Commonalities of: Dementia, Flu Epidemic, Fiscal Cliff & Mass Shootings

What Does Dementia, The Flu Epidemic, The Fiscal Cliff

and all the Mass Shootings Have in Common?

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Person Centered Care & Dementia Beyond Drugs

Person Centered Care &

Dementia Beyond Drugs

Listen to this great conversation with two of the worlds leading experts in Dementia care. Click Here to Listen

Today we were honored to have Dr. G. Allen Power, Author of the book “Dementia Beyond Drugs: Changing the Culture of Care.” Dr Power’s is an Eden Mentor at St. John’s Home in Rochester, NY, and a Clinical Associate Professor of Medicine at the University of Rochester with us. He is a board certified internist and , and is a Fellow of the American College of Physicians / American Society for Internal

You can reach Dr. Power at the following links:

www.alpower.net
http://changingaging.org/alpower/

Our Second guest will be Judy Berry, Founder of Lakeview Ranch an amazing residential community that specializes in dementia care.  Judy was awarded by the Robert Wood Johnson Foundation with the 2010 Community Health Leaders Award.  In 2011, Judy was presented the Purpose Prize Honor Americans Over Age 60 for Making an Extraordinary Impact in their Encore Careers.  She is truly an amazing woman doing wonderful things to provide true person centered care.

You can reach Judy Berry at the following:

http://www.lakeviewranch.com

Check Out Alzheimer’s Speaks

International Collaborative

Resource Directory

 

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Alzheimer’s Speaks Radio Talks Turkey on Best Practices

Talking Turkey on Best Practices

For Dementia

I truly enjoyed the conversation with our guests today.  I get so excited hearing all the wonderful few things people are exploring to improve our Dementia Care Culture.  Listen to Alzheimer’s Speaks Radio and see what you think about the conversations.

Abe’s Garden is getting closer to becoming a reality.  Join us to hear the updates and what we can expect from this first of it’s kind facility for those with dementia.  What will set Abe’s Garden apart from other memory loss and daycare communities?  Listen in and find out and what Chairman of the Board, Michael Shmerling and Andrew Sandler, Executive Director and CEO of Abe’s Garden have to say.

Michael Schmerling

Dr. Andrew Sandler

Contact Abe’s Garden

Bethany Buchanan is the owner and the Director of Nursing of Grace Homes Residential Care Home for Seniors with Dementia and Alzheimer’s.  Bethany will explain more about how her care home is different and what she has found to work best for those with Dementia.  We will talk specifically on the chore program they use at Grace Homes             Contact Grace Homes

I get asked all the time about clinical trials and so I want to pass on this new one rolling out, by Tau RX Therapeutics, which is in it’s 3rd stage.  Here is a link which will bring you to a recorded webinar which will give you some great information so you can decide it this might be something of interest for you or your  loved one.

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Alzheimer’s Speaks Named #1 Influencer Online For Alzheimer’s

Alzheimer’s Speaks Named

                 #1 Influencer Online For Alzheimer’s

WOW!  What an honor to be amongst such wonderful colleagues,  all on a mission to shift our Dementia Care Culture.  Sharecare announced their Top Ten List for 2012.  See below who you should be following for the best information on Alzheimer’s Disease.  Don’t forget to follow Sharecare as well as they track the Top 10 Influencers in many health and wellness categories.  For the Full Article CLICK HERE.  

This goes to show we are gaining ground in the arena of Dementia,  Join The battle and help us fight the stigmas and find tools and tips for living with Alzheimer’s and of course our end goal is to secure a cure!

       

 

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Family Caregivers Unite Radio Interviews Lori La Bey

 

Dr. Gordon Atherley interviews Founder of Alzheimer’s Speaks, Lori La Bey.  Dr. Atherley syndicated radio show in Canada reaches people worldwide searching for answers and resources for care partnering.  We highly encourage you to check out his show.

Click Here to Listen to the Show

Let us know what you think of Lori’s show and others you decide to listen too.  Dr. Atherley and Lori talk about sharing resources for dementia care and how we can work together globally to shift our dementia care culture by sharing our individual knowledge and insights.  Please check out the Alzheimer’s Speaks International Collaborative Resource website.  We would love you to join forces with us to make a difference.

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Join The Conversation On Dementia Chats Saturday September 8th

Join The Conversation On

Saturday September 8th

3 pm EST, 2 pm CST, 12 Noon PST

This  session we will be discussing Dementia Awareness and like always We Want To Hear From You!

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates.

Our mission is to Shift Our Dementia Care Culture™, around the world. Our goal is to remove stigmas related to the disease by engaging people in conversation, answering their questions, listening to their comments and raising awareness in a positive light. We are firm believers in giving hope and empowering others to live with the disease not as the disease.  The general format of the sessions is interview style.

It’s easy to join us.  You just have to have internet access.   Click Here to join the session.  I recommend you hop on about 10 minutes early to secure your spot.  If you would like instructions and more information about us  Click Here   At this link you will be brought to the Alzheimer’s Speaks website. The graphic below, will guide you via the ARROW as to where to click on this page to enter the webinar.

 

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Did You Miss The Dementia Chats Webinar Today? No Need To Worry

If you missed the Dementia Chats Session today, there is no need to worry.  All sessions are FREE and recorded for your convenience.  You can go to the Alzheimer’s Speaks website to find past recordings and handouts, along with upcoming sessions.  Here is the direct link to the page where you can find the links and handouts.  We all hope you find the discussion helpful.

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URGENT! Your Help is Needed NOW to Protect Dementia Awareness

Hi Everyone,

Lori La Bey Host of
Alzheimer’s Speaks Radio

I don’t often write to ask for your help, but this is one of those times I must reach out to you.  One of the biggest advocates for dementia, Norrms McNamara has been BANNED FROM FACEBOOK.

 One man can make a difference. 

Norrms has proven that and you can too!

Norrms McNamara,  knows of which he speaks. 

He lives with the disease and has honored us all by allowing us an inside peak as to what life is like with dementia.  Norrms has helped so many people world wide with his beautiful poetry and prose, but even more so for his unwavering commitment to shift our dementia care culture world wide.

Norrms was the voice who shared with me the concept of the Memory Cafe which I brought over to the US and now they are popping up all over, as the need is so great for this new type of social support for people living with memory loss.

Norrms started Dementia Awareness Day last year and it has grow and gotten the support of individuals and communities world wide.  Here is the link for more information on Dementia Awareness Day.

This is a man who is working on dementia friendly communities and business models over in the UK.  His insights are many, his passion is endless and his purpose is powerful.

Please watch the video and then sign the petition for Norrms voice to be heard on facebook.  Facebook allows Norrms to make connections to people, organizations and communities in need; which would not be possible through other means.  Is that not one of the largest benefits to Facebook?  United people around the world…I sure  think so!  Norrms isn’t selling anything but hope and new ways to live with a disease that torments so many.  Please let his gift to the world continue.

One man can make a difference. 

Norrms has proven that and you can too!

Here is the Link to the Petition

Thank You for Your Help!

Lori La Bey

 

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Alzheimer’s Speaks Radio on Living Your Best With Early Stage Alzheimer’s

Living Your Best With Early Stage Alzheimer’s

Lori La Bey

Today we had a very exciting show today.  One which I believe will be life changing for many of our     listeners no matter what role you are playing in dementia; be you a person living with the disease, someone caring for a loved, a professional working in the industry or an interested party wishing to learn more about dementia. Everyone will feel the connection and the power they have to make a positive difference in our world and our dementia care culture.  I interviewed three dynamic women on this show: Lisa Snyder, Carole Larkin and Pat Sneller.  All are passionate in their own way about shifting our dementia care culture.

         Please take the time to listen to the show.

 

    Lisa Snyder is a Clinical Social Worker and the Director of the Quality of Life Programs for the Shiley-Marcos Alzheimer’s Disease Research Center at the University of California, San Diego where she has worked with people with Alzheimer’s and their families since 1987. In the early 1990’s when caregiver needs were receiving the most public and professional attention, she was a pioneer in developing support groups for persons diagnosed with early-stage dementia. She has since continued to facilitate these groups, research their efficacy, and publish findings on their beneficial outcomes. Her clinical efforts and research has also focused on better understanding the subjective experience of Alzheimer’s thus defying long-held prevailing stereotypes that persons with dementia have little insight into their condition. She has lectured and published widely on the subjective experience of Alzheimer’s and is internationally recognized for her work in raising awareness about the thoughts, feelings, and daily experiences of those experiencing the disease.

In 1994, Lisa began writing and publishing a seminal quarterly newsletter, Perspectives- An International Newsletter for Individuals with Alzheimer’s, at a time when literature on dementia was devoted almost entirely to caregivers. Perspectives continues to serve as a forum for people with dementia around the world to have a voice, advocate for their needs, and share their own narratives about living with memory loss. Lisa is also author of the books Speaking Our Minds – What it’s Like to Have Alzheimer’s (1999 and revised in 2009) and Living Your Best with Early-Stage Alzheimer’s (released in 2010). She is a consultant and lecturer to Alzheimer’s organizations both nationally and internationally.

Lisa is a woman I could personally talk to all day long and I truly believe you are going to enjoy this conversation.

Here are the two books Lisa has written which I highly recommend.

Click the link below for further information on the book

LIVING YOUR BEST WITH EARLY-STAGE ALZHEIMER’S

Click the link below for further information on the book

SPEAKING OUR MINDS- WHAT IT’S LIKE TO HAVE ALZHEIMER’S

SUBSCRIBE TO Perspectives Newsletter
The annual cost of four issues of Perspectives by surface mail is a suggested $20.00
donation or FREE by email.

Please complete and mail the information below to begin
a print subscription, or email lsnyder@ucsd.edu to request an electronic subscription.
Name____________________________________________
Address__________________________________________
________________________________________________
Phone/Email_____________________________________

 You can submit this information for your subscription by:

email to: lsnyder@ucsd.edu

Fax  it to: 858-246-1282 r

Mail it to:  Lisa Snyder, LCSW
UCSD Shiley-Marcos Alzheimer’s Research Center
9500 Gilman Drive – 0948
La Jolla, CA 92093

Carole Larkin, MAG = Masters of Applied Gerontology (University of North Texas), CMC ( Care Manager Certified),  CAEd ( Certified Alzheimer’s Educator), DCP ( Dementia Certified Practitioner), QDCS  (Qualified Dementia Care Specialist) and EICS ( Excellence in Care Specialist)

Carole is a geriatric care manager who specializes in helping families with Alzheimer’s and related Dementias issues. She teaches them about the diseases and helps them find options to deal with problems arising from dealing with the dementias.   Carole is  also is a certified facilitator/trainer in the Virtual Dementia Tour/Experience which screens caregivers in home care companies, assisted livings, memory care communities, and nursing homes for compassion for those with dementia, as well as trains them in communication techniques with those with a dementia. Her company, ThirdAge Services LLC, serves the Dallas/Ft. Worth Metroplex.

214-649-1392          thirdageservices@gmail.com         

http://thirdageservices.com

Pat Sneller  is a care partner for her husband, Lee, who was diagnosed with MCI in 2005 and Alzheimer’s Disease on Feb. 6, 2009.  They currently live in Flower Mound, TX where we moved to be closer to their daughter and her family.  They have two sons who still live in California with their families.

Lee’s mother, his maternal grandmother, and my father all had Alzheimer’s Disease.  Pat’s  mother had age-related dementia at the end of her life.  While none of them lived with us, they moved closer to us as their cognitive abilities declined and we were their care partners for the last years of their lives, taking care of financial, medical, legal and everyday issues for them.  Lee and Pat have been active volunteers for the Alzheimer’s Association both on a national as well as a local level since shortly after his diagnosis.

Lee and Pat were honored to ride in the Rose Parade on

January 1, 2011 on the Alzheimer’s Association/Pfizer float.  

Lee and Pat are right in the middle;

Lee has white hair and Pat is sitting to the right (his left),

with her purple glove waving to the crowd.

They continue to speak and provide educational videos whenever asked, although this will not be possible for Lee for much longer as his word-finding abilities continue to decline.  Their  message is always titled:  There Is Life After Alzheimer’s.   Pat have a BS in Business Administration from California State University, Fresno and have found her education useful in helping to develop programs and to facilitate existing programs and services for those living with Alzheimer’s or other dementia.

Pat’s most recent vision became a reality on June 7, 2012 with the help of 5 talented and dedicated Alzheimer’s professionals when the first Dallas-area Neighborhood Memory Cafe met in Richardson, TX.  Her vision includes replicating their Cafes in every Neighborhood in the Greater Dallas area.

You can reach Pat through Carole Larkin

Join Us in Shifting Our Dementia Care Culture by:

Sharing this article with your friends and colleagues on Facebook and linked.  Email this link to others of interest.  Add this link to your newsletter!  Like us Alzheimer’s Speaks on Facebook, Youtube, and the Radio Show.  Connect to Lori La Bey on Linkedin.

If you know of a Memory Cafe please contact me via the blog here as I’m in the process of putting an international directory together for them….Thanks for your help in advance!

We are all into this together and so appreciate your help in our grass roots effort to raise awareness and educate the public.

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Shifting Our Dementia Care Culture With A New Mindset – Video

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