in our county.

Each individual has the right to know and right to decide what is best for them.

lori_with_radio

I Typically Try To Stay Neutral

But I can’t in this case. 

Haven’t you wondered what is causing dementia?  Is it our food?  Our cell phones?  All the wireless transmission?

I have thought a lot on the cause.  Is it that we just have better technology toady and the disease has always been this prevalent?  Is it that we are defining our terminology in diagnosing the disease?

Or could it be GMO’s?

Or maybe all of the above?

No Matter What The Cause, All We Do Know Is

Non Of The Research Knows For Sure

I believe it’s important the general public has access to all information.

If You Agree – Check Our This Petition Below

Click on the Picture Below

DR_OZ_petition_tape_over__mouthSee if you want to sign it.

I Did!

Check out the DR OZ SHOW this Thursday when he addresses the threats he is getting because he is talking about GMO’s.

Thanks for taking the time to consider my call to action.

Lori La Bey, founder of Alzheimer’s Speaks

For information on

Dementia & Caregiving

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Alzheimer’s Speaks Radio

021015 ASR MEmeory and Company fit kits

Click_above_to_listen_buttonTuesday, April 21st, 2015

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

This is being replayed as it is a great information!

Alzheimer’s Speaks Radio where the voice of all is heard and respected.  We love sharing great resources, ideas, products, services, tools as well as hearing your thoughts and ideas.  If you have something you think would help the dementia community lease contact me.

Ashley Kwong recognized a missing and very needed area in the health care industry.  A Health Club for people with Alzheimer’s disease and related dementias. Come learn on how and why she created “Memory & Company.” You will see Ashley is a dedicated, empathetic person, who is very passionate about improving the lives of seniors, especially those with Alzheimer’s disease and related dementias, dedicating her life to this cause.

Mail at: Memory & Company 100 Renfrew Dr. Suite 110, Markham Ontario, Canada L3R 9R6

Phone:  905-888-8808

Our second guests are Karen Love co-founder and Kelly Sheets of FIT Kits® which provide dementia engagement products that are research, tested and developed with the mission of helping people living with dementia to live more fully.  FIT Kits®  believes everyone has within them the ability to ignite the spirit in someone living with dementia.

There is no known cure for Alzheimer’s

But thanks to clinical trials, advances have been made. More medicines are needed to provide patients, caregivers and their physicians with treatment choices.

Click Below To See If You Qualify For A Trial

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Join The Purple Angel Project

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For more information on Dementia and Caregiving

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The “No Longer List”

When Dealing With Dementia

By Cheryl Siciliano

Thank you all for helping get to this point in my journey with Mom.

  1. I no longer have to be right about anything.
  2. I no longer insist on matching clothes.
  3. I no longer try to explain everything.
  4. I no longer cry in front of Mom.
  5. I no longer correct her.
  6. I no longer apologize for her actions.
  7. I am no longer uptight.
  8. I no longer mention outings or parties more than a day in advance.
  9. I no longer think I am the only one in this battle.
  10. I no longer get mad or frustrated.
  11. I no longer try to control her spending.
  12. I no longer question.
  13. I no longer feel guilty.
  14. I no longer feel bad about the past.
  15. I no longer fear her.

I’m o.k. for now!

Thank you Cheryl for sharing the wonderful lessons you have learned on your journey with your own mother. Below is a bit of back story on Cheryl and her personal journey with dementia. Lori La Bey Founder of Alzheimer’s Speaks

I’m Cheryl Siciliano from Billerica Massachusetts. I am married to a firefighter who works 2 jobs so that I can be home to care for my Mom who is 80 years old. I also take care of my precious granddaughter who is 8 months old.  I was really the only logical choice as caregiver. My other siblings all work full time.

If truth be told, None of had a great relationship with our Mother. Our childhood was complicated with so many moves across the Country. We never stayed in one place long enough to develop long friendships. I attended 12 different  schools in 12 years.

My Mother self medicated with alcohol and prescription meds. She made some bad choices. It wasn’t until her 70’s that she mellowed out . I was in Massachusetts and my Mother and Stepfather lived in Florida. We saw them in small doses. I have struggled my whole life with the fallout from her manic episodes and was happy to be 1000 miles apart.

Fast forward to 2014. My stepfather passed away 2 years prior. I was beginning to hear strange stories about my Mother not eating. Living in an apartment after losing her home. I tried to ignore and hope it was not true. My sister who lived in Florida at the time told me she was getting very forgetful and the apartment manager was concerned.  I went regrettably to Florida to see for myself. It was awful. Her quality of life was dreary at best. She stopped driving (thank God). With that she lost a connection with her daily life.

In June I decided My Mother should come to stay for the Summer or at least until we could come up with a plan.  She was diagnosed with Dementia / most likely Alzheimers.  The first 6 months were terrible. I read everything I could to  cope and provide the best care. It wasn’t until after reading daily posts from Memory People that I realized I wasn’t alone. I learned to let go a little bit at a time. It all started coming together. My list of 15 “I NO LONGER’S” were just  little pieces of a puzzle that started becoming clear to me. I look back and can not believe how brutal I was. I am in a better place now. I am still sad that it took this long to come to grips and accept My Mom. I set myself free from the past. I am now able to find enjoyment with my Mom. She loves me. She needs me. I will always be here for her. This is some divine intervention because I was a very hurt daughter.

We have both been given a second chance at love.  I am so grateful for the progress in our relationship. It sounds weird to say that about a women who is in later stages of dementia but that is the mind and we are dealing with our hearts.

Become  A Purple Angel

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Kickoff Event For Dementia

Roseville, Minnesota

April 23rd, from 1pm to 3pm

Rsvl_ACT_Kickoff_flierClick Above For More Details

community leaders share their approach to assisting residents dealing with Alzheimer’s Disease and other types of dementia.

Come learn what is new, how it is helping. and how you can get involved.
Learn about free movie sessions and discussions with local experts.
Learn how you can help make Roseville a dementia friendly community.

For more information on Dementia and Caregiving

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HI Everyone,

Lori La Bey of Alzheimer's Speaks & Senior Lifestyle Trends

So sorry to have to cancel the webinar today, but I have the crud and no voice.  We will be back up and running on April 28th.  In the mean time, if you want to watch any of our archived shows click on the logo below and you will be taken to Dementia Chats Home page.  Scroll down you will find past webinars.

Lori La Bey

founder of Alzheimer’s Speaks and Dementia Chats

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For more information on dementia and Caregiving

Click Below

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A Gift Given By One Of Our Heroes Living & Dying With Dementia 

Tuesday at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

040715 ASR Tribute To Dena Dotson Life

Alzheimer’s Speaks was sadden with the loss of one of it’s experts living with dementia.  On April 1st, 2015, Dena Dotson planned to leave this world in hopes of a better life.  Although everyone may not agree with her decision, it is important for us to honor her work and advocacy to improve the lives of others living with dementia. We will not judge her decision but accept the fact that none of us can really know what decision we would make if to walk in her shoes.

Today Dena no longer suffers from the symptoms of dementia which made her life unbearable. Today we  celebrate the gifts she gave us while here and grieve her loss together as a community.

Please note this is a replay so you won’t be able to call in today.

For more information on dementia and caregiving

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