Transgender Needs When Dealing With Dementia

Kaye will share her story and the struggles of living with dementia as a transgender person.  Sam will tell us how the Alzheimer’s Association is working to help this population, and together we will discuss the proper terminology and how we can remove the stigmas and build tolerance for all people living with the disease.  Come and join the conversation!

Kaye can be reached via email  kayefox@sc.rr.com

LGBT caregiver concerns      http://www.alz.org/national/documents/brochure_lgbt_caregiver.pdf

24/7 helpline – 800-272-3900

Alzheimer’s Association     www.alz.org

Caregiver Center  www.alz.org/care/

Alzheimer’s Navigator    www.alzheimersnavigator.org

Research     www.alz.org/research/overview.asp

WALK to End Alzheimer’s     www.alz.org/walk

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Dementia or General Life Distractions? How Do You Know?

Dementia or Life Distractions? 

How Do You Know

Roshini Rajkumar host of News and Views on WCCO Radio interviewed Lori La Bey of Alzheimer’s Speaks, the #1 Influencer online for Alzheimer’s disease according to Dr Oz and Sharecare.  Today they discussed a few symptoms pertaining to early diagnosis, stigmas and some resources.  Below we have listed the links for the your convenience. Click the link to listen to Roshini’s interview with Lori.  To go directly to Lori’s interview with Roshini, go to about 19 minutes on the show.

For Additional Resources go to:

Click Here to find an Alzheimer’s Association in your country

Alzheimer’s Disease International for the World Alzheimer’s Report 2012.  Below is the fantastic video ADI did on removing stigmas of Dementia.

The Alzheimer’s Association website and review their  10 Warning Signs of Alzheimer’s. Here you will find an easy format the top ten symptoms with a brief description of what is normal and what should be looked into further.  This comes in a great format to share with your Doctors called- Doctor’s Appointment Checklist.  While on this page make sure to open the Principles for a Dignified Diagnosis.  

You can always call the Alzheimer’s Association at:   24/7 Helpline:  1.800.272.3900

Check out Dr. Oz and Sharecares Top 10 Influencers on Alzheimer’s List just released November 5th, 2012.

Go to Alzheimer’s Speaks to get several FREE  TOOLS.  Just click on the free tools button on in the upper right hand corner.  If you are interested in becoming a Dementia Friendly Business we would love to share with you how your company can make a difference to those with memory loss.

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Exclusive Movie Screening of the New Film “Alive Inside”

Tuesday, Nov. 13 the Alzheimer’s Association will host an exclusive screening of the film Alive Inside from 5:30-7:30 pm at the University of Colorado Terrace Room 1380 Lawrence St, Denver, CO 80202.

Alive Inside captures the transformation that takes place when nursing home patients are handed iPods loaded with music from their youth. For a preview of the film, go to YouTube Alive Inside.

Space is limited so please RSVP to Robyn.moore@alz.org

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Dementia: What You Need to Make Person Centered Care Real

Dementia: What You Need to

Make Person Centered Care Real

Debbie Richman with the Minnesota-North Dakota Alzheimer’s Association was our guest today. She has a great background and a wonderful attitude on how to live well with dementia, not as the disease.  I heard Debbie speak for the first time about two months ago and was so impressed with her insights and ability to communicate simple techniques which bring respect, dignity and a sense of calm when dealing with Dementia I just had to have her on the show.

Here are just some of things we will be discussing:

1. What needs to happen for care to be truly “person centered”?

2. What are the barriers to person centered care?

3. What can family/friends do to facilitate a more person centered environment for their loved ones?

4. How does a person centered focus help to improve communication and lessen challenging behaviors?

5. How do I engage or assist others to engage the person with dementia?

To Listen to the show click on the triangle in the

round circle in the graphic below

 

 

Debbie can be reached

http://www.alz.org/mnnd/

Email: deborah.richman@alz.org

Phone: 952-857-0551

The National Alzheimer’s website is http://www.Alz.Org

24/7 Helpline: 1.800.272.3900

Remember all shows are archived for easy listening

We appreciate your help in liking us on Facebook, tweeting about us and/or forwarding the show to your friends and colleagues.  Together we can make a difference and change our Dementia Care Culture from Crisis to Comfort!

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20 Memory Care Experts on Caring

Assisted Living Today wrote a great article check it out!

The Caregiver’s Guide to Alzheimer’s Disease:

20 Memory Care Experts on Caring

Caring for loved ones with Alzheimer’s Disease or Dementia can be a confusing, emotionally taxing and overwhelming experience for caregivers and family members. Often, it’s tough to know where to turn to get the best, most informative answers to your questions about Alzheimer’s care. With that in mind, we reached out to 20 memory care experts to tap into their years of experience and collective advice on the topics of Alzheimer’s Disease, Dementia and memory care. We asked each of our 20 experts three important questions on memory care and compiled their answers into a comprehensive caregiving guide to Alzheimer’s Disease and Dementia.

Click Here to go to Assisted Living Today to the article

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Alzheimer’s Speaks Radio on Genetics & Memory People

We Will Discuss Genetics & Alzheimer’s Disease

Plus Get An Update From Rick Phelps, Founder of Memory People

One known Alzheimer’s risk factor is family history, and research has shown that those who have a family member with Alzheimer’s are more likely to develop the disease.  Our understanding of genetics is rapidly evolving and research is now working to identify ways that genetics may be used in the diagnosis of Alzheimer’s.

The Alzheimer’s Association, New York City Chapter is hosting an event featuring a panel of experts who will engage in an interactive discussion on the role of genetics in Alzheimer’s disease, including how genetics is influencing diagnosis and research today on Wednesday, March 14.  “The Role of Genetics in Alzheimer’s Disease: An Evolving Landscape”

Our guests today will share with us what panel discussed at the conference.

Dr. Richard Mayeux, Chairman, Department of Neurology and Co-Director, Taub Institute for Research on Alzheimer’s Disease and the Aging Brain, Columbia University

Jennifer Williamsonworks closely with Dr. Mayeux at Columbia University as a genetic counselor at the Taub Institute for Research on Alzheimer’s Disease and the Aging Brain at Columbia University

http://www.cumc.columbia.edu/dept/taub/

The 2nd half of the show will feature Rick Phelps, Founder of Memory People and Gary Joseph LeBlanc, Author.  Both will be sharing some exciting ventures.

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Wilder Memory Club New Sessions Start in February

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Two Memory Café Events – Alzheimer’s Patients & Caregivers – Roseville Minnesota

Two Memory Café Events –

Alzheimer’s Patients & Caregivers – Roseville Minnesota

 

Saint Paul, Minn., July 09, 2011 – AlzheimersSpeaks.com, a leading provider of education and support for Alzheimer’s patients and their caregivers, ACR Healthcare Group, The Alzheimer’s Research Center, The Minnesota Memory Project, and The Center for Dementia and Alzheimer’s Care of Health Partners, today jointly announced the opening of the United States’ first “Memory Café.” The Café will give Alzheimer’s patients and their personal caregivers the opportunity to meet and provide mutual social support to one another.  To launch the Café, the group has arranged two open houses for the public which are free of charge.

Lori La Bey, founder of AlzheimersSpeaks.com, has dealt with memory loss through her mother’s thirty year journey with dementia.  “When my mother was first diagnosed with memory loss years ago it was nearly impossible for me to find information about the disease or caregiving.  We need to create community through unity and give care to those dealing with Alzheimer’s.  We need to do it now because there is no time to wait for a cure.   The numbers are rising and the needs of patients and caregivers are sky rocketing.”

Visit J. Arthur’s Memory Cafe for Full Article

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Your Input Is IMPORTANT… Don’t Miss Your Chance To Be Heard on Alzheimer’s

Your Input Is IMPORTANT… 

 Don’t Miss Your Chance To Be Heard!

The National Alzheimer’s Project Act, the federal government is undertaking a historic effort to create a comprehensive strategy to overcome the Alzheimer’s disease crisis.  

But officials creating the National Alzheimer’s Plan need to hear from people like you!

The Alzheimer’s Association will submit all comments received through this  website to the U.S. Department of Health and Human Services so that they know what you want to see in a National Alzheimer’s Plan.

Click Here and let your Voice be HEARD!

 

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