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Archive for the ‘caring for loved ones’ Category

Happy Father’s Day

To all the men on our lives who have blessed us with their presence, their love and their support.   To the young and to the old.  To our Father’s, Brother’s, Uncle’s and Cousin.  To the Step Father’s. Step Brother’s, Step Uncle’s and Step Cousins.  To all the men who have fathered us in  a variety of forms.  To those who have listened to us, advised us, mentored us and loved us throughout our lives. 

May each of you know the impact you have had on so many levels with so many people.

May each of you know how much you are loved and appreciated.

dad_wedding_pickTo my Dad,

I could not have asked for a better Father and role model.

Although you have left this world, you will never leave me heart. 

I miss you Dad.  My you enjoy your day and celebrate in heaven.

I will always love you Dad

XXOXXOXXO

Your Daughter Lori

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Radio Station Vs. Therapeutic Music 

Making the Right Choice for Alzheimer’s Patient Care

By Leanne Flask, Chief Content Officer of Coro Health

 

You know that in the past, the Alzheimer’s or Dementia patient for whom you care always loved country music.  So, with the best of intentions, you tune the radio to her favorite station. But rather than responding positively to the music, you are surprised and disappointed when she becomes agitated.  What went wrong?  In a word, the selection of music based solely on genre and popularity, such as that available over radio or on CD’s, stands in sharp contrast to the development of a therapeutic music program, designed scientifically with specific outcomes in mind.

Your original impulse was spot on:  music does hold the potential to soothe, heal and inspire.  Both clinical research and qualitative observation reveals that the effective use of music with Alzheimer’s and Dementia patients can contribute to specific desirable outcomes.   Results can include a lessening of agitation and depression.  Other benefits include the reduction of medication, the lessening of pain perception, increased cognitive stimulation, enhanced social interaction support and more.

 

But there’s a caveat.  As our example illustrates, not all music sources are created equal.  The key is in what goes into the creation of a music program. In brief, the primary goal of the radio station programmer versus that of the team of music therapists, designers and neuroscientists behind therapeutic music could not be further apart. 

 

The objective of the typical radio station is to reach the broadest possible audience with a popular selection of music.  In most cases, the music is interrupted periodically by news, commentary or advertisements which can influence a mood or stimulate a memory. Even commercial-free entertainment music service programmers use tools such as listener data on radio audiences, record sales and mass market airplay to identify which songs to play, and often, in which order.  The desired outcomes of entertainment music are to drive sales and obtain market saturation.  When a consumer turns on a radio or TV in search of a station or genre, they are listening to a structure of songs based on rating scales attached to each song.   

 

Therapeutic music, on the other hand, makes its selections with the specific goal of supporting and improving the quality of life for the individual.   Music genres, sub-genres, tempo, texture, and energy are just a few of the musical qualities that are evaluated.  In addition to including individual songs with which the individual is likely to be familiar, designers and therapists also review how the songs fit together to create a therapeutic music experience. 

 

Why are these considerations important? Here is an example. The song Amazing Grace has a wide variety of versions. If someone suffers from agitation, then a version of the song with less instrumentation and a slower tempo would be selected.  Even if the same version happened to be available on a radio station, it would likely be followed by a disruptive sales pitch or up-tempo song which could easily undo the benefits of the music.  Clearly, this is too important and complex a methodology to be left to chance.

 

While professionals in the Alzheimer’s field understand the role music can play in enhancing the patients’ quality of life, until recently, accessing therapeutic music on a one-on-one basis has been prohibitively expensive for individual caregivers.  Recently, however, one of Alzheimer’s Speaks sponsors, Coro Health, launched an affordable mHealth mobile app that is revolutionizing the delivery of therapeutic music to individuals with Alzheimer’s and Dementia.   MusicFirst: Alzheimer’s draws on over 1000 hours of music and is delivered over most mobile devices.  Easy-to-use, the Alzheimer’s app targets outcomes for those suffering from Alzheimer’s, dementia and other forms of memory impairment as well as behaviors associated with Sundowning syndrome.

Early adopters of Coro Health’s MusicFirst include over 1000 long-term care communities, hospitals, rehabilitation agencies, home health companies, individual caregivers and third party media distributors, supporting over 100,000 people per day.  

 

Broadcast music accessible over the radio is great for targeting the masses.  However, Coro Health realizes that your loved one is more than just a face is the crowd. That’s why when we create therapeutic music programs, we base our decisions on what’s best for the individual, not what’s most popular, or will be most attractive to advertisers.

 

MusicFirst: Alzheimer’s

is available in the Apple iTunes store. You can download and receive the first hour for free and then the app is $4.99 a month.  

 

For more information: visit corohealth.com or to download the app:

MusicFirst:  Alzheimer’s

For additional resources check out Alzheimer’s Speaks

alz_spkslogofromwebsite_083112

 

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Recording of Dementia Chats Webinar

Today – June 11th, 2013

Click on the photo below to go to the recorded webinar

061113_dementia_chats_screen_shot

Topics covered today were:

The Purple Angel Symbol

Dementia & the Government

The words “Caregiver,” “Carer,” “Care Partner”

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Tips to Coping with a Loved One’s Alzheimer’s

 

When a family member or close friend has Alzheimer’s it can have an enormous effect of the rest of the family and close friends. This is especially hard for the ones directly involved in caring for the afflicted loved one as they are forced to face the effects of the disease day in and day out. It’s a heartbreaking site to watch a loved one struggle and even more so when their memory fails to comprehend the big things. Here are some tips to coping with life when a loved one suffers from Alzheimer’s.

 

·         First and foremost, don’t be afraid to express the grief you feel. You have got every right to mourn the life you hoped to have with your loved one and to be sad about how your lives have now changed forever. This sadness may sink it when the disease begins to affect, it may begin before. It is perfectly normal to display signs of anticipatory grief and in some cases it can help you and your loved one prepare yourselves for what is to come.

 

·         Develop a routine that allows you to make life easier on the rest of the family or any other caregivers involved. Make note of times a day when the afflicted is less prone to confusion or is more cooperative. Schedule errands, meal times, and any visits accordingly with these times as well.

 

 

·         Don’t be afraid to ask for help. Caring for a loved one is a 24/7 job that represents an enormous act of selflessness and unconditional love but we are only human. Sometimes the situation, along with any other problems in our lives can get to us. Family and friends are great to have around as things start to get really bad and can help you ease into the transition a lot easier.

 

·         Consult medical professionals. There are often local support groups or organizations you can call for people to talk to that know exactly what you are going through. There are also adult day care services or respite services in case you are the only friend or relative near the afflicted. These people are handy to be in touch with even if you don’t feel you need them as you never know when you might run into an emergency and need someone to substitute care.

 

·         Plan for the future. Be sure to get legal and financial advice as well as any necessary documents in order before the affected becomes less capable. Look into long-term care options and see what is available through health insurance, state agencies, Medicare, etc. Making these kinds of decision during difficult times can be hard and drawn out. It is best to make decisions that everyone is consulted with and agree upon early. On this same note it imperative to have backup plans in case another tragedy occurs. Put away a significant amount of money in case the primary provider may become injured or unable to work whether it is you or another loved one.

 

Cheryl Swanson is a devoted caregiver and a loving wife and mother. She believes that everyone deserves happiness and independence and works to provide that for everyone that she can. In her free time she writes for www.justwalkers.com, a leading supplier of rollators.

For more resources check out Alzheimer’s Speaks Website

alz_spkslogofromwebsite_083112

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Join Dementia Chats Webinar

Click here to join us in 10 minutes

 

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Emeritus Memory Care Experts Discuss Methods to Manage the Hard-To-Talk-About Alzheimer’s Behaviors on June 18 Live Web Chat

Those caring at home for a loved one with Alzheimer’s or other memory-impairing diseases are invited to learn practical methods for handling the most difficult dementia-related behaviors during a live Internet chat at 11 a.m. PT/2 p.m. ET, Tuesday, June 18. 

Emeritus Senior Living Vice President Kelly Scott, who oversees all of the organization’s daily Alzheimer’s programming, and Emeritus Memory Care Training Specialist Diana Engle will demonstrate techniques for managing a range of challenging situations and answer questions from the public. To take part, you can “Click Here” up to 15 minutes before the scheduled event time. Questions may be submitted during the Live Chat, or in advance at Live.Chat@emeritus.com.

Topics expected to be covered include: 

  • Diminishing wandering and other forms of agitation.
  • Responding to and reducing aggression.
  • Handling inappropriate sexual-related verbal and physical behavior.
  • Overcoming resistance to eating and bathing, and handling continence issues.
  • Communicating when your loved one no longer knows who you are.

 

 

 alz_spkslogofromwebsite_083112

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Listen to Alzheimer’s Speaks Radio - 

Inflammation & Dementia

Our guests will be Sharon Olsen and Hanne Hojsted.  Hanne is a Naturopathic Doctor and Iridologist.  Some of the questions they will be answering are:

1.  What exactly is Inflammation in the body?
2.  What are some other factors you believe play a role in Alzheimer’s?
3.  How important is the diet in controlling inflammation?
4.  Can blood sugar play a role in Alzheimer’s?
5.  What supplements can I take to help prevent?

Sharon can be reached via her website

Hanne can be reached via her website

Click on the graphic below to listen to the show

alzheimersspeaks_radio_logo_from_website

All shows are recorded and archived

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Join Us Live Tomorrow

Dementia Chats Tuesday June 11th

3pm EST, 2pm CST, 12pm PST

Here is the link to enter the webinar

It’s FREE

We are going to try to discuss the following with Harry and Michael.  Depending on the conversations we may or may not get through all of these topics, but bring you thoughts and ideas:

The Purple Angel

Government & Dementia

The word “Caregiver”

Stars and Dementia – Helpful or Hurtful?

If you can’t make it live, all sessions are recorded and I will post on

Alzheimer’s Speaks website. 

Click below to access archived recordings.

Dementia Chats Logo

For more resources check out Alzheimer’s Speaks website

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Please Call Your Local Public Library

On Friday, June 7th, Michael Bernhagen and Terry Kaldhusdal, the award-winning producers behind Consider the Conversation: A Documentary on a Taboo Subject, will send a beautiful brochure to 4,500 public libraries around the United States encouraging them to add the film to their DVD collection for the benefit of the communities they serve.

Will you call your local library to let them know about the documentary?

To date, the film that inspired the Wisconsin Medical Society to launch Honoring Choices Wisconsin has aired 401 times on 163 PBS stations in 30 states and won 11 awards including an Award of Excellence for Use of Film for Social Change and the 2013 Touching Lives Award from Horizon Home Care & Hospice.

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CLOTHING DESIGNED FOR DEMENTIA COULD DECREASE

CONFUSION AND AGITATION FOR WEARERS


A new clothing concept could change how people affected by dementia interact with and wear their garments, helping to reduce agitation and maintain their independence for longer.

 

Britta Schulte, who is studying Fashion Knitwear Design and Knitted Textiles at Nottingham Trent University’s School of Art & Design, has carried out research into dementia and how specially designed clothing could make a difference to an individual’s daily routine and general wellbeing.

 

She has developed a new clothing collection which she believes could tackle some of the challenges encountered when living with dementia making it easier for the wearer to orientate.

The garments provide information to the wearer so they can understand how to put on the clothing, including highlighted and magnetic fastenings. Sensory aspects are also incorporated to help with recollection.

 

Britta, 32, said: “Dementia reduces the ability to recall memories. It might therefore decrease the ability to recognise objects for what they are and to understand their purpose, even though the object might be familiar. However, people affected by dementia do not lose the ability to perceive their surroundings and are able to become aware of things through their senses.

 

“This collection tries to achieve two things, firstly creating appealing garments for people with dementia that include audible and olfactory clues. Secondly, making the garments easily perceivable by including visual and tactile signs of how the garment should be worn.”

 

Britta, whose grandmother had a form of dementia, added: “The next challenges I want to address are creating clothing that will help the person decide when to get dressed and how to choose clothing that will be adequate.

 

“Even though we do it every day and we might not be aware of it, dressing is a complex task that requires a lot of decisions to be made throughout. People with dementia might struggle with the decision making and therefore might be discouraged by dressing. To create a system that could reduce this challenge would help the person retain their independence for longer.”

 

Tessa Gutteridge, director of Young Dementia UK, commented: “Clothing that can be both attractive and easy for a person with dementia to manage independently would be extremely advantageous. It would be a real gain for the person who, after all, experiences so many losses in their life, and encouraging and helpful for the family too.”

 

Britta’s clothing was on display at the Nottingham Trent University degree shows that are open to the public from Friday 31 May until Saturday 8 June. For more information visit www.ntu.ac.uk/degreeshows

Check out our website for more resources

alz_spkslogofromwebsite_083112

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