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Archive for the ‘Advocate on Steroids for Caregiving’ Category

Dementia Research & NAPA Speeches on Alzheimer’s Speaks Radio 8/26

Dementia Research &

NAPA Speeches

Alzheimer’s Speaks Radio

Tuesday 8/26

082614_ASR_neurotrope_NAPA_MichaelClick To Listen to the Show

Alzheimer’s Speaks Radio goes live Tuesday Aug 26th at 11am EST,10am CST, 9am MST, 8am PST and 4pm London  time.  We love having an open conversation with everyone who is dealing with the disease.  Please call in live at (714) 364-4757to ask a question or share a thought or use the chat box to communicate with us.

Our first guests are Charles Ramat, Co-Chief Executive Officer and Dan Alkon, PhD., Neurotrope, Chief Scientific Officer and from Neurotrope. We will be discussing Alzheimer’s disease treatment challenges and Neurotrope’s development of bryostatin, their partnerships and minimally invasive, diagnostic biomarker analysis system.

Eric_Neurotrope_logoDuring our second hour we will listen to Michael & Shari Ellenbogen’s Speech at NAPA (National Alzheimer’s Project Act).  After we will discuss your thoughts and talk with Michael on how their speeches were received.  We would love for you to join the conversation.

michael_ellenbogen_video

For more information on dementia and caregiving check out:

 

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Denial or Lack of Understanding?

Denial or Lack of Understanding?

By: Michelle Remold

My topic for this week has been on my mind recently. During the last couple of weeks I have had some very similar discussions around Alzheimer’s/dementia.

The discussions have typically started out with the stigmas associated with the terms ‘Alzheimer’s’ and ‘dementia.’ These discussions aren’t surprising to me, but they seem to be taking a different twist lately. When the discussions start, I am able to sympathize with the isolation that not only the person with Alzheimer’s/dementia faces, but the isolation that families feel as well. I have written before about how people seemed to stop visiting my grandpa because they said it was too hard to see him that way, not realizing that it wasn’t exactly fun for family to watch the steady decline either. I think in one way or another, this is something families dealing with these diseases can relate to.

As of late however, the discussions seem to end on a different note. Whomever I am talking to will mention that they don’t like to use the words Alzheimer’s or dementia because of the stigma attached with both. They always mention that they know the diagnosis and that the person with the disease knows the diagnosis, but when it comes to talking with other people it seems to be easier to avoid using the terms ‘Alzheimer’s’ or ‘dementia’ because it seems to reduce the awkwardness and the stigma. However, they all seem to get one common response to this approach and that is people tell them by not calling it what it is, they are in denial.
I am not sure I would exactly call it denial. When first diagnosed, it might be a coping mechanism, but as the disease progresses, being able to deny the decline and the progression of the disease becomes more and more difficult. I simply think it is a way to curb some of the stigmas that come along with Alzheimer’s and dementia. The people often say that even calling it memory loss, seems to be a little less frightening to anyone they are talking to.

I think that this will change with time and awareness of Alzheimer’s and dementia. It will take time for people who haven’t had firsthand experiences with the diseases to know that the family still needs support and friendship, as does the person with the disease. Backing away from it and making them more isolated doesn’t help, it only makes dealing with the diagnosis of Alzheimer’s or dementia even harder.

???????????????????????????????Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Aging Studies and Nursing Home Administration from Minnesota State University Mankato.

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Free Memory Screenings at the MN State Fair

Free Memory &

healthstar_tv_2_

Click above to watch interview

Caregiver Burnout Screenings

healthstar fair 7at the MN State Fair

Concerned about your memory or maybe a loved ones?

Are you exhausted, frustrated or confused about how to care for someone?

Wow yesterday was a Fantastic Day at the Minnesota State Fair with HealthStar Home Health.  It was amazing talking to all the people and hearing their personal stories about life with dementia.  Lots of people were interested in taking a Memory Screening so they would have a baseline for not only themselves, but their Doctor.

healthstar fair 3

HealthStar will be at the fair providing:

FREE Screenings August 21 – September 1

from 9:00 AM to 6:00 PM in the

East Crossroads Auditorium/ HealthFair 11 Bldg.

(Corner of Dan Patch & Cooper).

healthsatr fair 2

Lots of GREAT RESOURCES!

healthstar fair 8

Face-to-face memory screenings average five minutes and consist of questions and tasks to assess memory. Individuals can take advantage of free, confidential memory screenings provided by HealthStar Home Health, as part of raising community awareness and providing public education on Alzheimer’s and dementia. HealthStar & the Alzheimer’s Foundation of America encourages screenings for adults with memory concerns, a family history of Alzheimer’s disease or those who want to check their memory now and have the results for future comparison. Warning signs of dementia include forgetting people’s names/events, asking repetitive questions, and confusion over daily routines.

healthstar fair 9

As many as 70% of families affected by dementia are choosing to keep their loved ones at home for as long as possible, while managing the different stages. Family and caregiver burnout rises dramatically when faced with this disease. HealthStar’s Alzheimer’s & Dementia program provides both in and out of home support to families and caregivers dealing with challenging behaviors associated with the disease. Changes in healthcare, due to high prevalence, allow our nursing experts to provide training, education and non-pharmacologic behavior assistance in the home, which is 100% covered by traditional Medicare and most insurance plans. Memory loss screenings are the first step toward detection and treatment.

healthstar fair 4

Click below to contact HealthStar Home Health

HSlogo

For more resources for dementia and caregiving

Click Below

alzsnap_serv_072413

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Playgrounds for Older Adults

Playgrounds for

Seniors

playground_news_feature_4_seniorsThis is an interesting concept. 

What do you think?

Motion Wellness system is a breakthrough seniors’ Play structure developed to reduce seniors’ fall-related injuries and potentially save lives that may be lost due to fall.

“With our new Motion wellness system seniors’ falls can be dramatically reduced through play.” states Mr. Chaham, Director of Sales for Xccent Fitness. Motion Wellness system improves stability, balance and coordination. It also allows social interaction and socialization so the training process becomes fun, un-intimidating and effective.

The WHO (World Health organization) stats indicate that one-third of people aged 65 years and over typically fall once or more each year. Falls are the most common cause of injury and the 6th leading cause of death for seniors; almost half of admissions to long-term care facilities are fall-related.

The CDC (Centers for disease control and Prevention) released that in 2010, the total direct medical costs of fall injuries for people 65 and older, adjusted for inflation was $30 billion. The CDC claims that by 2020, the annual direct and indirect cost of fall injuries is expected to reach $54.9 billion. Among community-dwelling older adults, fall-related injury is one of the 20 most expensive medical conditions.

“Falls are caused by a lack of balance or an inability to recover balance.”, says Mr. Chaham. “There are many factors that can influence balance, including some age-related body, physical and mental health problems, and environmental trip hazards. Physicians, nurses and care givers often interact with older adult patients who have experienced a fall or fall-related event, yet there are few validated tools readily available to assess the nature of the risk and guide the application of proven fall prevention strategies.”, concludes Mr. Chaham.

The goal of Xccent’s Motion Wellness Systems is to dramatically reduce the growing number of falls and fractures among older adults by engaging primary care physicians, nurses, and other senior care givers to use the playful structure as an assessment platform and later as fall prevention training tool.

For More Information

Click Below

Motion_Wellness_logo

For Resources on Dementia & Caregiving

Click Below

alzsnap_serv_072413

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Walker Methodist & MUSIC & MEMORY℠ helps Awaken Minds & Awaken Lives with the Miraculous

Walker Methodist & MUSIC &

MEMORY℠ helps Awaken Minds &

Awaken Lives with the Miraculous

Gift of Music

miracle of music w walker methodistWalker Methodist and MUSIC & MEMORY℠ seek donations to bring Music to those suffering with Alzheimer’s & Dementia

Walker Methodist (Minnesota) – Walker Methodist has teamed up with MUSIC & MEMORY℠ to bring music therapy to their senior living communities and all communities who work with MUSIC & MEMORY℠ nationwide. This program introduces a way to bring music into the lives of people, specifically those with Alzheimer’s or dementia. Music therapy has been linked with slowing memory loss, increasing recognition and recollection, and overall enhancing the lifestyle of residents using the program.

5.6 million people suffer from Alzheimer’s disease. Where medications have failed, music has succeeded. You can help improve the lives of those affected by this disease and give hope, and peace, through music. It’s not just those with the disease that you will be helping. It’s the families. It’s the workers. It’s their friends. It’s your family. And for everyone who has loved someone who has forgotten who they are. If you love people, love music, or have been affected by this, we are asking for your help.

Walker Methodist has started a campaign to raise funds to support the MUSIC & MEMORY℠ program. Funds raised will go towards providing iPods, headphones, and iTunes custom music libraries to Walker Methodist residents suffering from memory issues. Eventually, Walker Methodist hopes to offer this program to every resident throughout all of their communities, and one day nationwide.

To donate to this campaign, visit: https://www.indiegogo.com/project/preview/794d59f9. Walker Methodist has set a goal of receiving $85,000 in donations for their implementation of the MUSIC & MEMORY℠ program.

About MUSIC & MEMORY℠

MUSIC & MEMORY℠ is a non-profit organization that brings personalized music into the lives of older adults through digital music technology, vastly improving quality of life. Executive Director Dan Cohen founded MUSIC & MEMORY℠ with a simple idea: Someday, if he ended up in a nursing home, he wanted to be able to listen to his favorite ‘60s music.

Dan discovered that none of the 16,000 nursing homes in the U.S. used iPods for their residents. Drawing on his background in leveraging technology to benefit people who would otherwise have no access, he volunteered at a local nursing home in Greater New York, creating personalized playlists for residents. The program was a hit with residents, staff and families, and became the prototype for a bigger effort.

The MUSIC & MEMORY℠ program trains senior care professionals, as well as family caregivers, how to create and provide personalized playlists using iPods and related digital audio systems that enable those struggling with Alzheimer’s, dementia and other cognitive and physical challenges to reconnect with the world through music-triggered memories.

By providing access and education, and by creating a network of MUSIC & MEMORY℠ certified communities, they aim to make this form of personalized therapeutic music a standard of care throughout the health care industry.

MUSIC & MEMORY℠ has produced a feature length documentary entitled, “Alive Inside” that showcases the effects of music therapy to improve the quality of life for those impacted by the program . The film will be shown in Minneapolis on August 15th at the Edina 4 Theatre. Get more information about the film at www.aliveinside.us.

music_and_miracle_walker_thank_youAbout Walker Methodist

Walker Methodist specializes in lifestyle, housing and healthcare services for older adults. They own, operate and manage housing communities, provide rehabilitation services, and operate leading sub-acute transitional care centers that help people recover from hospitalizations or surgeries so they can return home.

The mission at Walker Methodist is Life. And all the Living that goes with it. They believe that age should not hold people back from living their life to the fullest, and have created communities that give people freedom to enjoy activities and lifestyles that suit them best.

The addition of MUSIC & MEMORY℠ is the next step in creating an environment that fosters fulfillment and joyful living for Walker Methodist residents.

walker_methodist_logo

For Resources on Dementia and Caregiving

Click Below

alzsnap_serv_072413

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Free Memory Screenings at the MN State Fair

HealthStar Home Health to Hold

Free Memory Screenings

at the MN State Fair

Concerned about your memory?

Face-to-face memory screenings average five minutes and consist of questions and tasks to assess memory. Individuals can take advantage of free, confidential memory screenings provided by HealthStar Home Health, as part of raising community awareness and providing public education on Alzheimer’s and dementia. HealthStar & the Alzheimer’s Foundation of America encourages screenings for adults with memory concerns, a family history of Alzheimer’s disease or those who want to check their memory now and have the results for future comparison. Warning signs of dementia include forgetting people’s names/events, asking repetitive questions, and confusion over daily routines.

FREE Screenings to be held August 21 – September 1

from 9:00 AM to 6:00 PM in the

East Crossroads Auditorium/ HealthFair 11 Bldg.

(Corner of Dan Patch & Cooper).

As many as 70% of families affected by dementia are choosing to keep their loved ones at home for as long as possible, while managing the different stages. Family and caregiver burnout rises dramatically when faced with this disease. HealthStar’s Alzheimer’s & Dementia program provides both in and out of home support to families and caregivers dealing with challenging behaviors associated with the disease. Changes in healthcare, due to high prevalence, allow our nursing experts to provide training, education and non-pharmacologic behavior assistance in the home, which is 100% covered by traditional Medicare and most insurance plans. Memory loss screenings are the first step toward detection and treatment.

Click below to contact HealthStar Home Health

HSlogo

For more resources for dementia and caregiving

Click Below

alzsnap_serv_072413

Read Full Post »

My Good Friend In Australia Requests Your Help To Improve Dementia Care

My Good Friend In Australia Requests Your Help

To Improve Dementia Care

Colin McDonnell with Starrett Lodge of Uniting Care is on a mission to find out some answers and he would like to hear from those with dementia. He is trying to figure out the best way to assist a person with dementia in finding their room. Below are some questions he would like those with dementia to answer.  To do so, just click on comment and write your response.

Thank you in advance for your help!

Here are the questions:

  1. Would a door being painted a specific color of your liking help you recognize your room/home?
  2. What is your favorite color?
  3. How does your favorite color make you feel?
  4. Would a memory box outside of your room/home help trigger you to recognize your room/home?
  5. Of these choices which would you prefer?
  • A painted door
  • A Memory Box outside your door
  • Both
  • Another idea to help you recognize your room/home.  If so, please share with us.

6. What is your favorite color?

7.How does your favorite color make you feel like when?

Here is a great video which will give you an idea of what Starrett Lodge of Uniting Care is up to.

For more information on dementia and caregiving

Click Below

alzsnap_serv_072413

 

 

 

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