This is a listing of upcoming public events I think you might be interested in regarding Memory Loss
August 29th 3pm-5pm
The Care-Together-Cafe
May 15th & 16th, 2012
Brainerd, MN Conference
Come join the fun at The Wellstead of Rogers & Diamondcrest Senior Living
for an interactive presentation on professional ethics.
May 24th, 2012
Lori La Bey Founder and CEO of Alzheimer’s Speaks will be presenting.
Check out the flier below for more detail or if you would like Lori to come to your town please contact her via the blog or her website.
Caring for a Person with Memory Loss Conference
June 2nd, Minneapolis, Minnesota
CARING FOR A SPOUSE WITH MILD COGNITIVE IMPAIRMENT: DAILY CHALLENGES, MARITAL RELATIONS, AND PHYSIOLOGICAL INDICATORS OF HEALTH |
Join the LIVE webinar to be held April 2, 2012, Noon Eastern at www.alzpossible.org/wordpress-3.1.4/wordpress/webinars-2/caring-for-a-spouse-with-mci/ |
Mild cognitive impairment (MCI) is a term used for early decline in memory and in the abilities to carry out a series of steps in sequence and make appropriate decisions. It is an ambiguous condition because often the person with MCI appears to be healthy and able to function normally in many ways, yet begins to show some signs of memory loss, confusion, and apathy. Physicians usually cannot predict whether or when the MCI might worsen.
The changes associated with MCI are likely to affect spouse care partners as well as those with this condition. Research to be presented during this Webinar examined the effects of having a spouse with MCI on older care partners’ physical health, psychological well-being, and marital relationship. A unique feature is the daily diary approach used to gather the data. Thirty care partners responded to telephone interviews on each of seven consecutive days. They also provided saliva samples five times throughout the day on four of the interview days. Lab tests of the saliva revealed the amount of cortisol and alpha-amylase, hormones indicating stress, at different times of the day and across the days. Sustained high cortisol levels can be detrimental to health. Thus, we had evidence about the effects of caring for a loved one with MCI both from answers to interview questions and from indicators of physiological responses to stress.
Providing support to a loved one encountering cognitive difficulty often requires significant changes in everyday roles and responsibilities. These minor but cumulative changes, have a cascading effect on family relationships and psychological health, and take a toll on the care partner’s physical health. Health workers and other professionals could use these findings to encourage care partners to get needed help and find ways of coping with stress.
The Alzheimer’s Association and the Commonwealth of Virginia Alzheimer’s and Related Diseases Research Award Fund supported this research.
Dr. Tina Savla will present the topic on Monday, the 2nd of April, 2012, Noon Eastern; discussion will be moderated by Dr. E. Ayn Welleford.
More Information and registration at: www.alzpossible.org/wordpress-3.1.4/wordpress/webinars-2/caring-for-a-spouse-with-mci/
Seating is limited so reserve today! Webinar is free and open to all!
Nico Stanculescu
Virginia Alzheimer’s Commission’s AlzPossible Initiative
May 3rd & 4th, 2012
CARING FOR A PERSON WITH MEMORY
LOSS CONFERENCE REGISTRATION
Saturday, June 2nd, 2012 Mayo Auditorium, University of Minnesota, 8:00 AM to 4:30PM
This is a listing of upcoming public events I think you might be interested in regarding Memory Loss
Caring for a Person with Memory Loss
A Free Bi-Annual Educational Conference
Saturday, June 4, 2011
Mayo Memorial Auditorium
University of Minnesota
425 Delaware Street SE
Minneapolis, MN 55455
Join experts in a lively, informative discussion related to memory loss, care giving tips, and what you can do to help. The goal of this conference is to provide information, support, and education for adult children, spouses, parents, community care providers, and other individuals concerned with caring for persons with memory loss.
Registration
There is no cost for this conference for participants who do not want contact hours, but pre-registration is required. To RSVP your attendance, click here. If you RSVP on behalf of others, you must complete a new form for each person to be registered for the conference.
Program Schedule
8:00-8:30 a.m.
Continental Breakfast and Welcome
Joseph E. Gaugler, PhD
8:30-10:00 a.m.
Effective Home Care for Persons with Memory Loss
Ed Ratner, MD
10:00-10:15 a.m.
Break
10:15-11:45 a.m.
Keeping Persons with Dementia Active
Monica Heltemes, OTR/L
11:45 AM-12:45 p.m.
Lunch
12:45-2:15 p.m.
Addressing your questions regarding memory loss: A review
Joseph E. Gaugler, PhD
2:15-2:30 p.m.
Break
2:30-4:00 p.m.
Preserving Memories Through the Power of Story
Melissa Navratil and Sara Croft
4:00-4:15 p.m.
Thanks and Closing Remarks
Joseph E. Gaugler, PhD
Recording of the June 4, Caring for Persons with Memory Loss Conference will be available!
Presentations from the CPWML conference will be recorded and can be accessed live from a remote location with a computer and internet access as well as via a recorded version after the event. (It is highly recommended connecting with T3 or LAN line, as opposed to wireless.)
The CPWML conference will be broadcast here:
https://umconnect.umn.edu/pwmlc/
and the recording will be made available on the virtual library site at:
http://tinyurl.com/CPWMLresources
after the conference. Below are some tips:
Before the conference:
- Test Your Computer. To test your computer and make sure that you have the Flash Player installed and that you have the appropriate Internet connection speed, go to
https://umconnect.umn.edu/common/help/en/support/meeting_test.htm
. A successful test will show check marks next to all four test criteria. - Get Help. If you cannot complete the test successfully or have other questions about UMConnect, support is available by e-mailing umconnect@umn.edu.
Joining the conference
- Sign in 15 minutes early. Go to
https://umconnect.umn.edu/pwmlc/
- You can sign in with your U of MN Internet ID and password or, if you do not have a U of MN Internet ID and password, you can sign in as a guest. Click on “Enter as Guest” and type your name (first and last) into the text box. The meeting host will grant you entry into the meeting room.
- Use headphones. This webcast will include both audio and video. We recommend that you wear a headset to get the best sound experience.
- Get Help. If you have technical difficulties after you have entered the meeting room, use the Chat tool to get live help from the OIT AV Event Support Staff. If you cannot enter the meeting room, or have other questions about UMConnect, support is available by e-mailing umconnect@umn.edu.
Presenters
Ed Ratner, MD, is an Associate Professor of Medicine in the Division of Internal Medicine at the University of Minnesota and is Medical Director of Heartland Home Health Care and Hospice in Roseville, Minnesota.
Monica Heltemes, OTR/L, is an Occupational Therapist and owner of MindStart, LLC.
Joseph E. Gaugler, PhD, is an Associate Professor and McKnight Presidential Fellow in the School of Nursing and Center on Aging at the University of Minnesota.
Melissa Navratil and Sara Croft are Personal Publishing Consultants at Heritage Makers, Inc.
Accreditation
Contact hours now available. To receive 7.8 contact hours for this conference, there is a $50 fee. Registration for the conference and contact hours must be completed online. To receive details on how to purchase Minnesota Board of Nursing contact hours, click here. Non-nursing professionals may also register for and purchase to receive Minnesota Board of Nursing contact hours for use in their professional organization. A signed Certificate of Attendance will be provided to all who pay and register for contact hours through the registration website.
This conference is designed to meet Minnesota Board of Nursing criteria for continuing education required for licensure renewal providing 7.8 contact hours.
Conference Committee
Mary Boldischar, MSW, is the research coordinator of the Families and Long-Term Care research laboratory at the University of Minnesota School of Nursing. She coordinates multiple projects focusing on dementia and long-term care.
Joseph E. Gaugler, PhD, is an associate professor and McKnight Presidential Fellow at the University of Minnesota School of Nursing.
Mark Reese, MA, LPC, LAMFT, is a study counselor at the University of Minnesota. His work focuses on enhancing clinical services for families caring for relatives with memory loss.
University of Minnesota Caregiver Registry
As Dr. Gaugler’s research program continues to grow, he would like to ask you to take a few minutes and consider being a part of the University of Minnesota Caregiver Registry. Becoming part of the registry does not enroll you in any study, but provides Dr. Gaugler permission to contact you in the future about upcoming opportunities to participate in his research as well other basic information. Completing the online University of Minnesota Caregiver Registry form will take no more than 5 minutes.
If you are a family member or friend who knows of someone with memory loss and is help with their care, click here to complete the University of Minnesota Caregiver Registry-Family form.
If you are a professional who cares for persons with memory loss or their families, click here to complete the online University of Minnesota Caregiver Registry-Professional form.
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Thank you to Golden LivingCenters for their sponsorship of printing costs for presentation materials. For more information visit their website. |
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Thank you to Freedom Pointe Minnetonka for their sponsorship of all food and refreshments. For more information about Freedom Pointe and its many services, visit their website. |
Past Events
Educational Fair for Caregivers – May 14th Afton, Minnesota
Click below for flier
Get This On Your Calendar - Alzheimer’s Speaks March 8th at 12pm Est Time
Lori La Bey of Alzheimer’s Speaks will be interviewed by Mike Bonacorsi on Retirement Readiness on March 8th 2011 at 12pm eastern time. click here to convert to your time zone.
Call in with a question or comment 603 816-1590
Make your presence known as Minnesota policy makers consider Alzheimer’s legislation
The Human Services Reform Committee of the Minnesota House of Representatives will hear testimony on important Alzheimer’s legislation Tuesday, March 8, and your policy makers need to hear your voice.
Please join us in Room 200 of the State Office Building (100 Rev. Dr. Martin Luther King, Jr. Blvd, Saint Paul, MN 55155) beginning at 2:30 p.m. Please wear your Prepare Minnesota for Alzheimer’s 2020 shirt, or something else that’s purple, so that the Human Services Committee members can see how many Minnesotans support Alzheimer’s issues.
Get directions and parking information here.
It’s critical that our policy makers hear from us, the members of Minnesota communities, and see how many of us are affected by this disease, and care about it as a policy issue.
Please RSVP to Jim Emery at jim.emery@alzmndak.org. The time is now to take action.
Sincerely,
The Alzheimer’s Association Advocacy Team
www.alz.org/mnnd
http://alzworkinggroup.pbworks.com
Please check on the flier below for detail of the Radio Show “Real Women On Health” which will air live on Jan 26th,2011 Wednesday at 12:30pm Eastern Time.
This will be a great show. Come and join us for the discussion on “Caregiving: From Crisis to Comfort.”
Read more about Lori La Bey Here
Please view her video blog with Rick Phelps, a young man with Early Onset Alzheimer’s Disease to appreciate what Caregivers can expect
Join our conversation this Wednesday January 26th, 2011 at 12:30 pm Eastern time….It’s easy!
Just call 1-646-929-2625 between 12:30 and 1:00pm Est
No time today View all Real Women On Health Podcast
Or Listen to podcasts on itunes here
Caring for a Person with Memory Loss Conference
Dec 4th, 2010 at University of Minnesota
Once again Dr Joseph E.Gaugler of the University of Minnesota is providing a free educational Conference for Caregivers. Kudos to Dr Gaugler and his team for providing such a great conference and service!
I am excited to share the stage with the following professionals sat this conference.
| 8:00-9:30 a.m. | End of Life Care in Memory Loss James Pacala, MD |
| 9:45-11:15 a.m. | Medical and Medication Management in Memory Loss Teresa McCarthy, MD |
| 11:30 a.m. – 12:30 p.m. | Essential Documents in Long-Term Care Kris Maser, JD and Mary Frances Price, JD |
| 1:15-2:45 p.m. | How to Pay for Long-Term Care Kris Maser, JD and Mary Frances Price, JD |
| 3:00-4:00 p.m. | Finding the Positive in Memory Loss Lori La Bey, CSA, Speaker, Trainer, Author |
Here are the details and registration information – Click on the brochure to enlarge
Palace Station Hotel Oct 30th, 2010
11am-3pm on the 2nd floor by the buffet
Answering your questions about the Book Life Choices
Several people have asked me about the book “Life Choices -Putting the Pieces Together,” which I am a contributing author, so I thought I would just note my answers here.
Lori what made you decide to be part of the Book “Life Choices – Putting the Pieces Together”
After my epiphany I didn’t feel there was any option but to record my experience I also knew some day I would take a formal step out of the “Enabler Closet” and share my experience in hopes of helping people who care for others. As my cursor hovered over the Judi’s Moreo’s email, my whole body started to tingle. I didn’t know who she was or what was in that email, but I did know it was important and I would read and respond to whatever it was. I remember sitting in my office and physically saying out loud to myself, “WOW, I wonder what’s in this email?”
As I opened the email and read Judi’s offer to submit a story for the book, I didn’t hesitate. I knew I was to submit a story. I shot Judi an email back asking a few more details and then told her I would be sending one of two stories for review. From there, it was in God’s hands if my story would be chosen for the book or not.
Lori how do you feel about writing? Does it come naturally or do you have to work at it?
Since I was little I’ve always loved to write. I am horrible with spelling and grammar so that is a chore for me, but thank God for spell check that helps but by no means is perfect! I did have two English teachers and my Mother who encouraged me to write. Miss Calvin in Middle School (we used to call it Junior High way back than), and Mr. Anderson in High School. I loved them all dearly and they tried so hard to help with grammar and spelling. It just wasn’t my thing, yet each was able to see past my faults and believe in me.
In my heart, I know we are all communicators and that includes writing. The problem is so many of us get hung up with being judged by others and worried we aren’t good enough. I’m here to tell you, “You are good enough. In fact, you’re Great! And no matter what you write or how you write it, it is perfect. There is no one way to communicate, so get past your fear and just write. If for no one else but yourself.”
I wrote for me. I never had visions of being an Author. If someone would have asked me that years ago I would have laughed. People need to get past the perception of having to be perfect. Once they do, I think they can enjoy the process of releasing feelings and ideas, and documenting events and playing with their imagination. Writing is a form of freedom like no other. It should never be taken from us, and it should never be taken for granted or given up on.
For me personally, I know now I have several books in me. The one I am currently working on is about removing fear when dealing with Alzheimer’s disease. This book will help people identify stress triggers both for themselves and the person diagnosed, so they can move forward and create remarkable moments. Another book will focus on how Caregiving is Perceived, Received and Delivered in this country. It will highlight the new “Hybrid CAR Egivers™” which I speak about. It is about getting individuals along with businesses and organizations to work together to provide optimal care in a new light. Someday, I would also like to write a book about my spiritual awakening. The ups and downs of connecting on a higher level.
As you have might picked up, my life’s purpose seems to focus on relationships and how we connect with one another. The story in the book, “A Caregiver’s Nightmare – Mirror Image,” is an important piece focusing on life balance as a Caregiver and provides helpful questions to assist people in figuring out when you have crossed the line between Caregiving and Enabling, and what the difference is.
Last Lori, would you recommend being involved in a collaborative book like Life Choices?
My gut answer is “YES”, but I also know thatJudi Moreo has been fantastic to deal with. So was Brenda Elsagher who wrote “Bedpan Banter” a collection of work regarding medical stories of humor and inspiration. I have three stories in Brenda’s book. I must say however, I have heard horror stories with friends and colleagues involved in other projects. I would encourage anyone to investigate the possibility, along with the process, and who they would be working with. Ask for references and a copy of a past completed work so you my personal y review it. I can honestly say with confidence “I highly recommend Judi Moreo and Brenda Elsagher. Both are professional, organized, and on schedule. As for the process with the Life Choices book, it has gone quickly and has been fun and exciting every step of the way. I am looking forward to the book launch in Vegas at the Palace Station Hotel, along with being at the Vegas Voice Health and Wellness Fair both on October 30th, 2010.
A great conference on Alzheimer’s disease in Rogers Minnesota on November 3rd, 2010 from 9:30am to 3:30pm
See the brochure below for details and register. Lori La Bey of Alzheimer’s Speaks will be one of the Speakers at the event. She will be talking on “The Shift – Alzheimer’s Like You’ve Never Seen it!”
Click on Brochure to make Larger
Click on Brochure to make larger
I think your blog is good. I found it on Yahoo.
Thanks George. I am glad you like the blog!
Lori
You precisely saved me atleast 1 hour of time. I am making a project in this particular topic and your contribute has helped me through one of the topics of my project. I will browse to the other pages now.
wlecome to Alzheimer’s Speaks, so glad I could help. Hope you visit often.
Lori
Thank you for the sensible critique. Me & my neighbour were preparing to do some research about that. We got a good book on that matter from our local library and most books where not as influensive as your information. I am very glad to see such information which I was searching for a long time.This made very glad
Glad you found the blog helpful. If you have some questions feel free to write and ask.
Lori
of course like your web site but you have to check the spelling on several of your posts. Several of them are rife with spelling issues and I find it very troublesome to tell the truth nevertheless I will certainly come back again.
HI Carmel
I appreciate your feedback and I try to check articles prior to posting, but all are not my writing and I try hard not to change someone elses work. This is especially true if it is written by someone with memory impairment. I see that as part of the journey and education of the process. I will contiue to try to check things over. If you have specifics I’d be glad to hear them.
Lori
Hello, this is my first time i visit here. I found so many interesting in your blog especially on how to determine the topic. keep up the good work.
Thank you
Lori
Hi there,
My name is Leigh Patterson and I am reaching out from AlzCare (http://alzcare.net), a Texas-based group of assisted living facilities specializing in the care of individuals with Alzheimer’s and dementia.
This September, we are hosting a symposium in New Braunfels, TX, that will feature various speakers / panel discussions on the disease. More specifics can be found on our site here: alzcare.net/alzcares-3rd-annual-alzheimers-symposium-0
I was wondering if the event would be of any interest for preview coverage on your blog — if you were looking to do something with a different angle, I would be happy to share interviews with our panelists or anything else that could be of interest to your readers.
Looking forward to talking more!
Thanks and all best,
Leigh
leighpatterson1@gmail.com
I will shot you an email to discuss. I’d be glad to help anyway I can
Lori