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Posts Tagged ‘Alzheimer’s Speaks Resource Website’

The Best Friends Approach To Dementia and Memory Loss

WOW – What a great radio show today

on Alzheimer’s Speaks Radio!

011013_ARS_best_friends_approach_

Click the Graphic above to listen to the recorded show

best friends virginia david signingOur first guests are Authors David Troxel and Virginia Bell. Both of which, have spent decades shifting Dementia Care Culture around the world.  Their are best known for their book “The Best Friends™ Approach to Alzheimer’s Care: A Guide for Care Partners.”  David and Virginia will share with us many of the lessons they have learned throughout theirs years.  Check out their website to get more information and to pick up several free PDF’s along with your Bill of Rights.

Their website is  Best Friend Approach

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Our second guest is Tryn Rose Seley is a Professional Caregiver, Photographer, Musician and Author.  Tryn Rose will share with us some techniques she has found helpful when engaging people with Dementia.

Check out Tryn Rose’s EBook:

15 Minutes of Fame: One Photo Does Wonders

You can contact Tryn Rose via:

facebook.com/caregiverheart
https://twitter.com/trynrose
www.linkedin.com/in/trynrose

Please Share with Friends, Family and Colleagues

our Resource Website!

alz_spkslogofromwebsite_083112

Click the logo above to go to the site.  Use our easy share buttons to spread the word.

Together we can shift our Dementia Care Culture around the world!

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Dementia Chats Fascinating Conversations

With Those Who Have Dementia

To access the archived webinar click on the logo below.

DemChats_Logo

Today we talked about New Years Resolutions.  Are they important now that your are diagnosed?  Do you look at things differently now that you have dementia?  We talked about stigmas, the impact of diagnosis, finances, driving, anger, support groups and more.

I want to express my sincere thanks  to our Experts Living with Dementia Harry Urban, Dena Dotson, Steve Pothan; and Leeanne Chames for for helping me facilitate these meeting.

For more information on Dementia Chats you can check out our website, just click on the logo below.  You will  be brought to our Becoming Dementia Friendly page.  Scroll down and you will find all past episodes you can click on on the view.alz_spkslogofromwebsite_083112

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Alzheimer’s Speaks Radio Welcomes

Our Friend  Norrms McNamara

and Author RJ Thesman

Norrms is our friend from across the pond who is living with Lewy Body disease.  He is a leader in shifting our dementia care culture around the world.  In fact, this Saturday, September 15th, is the 2nd Dementia Awareness Day which he started and has thousands of people celebrating and campaigning for change.

For us here on Alzheimer’s Speaks we are having an Open Mic for Dementia Awareness Day on September 15th from 10am CST, 11am EST, 8am PST.  Please join us for the conversation we would love to hear your thoughts.

To listen to the show click on the white triangle in the black circle in the graphic below.

Our first guest will be Norrms McNamara from the UK.  Norrms is a Super Advocate for Dementia, an Author, Spokesman and an Expert Living with Lewy Body Dementia.  He is an amazing man making huge shifts in our Dementia Care Culture World Wide.  I promise this will be a wonderful conversation and will spark many ideas for all of us to take seriously.

Norms can be contacted through facebook or Norrms@gmail.com

Our second guest will be RJ Thesman, Author of The Unraveling of Reverend G hit bookstores and eBookstores on August 6 and tells the story of a minister who gets a devastating diagnosis – dementia with the possibility of early-onset Alzheimer’s. Reverend G struggles with the pain of forgetting those she loves and the fear of losing her connection with God. With the help of her friends at the assisted living facility, she soon discovers there’s humor to be found in forgetting part of the Lord’s Prayer, finding her iron in the freezer and losing a half-gallon of ice cream. And she discovers that while the question she wants to ask is, ‘Why,’ the question that needs to be answered is, ‘Who.’

CONTACT INFO  www.rjthesman.netrjthesman@yahoo.com

Please check out our new Resource Site

www.AlzheimersSpeaks.com

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The First Collaborative

International Resource Directory For Dementia

Alzheimer’s Speaks a Minnesota based company, launched a ground breaking platform today to shift dementia care  worldwide. The advocacy group provides education and support for those dealing with Alzheimer’s disease, dementia and caregiving.

Today, the first Collaborative International Resource Directory for Dementia, hit the internet.  The website, www.AlzheimersSpeaks.com was developed to shift dementia care from crisis to comfort, by providing a platform where individuals and organizations can easily share information pertinent to the disease and caregiving.

 

The Founder and CEO of Alzheimer’s Speaks, is Lori La Bey.  She continues to live in Minnesota  where her    mother has struggled with memory loss for thirty years and has been in her end stages of the Alzheimer’s disease for the past four years.  La Bey understands the frustrations and struggles of dealing with memory loss.  She has experienced the disconnect first hand and has committed her life to remove stigmas, ease the pain and give hope to people thrown in the trenches of this disease.

Alzheimer’s Speaks also produces and hosts a radio show dedicated to dementia, which is the first of it’s kind in the world and is featured on the website.  All episodes are archived.

 

The statistics on dementia are staggering. In the World Alzheimer Report 2009, Alzheimer’s Disease International (ADI) estimated 36 million people worldwide are living with dementia.

  • The numbers are expected to double every 20 years to 66 million by 2030, and 115

million by 2050.

  • The worldwide costs of dementia (US $604 billion in 2010) amount to more than 1% of

global GDP, according to the World Alzheimer Report 2010.

  • If dementia care were a country, it would be the world’s 18th largest economy.

 

Alzheimer’s Speaks  believes hope not fear needs to be our driving force for change.  They believe collaborative and alternative approaches push society forward in search for answers; and by working together and sharing knowledge we can win the battle against dementia.

 

La Bey believes it is time to remove the fear and provide economical services, tools, concepts and products to those in need. La Bey says, ”By working together we can improve our dementia care delivery systems, fund research as well as programs for patients and caregivers, and empower people worldwide to shift their own personal care culture to remove stigmas>”

 

The Collaborative International Resource Directory provides a variety of categories  where individuals and businesses can come together as one and share pertinent information with one another. There are FREE and for FEE listings, as well as partnerships opportunities.  Below is a sampling of categories for sharing information:

FREE Categories are:

Great Reads – Articles, Blogs, Books, Newsletters, Personal Writings, Publications

Fantastic Flicks & Audios – Audios, Films, Videos

Memory Cafes - (Memory Cafes is a sub category of Caring Support Services)

Events – Activities, Conferences, Support Groups, Webinars and Seminars

 

Fee Categories are:

Speakers, Trainers, Coaches & Consultants

Caring Support Services – Abuse & Neglect, Accessibility & Transportation, Adult Day, Advocacy Programs, Art Products & Programs, Associations & Organizations, Business to Business, Care Consultants, Clothing, Communication Systems, Education, End of Life,  Entertainment, Exercise & Fitness, Financial Services, Foundations & Charities, Furnishings, Government Agencies, Home Healthcare, Home Repair & Maintenance, Hospitals & Clinics, Household Goods, Housing Options, Insurance, Legacy, Legal Services, Mediation & Conflict Resolution, Medical Trials, Memory Cafes (FREE), Miscellaneous, Moving Consultants – Organizers & Move Managers, Nutrition, Prescriptions & Supplements, Prevention, Religion & Spirituality, Stores & Shopping Venues, Support Groups, Technology

Events – Activities, Conferences, Support Groups, Webinars/Seminars

 

People can upload pertinent information regarding dementia by going to this link:

http://www.alzheimersspeaks.com/component/resourcedirectory

For a list of information needed and instructions visit this link:

http://www.alzheimersspeaks.com/partner-with-us

We Hope You will Join

Alzheimer’s Speaks in

Shifting Dementia Care

throughout the World

 

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Tomorrow My Mother Turns 84

She is a “New Years Baby”

It is hard to believe my Mom has been in the nursing home coming up on 11 years!  The nice part is it was her decision to move in as my Father had declined with his cancer and need 24/7 care the last few months of his life.  Mom wanted to be with him, memory loss or not.  She might not have been able to pick out appropriate clothes to wear or tell time or date…but she remembered her relationship with my Father.

They had been married 49  1/2 years at the time. A goal I most likely will never hit due to my divorce but I still see as admiral and amazing. Kudos Mom and Dad for still being in love after all those years!

In all our planning as a family we some how forgot the “love” equation.   The foundation of life. The impact of our relationships which gives us purpose to move forward and thrive as an individual.  If there is one thing dementia has taught me is to never forget the “Love Equation.”  Before making any decisions I try hard to sit back and ask what is the most important thing to maintain the  relationship at hand.  It’s amazing how many things are not important that you once held tight too. And this lesson is universal and can be used throughout your life, not just for times when you are dealing with someone with dementia.

Now please know,  I’ve made my share of mistakes over this 30 year journey with my Mother and her dementia.  There is no denying that.  I’m sure if you asked any of my family or friends they would rattle off a list a mile long.  The funny thing is, like life in general it’s always easier to see someone else make a  mistake.  For me the goal is to be humble and share those mistakes with others so we all may learn from them.  That is one of the reasons I love my work so much.  Not to point out mistakes and criticize, but to have an intelligent conversation about our feelings, our struggles and our failures and insecurities; but best of all our triumphs.

There is so much we can learn from one another.  It would be a shame to miss out on these fabulous opportunities to share, collaborate and to make positive changes in our dementia care culture. 

I look forward to a fabulous 2012 ahead and expanding our community here on Alzheimer’s Speaks.  If you haven’t checked out our other platforms please do so.

Resource Website

Radio Show

Youtube

Twitter

Facebook We have a few fan pages listed if you search Alzheimer’s Speaks

Your help in spreading the word of our work would be greatly appreciated.  If you have time to “Like Us”, “Tweet Us”, “Share Us” or “Link To Us” …

Well all I can say is THANK YOU for your help in spreading awareness!

Lori La Bey Founder of Alzheimer's Speaks

Have a Spectacular New Year!

Pictures of Moms Birthday will be coming…

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The 12 Days of Christmas Care Partnering Song

To All Caregivers…

Happy Holidays

Below are the Lyrics to:

The 12 Days of Christmas Care Partnering Song©

of Lori La Bey of Alzheimer’s Speak Dec 2011

 

We encourage you to make you own version and send it to us.  Let’s see how many versions we can collect while raising awareness at the same time!

 

The 12 Days of Christmas Care Partnering Song©

 

On the 1st day of Christmas my Angel Gave to me

(And) a mind set to embrace change

On the 2nd day of Christmas the Angel Gave to me

Grace to let go

On the 3rd day of Christmas the Angel Gave to me

Coping skills

On the 4th day of Christmas the Angel Said to me

Look for the joy

On the 5th day of Christmas the Angel Gave to me

Great Insights

On the 6th day of Christmas the Angel Gave to me

Gratitude and love

On the 7th day of Christmas the Angle Said to me

Savor each moment

On the 8th day of Christmas the Angle Gave to me

Hope and compassion

On the 9th day of Christmas the Angel Said to me

Live to be playful

On the 10th day of Christmas the Angel Said to me

Self care is (cares) important

On the 11th day of Christmas the Angel Said to me

Perfect doesn’t matter

On the 12th day of Christmas the Angel Saw in me

My sanity is back!

 

The Care Partners Choir:

Deb Nygaard, Eric Olson, Barb Meyer, Charlie Meyerson Representing:

ACR Healthcare Group

http://www.acrhealthcaregroup.com/

Arthur’s white Pines Residential Care

http://www.arthurswhitepines.com/

ACR At Home Health Care

http://www.acrathome.com/

ACR Homes

http://www.acrhomes.com/

J. Arthur’s Coffee Shop

http://www.jarthurscoffee.com/

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

Anita Jader Representing:

Anita Jader Photography

http://www.mnppa.com/siteBuilder_site.cfm?siteID=126&pageID=1271

Christine Pulkrabek Representing:

Regions Hospital Foundation

http://www.regionshospital.com/rh/foundation/

Alzheimer’s Research Center

http://www.alzheimersinfo.org/

Health Partners Center for Dementia & Alzheimer’s Care

http://www.healthpartners.com/public/care/providers/cdac/

Minnesota Memory Project

http://www.mnmemoryproject.org/

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

 Danielle La Bey Representing:

Volunteers of America The Homestead

http://www.voa.org/Get-Help/National-Network-of-Services/Long-Term_Care/The-Homestead-at-Maplewood-

and Maplewood Care Center who will be opening a Memory Café in 2012

http://www.voa.org/Get-Help/National-Network-of-Services/Long-Term_Care/Maplewood-Care-Center-

 Dr. Dale Anderson Representing:

Act Happy

www.ActHappy.com

Annie Anderson Representing:

Be-Wellderly

www.Be-Wellderly.com

 Greg Pederson Representing:

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

Judy McCabe Representing:

Realty Associates

JudyMcCabe@comcast.net

Lori La Bey Representing:

Alzheimer’s Speaks Resource Website

http://www.alzheimersspeaks.com/

Alzheimer’s Speaks Blog

http://alzheimersspeaks.wordpress.com/

Alzheimer’s Speaks Radio

http://www.blogtalkradio.com/alzheimersspeaks

Alzheimer’s Speaks Youtube

http://www.youtube.com/user/AlzheimersSpeaks

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

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J. Arthur’s Memory Cafe

Dedicates a Song to

the UK Memory Cafes

In celebration of the holiday season, we at J. Arthur’s Memory Café in Roseville, Minnesota felt it was only right to show our appreciation to the UK Memory Cafés for so graciously sharing their Memory Café Concept with us. 

We are filled with Gratitude!

Although many of our members were not able to join us due to busy holiday schedule, others gladly came out to show their support in our silly but very sincere video to the UK. 

Below are the lyrics to:

The 12 Days of Christmas Memory Café Song©

of Lori La Bey and Alzheimer’s Speak Dec 2011

We encourage you to make you own version supporting the Memory Cafes and send it to us. Let’s see how many versions we can collect while raising awareness at the same time!

 

The 12 Days of Christmas Memory Café Song©

On the 1st day of Christmas the UK Gave to us

(And) A Brilliant Memory Cafe

On the 2nd day of Christmas the UK Gave to us

Encouragement

On the 3rd day of Christmas the UK Gave to us

Reason for Hope

On the 4th day of Christmas the UK Gave to us

Needs to Fill

On the 5th day of Christmas the UK Said to us

Work Together

On the 6th day of Christmas the UK Gave to us

Joy in Our Hearts

On the 7th day of Christmas the UK Gave to us

Lasting Friendships

On the 8th day of Christmas the UK Said to us

Find Those in Need

On the 9th day of Christmas the UK Saw in us

Increased Excitement

On the 10th day of Christmas the UK Gave to us

Safety Net for Many

On the 11th day of Christmas the UK Said to us

Thankful People Coming

On the 12th day of Christmas the UK Said to us

Build with Community

A Special Thank you to

Our Memory Café Choir:

Deb Nygaard, Eric Olson, Barb Meyer,

and Charlie Meyerson Representing:

ACR Healthcare Group

http://www.acrhealthcaregroup.com/

Arthur’s White Pines Residential Care

http://www.arthurswhitepines.com/

ACR At Home Health Care

http://www.acrathome.com/

ACR Homes

http://www.acrhomes.com/

J. Arthur’s Coffee Shop

http://www.jarthurscoffee.com/

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

Anita Jader Representing:

Anita Jader Photography

http://www.mnppa.com/siteBuilder_site.cfm?siteID=126&pageID=1271

Christine Pulkrabek Representing:

Regions Hospital Foundation

http://www.regionshospital.com/rh/foundation/

Alzheimer’s Research Center

http://www.alzheimersinfo.org/

Health Partners Center for Dementia & Alzheimer’s Care

http://www.healthpartners.com/public/care/providers/cdac/

Minnesota Memory Project

http://www.mnmemoryproject.org/

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

Danielle La Bey Representing:

Volunteers of America The Homestead

http://www.voa.org/Get-Help/National-Network-of-Services/Long-Term_Care/The-Homestead-at-Maplewood-

and Maplewood Care Center who will be opening a Memory Café in 2012

http://www.voa.org/Get-Help/National-Network-of-Services/Long-Term_Care/Maplewood-Care-Center-

Dr. Dale Anderson Representing:

Act Happy

www.ActHappy.com

Annie Anderson Representing:

Be-Wellderly

www.Be-Wellderly.com

Greg Pederson Representing:

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

Judy McCabe Representing:

Realty Associates

Email Judy

Lori La Bey Representing:

Alzheimer’s Speaks Resource Website

http://www.alzheimersspeaks.com/

Alzheimer’s Speaks Blog

http://alzheimersspeaks.wordpress.com/

Alzheimer’s Speaks Radio

http://www.blogtalkradio.com/alzheimersspeaks

Alzheimer’s Speaks Youtube

http://www.youtube.com/user/AlzheimersSpeaks

J. Arthur’s Memory Café

http://www.jarthursmemorycafe.com/

Happy Holidays!

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Today, Alzheimer’s Speaks Radio will talk in depth about Creative Caring and

how letting go can impact your life in significant ways. 

Please join us!

We are on the air live at 1pm EST, Noon Central and 10am PST, but you can always listen to the archived shows as well.

 Here is the link to the show!

 

“Let’s Play House” A Creative Way To Care

Caregiving Policy for a Playful Planet

Today I promise you a fascinating show!   Carlynn Reed and Jonathon Neville are two actors and dancers who have found a new way to share how they care.

Jonathon cares for his mom, Christine, who has Alzheimer.  He openly admits
“I had no love for Mom. No connection. Then I discovered Contact Dance.”

Carlynn cares for her son, Kirk and finds through letting go they are both able to begin again.

Who would have thought through an acrobatic, playful, and funny dance; these two actors and dancers would find a peaceful and promising answer to giving care.  This intense drama overlays science, dance intelligence, and caregiving igniting profound change and insights into their caring ways.  Come listen as Jonathon and Carlynn share their stories.

Check out Imagiscape 


 

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I’m Wearing Purple – How About You?



What are you going to do today to show your support for Alzheimer’s disease today on WORLD ALZHEIMER’S DAY?

Here is a list of some of my free tools & services  along with some of my favorite links:

Alzheimer’s Speaks Resources-

We would love you to show your support on our various show media venues!

Resource Website and for a FREE Your Memory Chip™:

http://www.alzheimersspeaks.com

Below is a video which explains “Your Memory Chip” works

Blog: 

http://alzheimersspeaks.wordpress.com

Radio Show:   

http://www.blogtalkradio.com/alzheimersspeaks

YouTube:   

http://www.youtube.com/user/AlzheimersSpeaks?feature=mhee

Twitter:    

http://twitter.com/#!/AlzSpks

Various Interviews:    

http://www.alzheimersspeaks.com/idx/links/topicDetails.asp?id=165

Alzheimer’s Speaks Faecbook Groups:  

Cause:  

http://www.causes.com/causes/341612

Resource website:   

https://www.facebook.com/pages/Alzheimers-Speaks-Resource-Website/184101278287199?sk=wall

Radio:  

https://www.facebook.com/pages/Alzheimers-Speaks-Radio/171719839554582?sk=wall

Additional Resource List:

People Living with Alzheimer’s and Making a Difference!

Rick Phelps – Founder of Memory People™,  a closed group on Facebook

Dr. Richard Taylorhttp://www.RichardTaylorPhd.com

Norrms McNamarahttp://www.Norrms.web.officelive.com

Barry Pankhursthttp://wwwSimpleSite.com/BarrysAlzheimers

Caregiver’s Making a Difference in Alzheimer’s Awareness

Alan Arnettehttp://www.AlanArnette.com

Bob DeMarcohttp://www.AlzheimersReadingRoom.com

Stanton Berghttp://www.JuneBergAlzheimers.com

Joseph Portelli/Jay Phttp://www.youtube.com/watch?v=mAzo2Dw-hf4

http://itunes.apple.com/us/album/1565-patiently-waiting/id307583998

MaryBeth Watson – Founder of Memory Keepers, a closed group on Facebook

Lori La Bey – J. Arthur’s Memory Café – http://www.JArthursMemory Café.com

Organizations & Foundations

Alzheimer’s Disease International ADIhttp://www.alz.co.uk/icaniwill

Alzheimer’s Associationhttp://www.Alz.Org

Alzheimer’s Foundation’s  of America- http://www.alzfdn.org

National Family Caregivers Association- http://www.nfcacares.org

Leezas Placehttp://www.leezasplace.org

AARPhttp://www.aarp.org/relationships/caregiving

The Cooper Ridge Institutehttp://www.crinstitute.org

Alzheimer’s Research Centerhttp://www.alzheimersinfo.org

Family Care Alliance –   http://www.caregiver.org/caregiver/jsp/home.jsp

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I would like to direct you to the Alzheimer’s Speaks Resource Website, where you will find a variety of resources for you.   Many are free like- blogs, radio programs, articles and tools like “Your Memory Chip™  In addition you will find, products and tools to assist you from a variety of providers from items from accessibility, DVD training programs, Music, Massage Therapy, Speakers and Trainers, Housing, Home Healthcare and more.

Here is the link:

www.AlzheimersSpeaks.com

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