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Archive for the ‘Advocate on Steroids for Caregiving’ Category

The Wisdom Journey: Discover the New Power of Elder Circles

 The July Free Teleseminar Presented By:

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The Wisdom Journey: Discover the New Power of Elder Circles

Date: Tuesday, July 22, 2014
Time: 5:00 pm PDT/8:00 pm EDT for 1 hour

Are you aging and feeling isolated and lonely? Do you live far away from resources, or are you homebound?

Do you want to leave a legacy of your life journey but don’t know how – or maybe don’t have people close to you that you can talk to?

In this teleseminar, we will discuss why it’s important to look at our life journey and the connection between the Elder Circles and leaving a legacy. We will also explain how you can find joy in your life, no matter what your circumstances.

Medical studies estimate that 10-30 % of elderly are homebound. Being isolated and lonely is a risk factor to developing cognitive disorders, depression, anxiety, and other mental health conditions.

Join ARPF and guest speaker Del Jones, one of the founders of Elder Circles, as we present this outstanding program that provides a safe, respectful place to share your story and reflect on your life. We will also share the new Elder Circles With Out Walls (ECWOW), and how you can join the telephone circles from the convenience of your own home.

To register, go here

 

For more information on Dementia and Caregiving click below to go to our website.

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To Be Remembered

To Be Remembered

By: Michelle Remold

This week, a friend of mine was telling me about a book of poetry she was reading. The book she was reading was titled Beloved on the Earth: 150 Poems of Grief and Gratitude. She had mentioned that there were a few poems about Alzheimer’s disease that she thought I would enjoy reading. While I enjoyed all of the poems, there was one that has stuck with me. The poem is Sitting with Grandma by Gail Rixen.

The last stanza of the poem is what has stuck with me this week. It reads “I am sitting here now as you doze, not in case you remember me, but because I remember you.” I couldn’t believe just how much this last stanza of the poem rang true for me.

We would visit my grandpa every weekend. Even when he slept most of the time, I would still go with my mom to visit him. Even when he slept, we would spend at least an hour sitting with him and would reminisce about things he used to do with us. We would even send him postcards when we went on trips, not so that he would remember us, but to show that we were thinking about him.

In thinking about the poem, I realized that I didn’t go visit him in hopes that he would remember me, but instead because I remembered him and everything he did before and visiting him was a way to be with him and to relive the moments and create new memories of him that one day would become invaluable.

I still think of my grandpa the same way I did when I was younger. Even when he no longer knew who I was, I would run to him, take his hand and we would walk together. Even as I got older, whenever I would talk to him, he would smile. I would sit with him and tell him about my week and everything that was going on. I never was hopeful he would remember my name, but I talked to him just like I would to anyone else.

There is no doubt in my mind that deep down he knew me, but when I read the poem it made me really think about my grandpa. The poem made me realize that everything I did for him and with him as the Alzheimer’s progressed was not done in hopes of him remembering me, but was done because I remembered him in a way that would never be replaced.

The poem came from: Beloved on Earth: 150 Poems of Grief and Gratitude. Edited by Jim Perlman, Deborah Cooper, Mara Hart, and Pamela Mittlefehldt. Published by Holy Cow! Press, Duluth, MN 2009.
???????????????????????????????Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Aging Studies and Nursing Home Administration from Minnesota State University Mankato.

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BBC Radio – What Is It Like to Live With Alzheimer’s Disease

Alzheimer’s Speaks Founder

On BBC Radio

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For more Resources

on Dementia and Caregiving

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The Truth about Alzheimer’s Disease: Statistics, Causes, Early Signs and Stages

Switzerland’s Margaret Manning of SixtyandMe.com had a great interview which unravels the myths and stigmas of dementia.  These two woman, talk in everyday language so it’s easy to understand and listen to. Listen in and gain new insights about dementia.

Listen to Margaret Manning and Lori La Bey’s as they casually yet compassionately discuss what life is really like with dementia.

For More Resources for Dementia & Caregiving

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Dementia – A Voice For the Voiceless

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Your Help Is Needed

Michael Ellenbogen has worked tirelessly to shift our dementia care culture around the world.  As a man living with the disease, he understands the urgency on a level most of us don’t even want to begin to imagine, let alone live with.  Michael also knows there are many others living with dementia that are unable to speak up and advocate for themselves or others.

The Voice Of People Diagnosed With Dementia

Needs To Be Heard

Did you know there is no formal funding mechanism to help those living with dementia in raising awareness and educating families, professionals caring for them including medical staff on the realities of living with the disease?  There needs to be one so we can speed up the awareness and education process to improve services to those dealing with the diagnosis.

Please Click on the graphic below to watch the interview.

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Click Here

See How You Can Make A Major Difference

Raising Awareness

 

For more information on dementia and caregiving check out our website below

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Wow Exciting & Informative on Noise/Sound/Hearing with Dementia – Dementia Chats

Dementia Chats™ Webinars

Discusses Noise, Sound and Hearing

Learn How It Effects Those With Dementia

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Click Above To Watch the Free Webinar

What a great conversation on how this critical topic affects those with dementia.  We had a wonderful guest, Steven Orfield from Orfield Laboratories,  who shared insights from his research and the impact noise has on people with dementia.  I want to thank all our experts living with dementia for their personal insights as well as are participants who contributed great questions and comments.

Orfield Laboratories, Inc. is a multi-disciplinary laboratory serving North American and international clients. Providing services in Acoustics Vibration, Vision, Lighting, Architecture and Market Research. Orfield is unrivaled in the extensive use of objective and subjective methods, offering design, research and testing services and solutions for corporate and architectural clients since 1971.

To preview other past  webinars Click Here.

Our Experts Actually Have Dementia

Harry Urban, Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

Steve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

Michael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

Dementia Chats Hosts

Lori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving. Her mother struggled with dementia for over 30 years.

Elion Caspi, has a website called Aggression Between Residents with Dementia He will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations.

For more information on dementia
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Join Dementia Chats FREE Webinar Tuesday, July 8th

Join Dementia Chats FREE Webinar

Tuesday, July 8th

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3pm EST, 2pm CST, 1pm MST, 12pm PST and 8pm London

Its FREE, FUN & EDUCATIONAL!

Click here to enter the webinar

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Today Steve Orfield, of Orfield Laboratories, will join our experts living with dementia to discuss on the impact of noise on people diagnosed with dementia and the ways to address it.

Orfield Laboratories, Inc. is a multi-disciplinary laboratory serving North American and international clients. Providing services in Acoustics Vibration, Vision, Lighting, Architecture and Market Research. Orfield is unrivaled in the extensive use of objective and subjective methods, offering design, research and testing services and solutions for corporate and architectural clients since 1971.

We would love to hear your thoughts and questions. I hope you can join us!

Our Experts Actually Have Dementia

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Harry Urban , Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

 

 

Driving Steve Ponath

Steve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

 

 

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Dena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

 

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Michael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

Dementia Chats Hosts

Lori La Bey founder of Alzheimer's Speaks

 

Lori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving. Her mother struggled with dementia for over 30 years.

 

 

Eilon Caspi pic

Elion Caspi, has a website called Aggression Between Residents with Dementia He will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations.

 

For more information on dementia

Click Below

Alz Speaks multi logo_091113

 

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Paying for Dementia Care & Dr. Al Powers on His New Book – Dementia Beyond Disease: Enhancing Well-Being

Join Alzheimer’s Speaks Radio Tuesday July 8th

Paying for Dementia Care &

Dr. Al Powers on His New Book 

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Dementia Beyond Disease: Enhancing Well-Being

Today we have Alex Guerrero, with American Elder Care Research Organization. They produce the website Payingforseniorcare.com. Alex learned the hard way about the challenges associated with caring for the elderly and finding the financial resources to pay for care and today he is going to share his secrets and tools to help you!

Contact Alex      Website

Our 2nd guest will be Dr. Al Power, who is known around the world for his forward thinking dementia care. His book “Dementia Beyond Drugs” took the world by storm. I can’t wait to talk to him about his new book “Dementia Beyond Disease: Enhancing Well-Being.” You can get the book at Amazon or Health Propress

Contact Al       Website

For More Information on Dementia Check Out Site Below

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Common Ground

Common Ground

By: Michelle Remold

“I find I am an old soul.” This is a quote from Rachel Roy. I find a truth in this quote. People often laugh at me when I tell them that I am an “old soul.” The fact is that I really do think I am an old soul. I love watching old westerns and old television shows; Gunsmoke, Bonanza, The Big Valley, The Rifleman, Leave It to Beaver, Bewitched – you name it, I have probably seen it or have it on DVD. I can join almost any conversation about Gene Autry, Roy Rogers, or Dale Evans. In fact, Gene Autry’s song, “Barney the Bashful Bullfrog” is one of my favorite songs and “Back in the Saddle Again” is on my iPod.

When I was little I always enjoyed being around adults more than kids and often found kids my age to be annoying. As I write, I can’t help but think that these things more than likely contributed to my interest in Gerontology. These factors also more than likely contribute to my passion for interacting with those who have Alzheimer’s and dementia.

Granted I grew up with Alzheimer’s and dementia being a large part of my life, I have learned to be able to enter their world and have conversations with them ranging from one room school houses to old music. I never find a lull in what to talk about. I think that this is what baffles me when people say that they can’t go to nursing homes or visit elderly people because there is nothing to talk about. We have everything at their fingertips. If you don’t know about a television show or song that seems to be brought up often, we have the ability to look it up and learn about it in a matter of minutes.

Really, all it takes is finding common ground. Similar hobbies (crocheting, baking, collections – I collect quotes), favorite books or authors (my favorite book is “Cannery Row” by John Steinbeck, who also happens to be my favorite author), or other commonalities that can be so numerous I can’t name them all. It might take some time and effort, but in the end I often find that it is worth it. The conversations that can be had and everything that can be learned are fantastic.

I think that it is important to find common ground to have discussions with those who are older, no matter if they have Alzheimer’s/dementia or not. Being that my grandpa was diagnosed with Alzheimer’s when I was in second grade, I wasn’t very interested in his stories about World War II or being at Normandy Beach at D-Day and now I often wish that I did know them. For me, this is the driving force behind learning all I can from people who have Alzheimer’s or dementia and taking their stories to heart. Without a little patience and the willingness to find some common ground, you never know what you might miss.

???????????????????????????????Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Aging Studies and Nursing Home Administration from Minnesota State University Mankato.

 

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Alzheimer’s Speaks Wishes You All

A Safe & Fun Holiday!

Enjoy your family and friends

Lori La Bey founder of Alzheimer's Speaks

Lori La Bey founder of
Alzheimer’s Speaks

For More Information On Dementia And Caregiving

Check Out Our Website Below

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