Dementia Chats Recording From May 26th, 2015

052615_DC_harry_Robert_Paulan_LoriToday we had some technology difficulties and got a late start, but we did get together for one hour.  Our discussion was about medications, being ones own advocate and a need for more education and support for those living with the dementia.

For More Information on Dementia Chats or to Review Past Sessions

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 “A nation joined will make the difference.”

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 Dear DAA Friends & Partners:

We received a grant from the Harvey Picker Center of Innovation & Applied Research in Long-Term Care to gather feedback from people living in the United States with dementia, as well as family and friend care partners, on their priorities and preferences for accessing and utilizing information resources.  This collective feedback will be used to determine how best to make resource materials about living well with dementia available for people across the country.

Please disseminate this Invitation throughout your Organization and Professional Networks.

The Survey needs to be completed no later than June 26, 2015.  

Please complete a short on-line survey regarding your priorities & preferences for information and resources about dementia care and services.                          ​




All information will be kept confidential and only used to collectively inform the resources that would be most meaningful to you.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on http://daanow.org/survey/ .

Sincerest Appreciation for Sharing this Request with Your Colleagues and Networks,

Jackie Pinkowitz; Karen Love; Jill Harrison; Walter Coffey; Chris Laxton; Chris Perna

DAA Leadership Team

The Dementia Action Alliance is committed to helping people live fully with dementia and supporting those who care about them.  We are a volunteer coalition engaged in changing our nation’s understanding of and attitudes about dementia through serving as a trusted source for education, conversations, and advocacy.  It was founded and is led by five organizations with person-centeredness at the heart of their missions:  CCAL-Advancing Person-Centered Living; Planetree; The Eden Alternative; AMDA, the Society for Post-Acute & Long Term Care Medicine and LeadingAge Georgia.

Looking for A Way To Raise Awareness?

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You could make a difference for your loved one with Alzheimer’s.

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Join Dementia Chats

DC_HQ_062714_solidyellow2 color photosClick Above To Learn More About Dementia Chats

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates. Our Experts are those diagnosed with dementia.  Come ask your questions or state your opinions.  We always have interesting conversations that are enlightening.

Come join us at 3pm EST, 2pm CST, 1pm MST, 12pm PST and 8pm London time

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On Dementia and Caregiving


Alzheimer’s Speaks Radio –

May 26th, 2015

052615 ASR jean lee alz daughter richard morgan edge of life

Click Above – Join the Show Live Or Listen Later

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

We are thrilled to have our two Authors on the show today.  Both with unique perspectives filled with inspiration and hope that focus on our relationships.

jean leeejean lee alz daughter book cover 2The first hour, we will be talking with the Author of the Alzheimer’s Daughter, Jean Lee.  She wrote her book because it was the type of book she needed to read while on her own caregiving journey, but couldn’t find. Join the conversation and learn more about this tender and truthful story which offers its readers solace and comfort.

Follow Jean on Twitter @JeanLee18

Visit the Alzheimer’s Daughter blog      Alzheimer’s Daughter Facebook page

richard morganrichard_morgan_book_coverOur second guest will be Richard Morgan an Author of 18 books, but today we will be discussing his book, AT THE EDGE OF LIFE; Conversations when Death is Near. Richard is a “retired” hospice chaplain and currently volunteers doing hospice work.  We would love for you to join the conversation!

Check out Richards Website 

or Phone Richard at:  724-864-4205

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Memorial Day Weekend –

flagThoughts of Loss and Legacy

As I sit at the lake overlooking the glistening water, I can hear the loons sing and the leaves whisper in the breath of the breeze.  The cabin, was my parents’ home.  Their and pride and joy.   They loved every blade of grass, each deck board and shingle.  They would reminisce about each tree planted, the hummingbirds as they returned annually to dance in their windows and the eagles that soared overhead.  The cabin, their home triggers strong memories for me and my family. lake 1My Father has been gone since 2001, but it feels like yesterday I was visiting with him.  When I sit in my Father’s recliner or walk on the steps going down to the lake I still feel my Dads presence.  I see him working in the sun alongside my brother and his friends positioning each rail road tie, hearing the ting, ting as the sledge hammer hits a post securing the beams.  I see them gather to have a beer, gaze at their work and share a joke.  I see my mother watching them like hawk, yet preparing food for the boys hard at work knowing they will soon be hungry. 2013-04-18 10It’s been a year and one half since Mom passed, but much longer since she has been able to come to the cabin due to her dementia.  I see her various collections throughout the cabin and open the vanity and get a rush of her favorite perfume, “Timeless.”  I see her prized ceramic pieces set around the house… a soup tureen on a hutch, a lion by the patio door and visualize her large Christmas tree which she used to store in her closet but now has a new home with my holiday decorations.  Each makes me smile, remembering how she loved taking ceramic classes and the times we shared doing it together.  I can see her sitting in the livingroom, just absorbing nature and I feel her peacefulness presence. lv dr  1 It’s hard to believe we have the cabin for sale.  I’ve been coming here for over forty years.  It’s large piece of my life, yet I’ve had to accept things have changed.  My parents aren’t physically here.  I’m pulled at were to be on this Memorial weekend.  Here at the cabin were I feel their presence or in town visiting the cemetery.  I chose the lake as they would never miss a holiday weekend. As I sit here soaking in all the memories, reliving many exceptional times it made me think what Memorial Day means to me.  I know it is meant for our service men and women, but I believe it triggers remarkable moments we have had with all the people in our lives. flag memorial dayThis is how Memorial Day touches me personally.  Although my Father was a Veteran, my Mother was not.  Each is equally important to me and I mean no disrespect in any way to those that have served us so well.  I want to extend a heartfelt Thank You filled with gratitude to each Veteran who has made such great sacrifices and committed to keeping us safe. Each is a beautiful gift to the world and those you have served.

These Words Below Represent Memorial Day To Me

M – Magnified And

E – Everlasting

M – Moments.

O – Officially

R – Remarkable.

I – Integrated And Life

A – Affirming To Our Hearts

L – Legacies Of Love.

D – Delicious

A – Adventures Which Are

Y – Yours To Keep Forever.

Join an Alzheimer’s disease clinical trial today.

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051915 ASR Can Dementia really be a gift  Maggie replayCan Dementia Really Be A Gift?

Click Above  to Listen in Tuesday May 19th at:

11:30am EST, 10:30am CST, 9:30am MST, 8:30am PST and 4:30pm London time.

Alzheimer’s Speaks Radio was launched to connect people to wonderful resources, perspectives and support around the world.  Come and join the conversation or just listen in.  All episodes are archived if you can’t make the live show.

Maggie La Tourelle headshotListen to the conversation I have with Maggie La Tourelle, a writer, therapist and teacher who has worked in the field of holistic health care for over thirty years.  Her thoughts and insights after caring for her own mother with dementia are interesting to say the least.  Her book, “The Gift of Alzheimer’s – New Insights into the Potential in Alzheimer’s and its Care ,” is wonderful and shows a side to the disease many don’t think is possible.

Come join the conversation.  I promise it will be interesting and enlightening!  Maggies general website.  Please note this show is a replay.

Maggie La Tourelle book cover the gift of alzThe Gift of Alzheimer’s Website

Join an Alzheimer’s disease clinical trial today.

10313_Banner-A_320x480No insurance is needed to participate.

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Dementia and Caregiving


Recording of Today’s Dementia Chats


Click Above to Watch The Session From May 12th, 2015

Today we had a great discussion about new ideas and getting them implemented, allowing the voice of those with dementia to be fully heard and not censored, great videos on sign language for those with dementia by www.DementiaDaze.com, and tips for eating and greeting those with dementia. Lots of great information shared today.

For More Information on Dementia and Caregiving

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alzsnap_serv_072413Alzheimer’s is a Battle for Family and Friends

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