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Recorded Dementia Chats Episode from April 22nd

DC free web for sharecare042214_DC_snapClick above to watch and listen!

This was a great conversation with the Partnership in Dementia Care PiDC Alliance who was conducting a survey on how to improve dementia care in the future.  Listen in or feel free to contact them with your comments to the following questions.

1.            What do you need to live well with dementia?

2.            What do you need in your community to live well with dementia?

3.            As you move forward in your dementia journey, what will you need to live well with dementia?

4.            What would an ideal care experience look like for you?

or contact

Sian Lockwood
Knowledge Translation Specialist
Partnerships in Dementia Care (PiDC) Alliance
University of Waterloo, LHS 1618C
Waterloo, ON, Canada N2L 3G1

519-888-4567 ext 35280
www.uwaterloo.ca/pidc

For more resources on dementia and caregiving

Check out our website below

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Join 

DC free web for sharecare

FREE Educational Webinar

on Tuesday April 22nd

3-m EST, 2pmCST, 1pm MST, 12pm PST and 8pm Lodon

Learn more about Dementia Chats Here

I know about the Dementia Chats and just want to join you! 

Click HERE To Enter!

Come and talk with our experts who have been diagnosed with dementia.

harry UrbanHarry Urban

dena_dotson

Michael Ellenbogen newest pic 102813Michael Ellenbogen

Driving Steve PonathSteve Ponath

For additional resources on Alzheimer’s disease and other dementias and how to care for those diagnosed, check out our website below.

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A Ticking Time Bomb &

Caregiver Cards on

asr_logo_lori_and_micJoin us live Tuesday April 22nd

at 11am EST 10am CST, 9am MST, 8am PST or 4pm London

Call in live and join the conversation  (714) 364-4757 or use the chat box.

Eric Rill S01-PRT-038c ii-3

Today we are pleased to have Eric Rill, Author of An Absent Mind. In his book, he dives into the ticking time bomb of dementia. Will it pull his family together or tear it apart?

 

eric rill AN ABSENT MIND_Ebook3

What has happened in your own families when dealing with dementia?

We would love you to join the conversation.

Website  

 

Barbara Worthington Founder and Owner Caregiver Cards

 

Our second guest will be Barbara Worthington is the founder and owner of Caregiver Cards.

 

 

Barbara worthington shower and dry offCaregiver Cards is a product that allows for a caregiver, for persons either living with Alzheimer’s, dementia, who may be deaf or hard of hearing, may have speech or memory disorders, or developmental disabilities, to be able to communicate in an alternative, and, yet, simple way. It is picture based communication, or, in short, communication cue cards.

Website

Check out Alzheimer’s Speaks Website for more resources and information

- Blog, Free Webinars, Tools, Resource Directory and more.

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alz_breakfast_save_the_dateThis Is A Great Event By

HealthPartners Center for

Memory and Aging

You Will Learn, Network And Have An

Opportunity To Make A Difference!  

7-8am = Registration/Expo/Networking
8-9am = Program
- Welcome
- Breakfast
- Visionary Leader Speech
- Video
- Personal Testimonial from family member in video
- Ask
- Thank you
9-10am = Expo

If you are interested in the event please CONTACT ME. 

I would be honored to have you at one of my tables.

For more resources on Alzheimer’s, other dementias an Caregiving

CLICK BELOW

Alz Speaks multi logo_091113

A Picture is Worth a Thousand Words

By: Michelle Remold

People say that a picture is worth a thousand words. We take pictures of family gatherings, important moments, vacations, birthdays, holidays, and many more. I spent this past weekend in Wisconsin spending time with my family. We played games, went on a tour, made food, and spent a lot of time laughing. We documented the weekend with pictures and anytime we want to look back at the weekend, we have pictures to look at.

Over the course of the weekend I realized how important pictures really are. Older photos may help the person with Alzheimer’s or dementia through recalling memories from growing up or from when they were younger. My grandma has many older photos in her room. She has trouble with present events, but speaks of things from the past often; she likes looking at the older photos and talking about them. They give us a peek of family members who have passed or events that have occurred. They also provide the staff of nursing facilities to see that the person was like before. My grandpa was a painter and a carpenter, so activities based on this may have been of interest to him. He also spent a lot of time holding a stuffed dog, the reasoning behind this is that he and my grandma many years back had a French Poodle named Pierre. Pictures can convey these things without needing much explanation.

Picture are also important to family members. I have my pictures from college in albums organized by year, it’s fun to go back through them and see what all I did. I still remember the feeling of thinking that four years was forever and that I would never graduate, but the time flew by. I also look back at pictures of my grandpa. There are pictures of us feeding the geese when I was two, pictures of us after my brother was born, pictures at the park, or the picture of the last grandparent’s day he went to at my school. As time wore on we have pictures of him eating his favorite cake with us, just sitting outside, his last Christmas when my brother and I were dancing with him in his wheel chair, and his 90th birthday when we threw a party for him. I enjoy looking back at all of these pictures. It reminds me of all the fun times we had even though Alzheimer’s was a part of many of the pictures. I wouldn’t trade any of those pictures for anything though, each one of them makes me smile.

Pictures can serve many purposes. They can be used in shadow or memory boxes, in picture frames, photo albums, videos, blankets, slide shows, and many more. The one thing I have always noticed though is that people are always curious about the story behind the picture and why the picture is important to you. I think that is why they say a picture is worth a thousand words.

 ???????????????????????????????Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Aging Studies and Nursing Home Administration from Minnesota State University Mankato.                                                                                                                                                                                                                                                               

This Easter holiday will be a difficult one for me.  It is the first holiday without my mother who recently passed away.  Although it is normal to go through rough periods when grieving; such as the many “firsts” to process after a loved one passes, it is also a great time to reflect on your time together.

So I decided to do just that.

What Easter Egg Do You Like?

easter-eggs-wallpaper-1 - CopyLooking at all the colorful Easter eggs above, I realize dementia has a lot in common with the tradition of decorating eggs.  Dementia, like the various eggs with their brilliant colors and designs is unpredictable, yet each stage like the various eggs are gorgeous in their own right. As dementia ebbs and flows, it is much like the colorful eggs igniting different emotions, generating various feelings and creating  memories.  All we have to do is commit to participate in the celebration.

Do You Remember Your First

Easter Egg Hunt?

easter_eggs_and_kids - Copy

The innocence and beauty of believing in the possibilities before us is energizing and contagious. If it is believing in the Easter Bunny or holding onto the belief that our connections with others runs deep and never dies, we can inspire and engage one another by participating in the hunt, in the game of life.  Dementia does not have to interfere with this philosophy unless we let it. As care partners we are in control of our beliefs.  By living with gratitude and appreciation for the uniqueness of each moment before us we can become accepting of the changes that occur due to disease.  We can live with excitement, purpose and the innocence which allows us to love unconditionally as our relationships unfold.

Hold On Tight To Your Peeps

peeps_candy_easter

Don’t let disease rob you of your relationship.

Choose life, love, laughter and create and capture the moments before you.

Have A Brilliant Holiday Weekend.

Thank You For All The Love And Support You Have Given Me On My Personal Journey With Dementia

easter_egg_and_bunny - Copy

For Resources on Alzheimer’s disease,

other Dementias and Caregiving

Check Out Alzheimer’s Speaks Website Below

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Nursing Home Options For Dementia

& Open Mic

041514_ASR_Banner_joanna_leeferClick above to go to the Show!

We go live at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time!

We would love you to join the conversation by using the chat box or calling in live at

(714) 364-4757

joanna leefer picJoanna leefer book coverAlmost_Like_Home_Cover_for_KindleOur first guest will be Joanna Leefer, Author of “Almost Like Home – A Family Guide to Navigating the Nursing Home Maze.”

Bring your questions and comments. Call in (714) 364-4757 or use the chat box.

Call Joanna [917) 923 5141

 

joanna leefer logo

Click above to learn more about Joanna!

The second half of the show – Open Mic!

We would love to hear what you think about Alzheimer’s disease, dementia and caregiving.

What are you doing to make a difference?

What needs do you see that are not being met?

How would you like to live your life if you got diagnosed?

What great resources have you found to be helpful?

Check out Alzheimer’s Speaks Website for more resources and information

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